Form Results Inserted Here
Name: Eddie Silva
Organization: Father of Michele
Email: esilva08@msn.com
Home_Page:
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 2/10/2003
Time: 9:24:54 PM
Remote Name: 67.210.106.136
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows 98; DigExt; MSN 6.1; MSNbMSFT; MSNmen-us; MSNc21; MSNc21)
Michele is awesome. Her mother and her stepfather are too. I am very proud to be her father. Love, Dad
Name: Christina Gentile
Organization:
Email: ccgentile46@aol.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://www.headinjury.com
Should we contact you?: Yes
Date: 2/9/2003
Time: 10:03:35 PM
Remote Name: 64.12.96.104
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; AOL 8.0; Windows 98; Win 9x 4.90)
Name: Judith Donovan
Organization:
Email: judyjudyjbar@aol.com
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http
Should we contact you?: Yes
Date: 2/9/2003
Time: 2:02:35 AM
Remote Name: 205.188.209.9
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 6.0; AOL 8.0; Windows NT 5.1)
I need to know how to put in for offering support there is no submit button My husband has a tbi and I am his caregiver so I can not work while I am taking care of him all our bills are piling up I just can not survive without working .so could you please tell me how I can apply for financial HELP Thankyou Judy Donovan
Name: Vicia
Organization:
Email: papg@tds,net
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 2/7/2003
Time: 9:49:45 PM
Remote Name: 208.170.65.172
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 6.0; Windows 98; Win 9x 4.90)
Name: Vicia Griffith
Organization: son has tbi
Email: papg@tds,net
Home_Page:
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: No
Date: 2/7/2003
Time: 9:44:21 PM
Remote Name: 208.170.65.172
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 6.0; Windows 98; Win 9x 4.90)
Thankyou,for your site Ijust need all the help and information I can get,
Name: Sylvie
Organization:
Email: sylvietbi@aol.com
Home_Page:
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 2/4/2003
Time: 5:10:33 AM
Remote Name: 195.93.50.11
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 6.0; AOL 7.0; Windows NT 5.1)
Thank you for a wonderful visit, this site is very helpful and i am sure it has helped a lot of caregivers, i care for my son Lee who was in a car accident 1996, i try to be positive but i still grieve for the old Lee, i do not cry so much because it does not help and will never help, I make the best of the situation and i try to offer support to other caregivers like myself, i feel Lee is happy in his own way, just to see him smile is better than winning the lottery, once again thank you for the good work you all do, god bless Sylvie UK
Name: Elizabeth Stevens
Organization:
Email: sweetepy4ya@aol.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 2/2/2003
Time: 11:55:24 PM
Remote Name: 152.163.194.203
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 6.0; AOL 8.0; Windows NT 5.1; .NET CLR 1.0.3705)
Hi.My name is Elizabeth Stevens and I suffered a brain injury on March 24,2002.Although the road has been very difficult I am a typical 15 yrs old girl.I have completely recovered from my accident which included a 3 week coma and 2 month hospital stay.All of my physical disabilities have been conquered and someone who just meets me on the street would never guess.Reading all of the stories on this site have really helped since i've been feeling isolated lately.Although now I know others have gone through everything I have it doesn't really help because i haven't come across anyon who has completely recovered.I feel so isolated and would love to here from someone that can help.Thanks a bunch-Elizabeth
Name: Connie Riddick
Organization:
Email: criddick@centurytel.net
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://www.pilotorg.com
Should we contact you?: Yes
Date: 1/28/2003
Time: 8:42:28 PM
Remote Name: 209.206.203.172
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.1)
I am trying to find help for a little girl, Macy, who has a serious brain injury from a car wreck. Her grandparents are raising her and her siblings and are struggling financially because of all the costs for Macy.
Name: Cathleen Ghirardi
Organization: none
Email: ghirardi@sun.hazelwood.k12.mo.us
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 1/21/2003
Time: 5:12:16 PM
Remote Name: 204.184.47.3
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 6.0; Windows 98; SEARCHALOT IE6; Hotbar 4.1.8.0)
We have a son who sustained tramatic brain injury on November 14, 2002. We need help in finding out what resources are available to him. he needs stimulation and we would like to bring him closer to home. He is now in Springfield MO.We are in St. Louis MO
Name: Michele Murana
Organization:
Email: MESHELM@AOL.COM
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://www.biausa.org
Should we contact you?: Yes
Date: 1/14/2003
Time: 2:05:43 PM
Remote Name: 152.163.188.228
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; AOL 7.0; Windows 98; DigExt)
I have been looking at all websites about TBI I would like any and all information I can get to help my family deal with my 15 year old son who now has TBI. THANK YOU, MICHELE MURANA MESHELM@AOL.COM
Name: Hayden Kawasaki
Organization:
Email: h.kawasaki@worldnet.att.net
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 1/12/2003
Time: 2:41:31 AM
Remote Name: 12.86.37.5
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; Windows 98; Win 9x 4.90)
My fiance was injured at her workplace and had a resperatory arrest which led to acute renal failure and, due to lack of oxygen, a brain injury. What makes this so hard for her is that she was(is) a critical care nurse in ICU. She was injured in Jan. of 2002 and has improved greatly since then. She still has short term memory loss, depression, and uncontrollable bouts of rage. It is this rage that I am now losing my patience with. I tolerated all the emotional peaks and valleys, the outbursts of hateful remarks that were directed not only to myself but to my friends and family, the accusations that I tried to kill her; that I was stealing her money; that I stole her life; that she has nothing to live for; that I don't care nor love her; etc., for as long as I could but recently I have been lashing back at her verbally, in a rage, and am on the verge of calling it quits and moving on. It was, and still is, a new and foreign territory for me...and so much more for her. I know that she is not like she was, before this happened. I know what caused it and what it has done. What I needed to know is that what I am going through has been dealt with by other people and how it is dealt with. I know she has a brain injury but I also felt that, with her continued improvement, she also should have some degree of control over her bitterness. She has called my friends, people that I have known for over 25 years, and told them that I was beating her and stealing her money. Of course, this created some resentment towards her from them, which I must attribute to their lack of knowledge to the scope and depth of her injury. Mine, also, I'm afraid to admit. For I have taken it personally and yelled at her and threatened to leave, that I was fed up with her behavior and didn't deserve all the abuse being flung my way, after all that I had done for her. But upon finding this site, it has been like being lost in a strange land for so long where noone speaks your language and the hills look the same and the homes look the same and you are so weary when, all of a sudden, you round a corner and there are all your friends and family and pets and homes and hills that you do know and the relief you feel... well, it feels pretty good. Reading some of the comments left by these good people has helped. I know now that I do need to alter my thinking, that I'm not the only one that has, and still am, experiencing these emotions. Like Emily Dickinson once said,"Hope is a thing with feathers." I will not be without feathers.
Name: matt sturgis
Organization: deadhead.net
Email: jerrysturgis@arkansas.net
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://im a little confused got afew question
Should we contact you?: Yes
Date: 12/25/2002
Time: 11:43:58 PM
Remote Name: 216.152.17.57
HTTP User Agent: Mozilla/4.7 [en] (Win98; I)
shocked by some of this i had acar wreck in 93 im lucky too be alive pl
Name: chandramohan i
Organization: Tataaig life insurance company
Email: chandramohan78@yahoo.com
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://google
Should we contact you?: Yes
Date: 12/20/2002
Time: 12:04:20 AM
Remote Name: 203.196.161.125
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows 98; DigExt)
its a nice and helpful i want a help from u plz, i like to know how could i get financial aid for my sister who is PROFOUNDLY MENTALY RETARDED , could u help me plz.... with love chandra
Name: Wendy Brown
Organization: Caregiver
Email: wendll_b@hotmail.com
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 12/10/2002
Time: 4:47:28 PM
Remote Name: 65.100.231.238
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; Windows 98)
My Husband, Sean & I live in St. George, Utah with our Children Mojave 7 yrs and Maggie 8 yrs. Sean was in a motorcycle accident on Feb 17, 2002 (he was not wearing a helmit) He was life flighted to Las Vegas with a closed head TBI. He was in a coma for close to 2 months and in the hospital/care center for just over 3 months until he was released into my care. Sean has made good progress in his recovery, but we both feel very isolated from the world as we once knew it. We are searching for any information or help that would make this time easier.
Name: Darrel Watson
Organization:
Email: watd88@aol.com
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 12/4/2002
Time: 5:55:15 PM
Remote Name: 152.163.188.228
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; AOL 7.0; Windows 98)
Name: Marlene Ritzenthaler
Organization:
Email: mattandmarlene@yahoo.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://www.terrisfight.org
Should we contact you?: Yes
Date: 11/27/2002
Time: 6:23:51 PM
Remote Name: 209.84.253.110
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.1; Q312461)
Thank you for your page, my mother is in a coma, 62 years old, she went in the hospital for gallbladder surgery and developed a bleed in her head, which the hospital did nothing about for seven days...(first onset of headache)developed hydrocephalous and now is in a coma...this has just been three weeks....I am so forlorn...watching my dad struggle...I will be helping him as he is partially crippled from a car accident two years ago...thank you again...marlene
Name: Delores Seaman
Organization:
Email: deeannsea@cox.net
Home_Page: http://deeannsea.com
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 11/23/2002
Time: 8:22:41 AM
Remote Name: 68.1.118.136
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.1; Q312461; Hotbar 4.1.8.0)
I have experienced the death of my daughter Michelle due to severe brain injury. She died withing five months. The hospital gave up on her within two months. Said she would never be any better. On top of that the biggest issue was she was on Medicaid and the money ran out for her hospitalization. I was told that she was ok and ready to go home. I would be her caretaker. In ten days Michelle passed away. I beg everyone to give these people a chance so they and their families never have to go through what I did and still am....
Name: Justin Vana
Organization: CommCare
Email: justinpvana@hotmail.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: No
Date: 11/22/2002
Time: 7:38:46 PM
Remote Name: 66.148.138.250
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.01; Windows NT 5.0)
Name: Sarah Little
Organization:
Email: shag49@aol.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 11/10/2002
Time: 3:03:48 PM
Remote Name: 64.12.96.104
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 6.0; AOL 8.0; Windows NT 5.1)
Name: Kelly Hayman
Organization:
Email: haymanator@msn.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://biausa
Should we contact you?: Yes
Date: 11/4/2002
Time: 6:26:45 PM
Remote Name: 67.25.202.223
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.1; MSN 6.1; MSNbMSFT; MSNmen-us; MSNc11)
I am looking for help in colorado pertaining to assistance with finding employment.voc rehab turned me down. they wont let me see my files so other than tbi i don't know any details .in addition ssi decreased my pay to 485.00 per month because i did not inform them of a 20.00 child support payment I recieved.Anything would be an improvement.Thank you. Kelly Hayman aurora colo.
Name: Kelly Hayman
Organization:
Email: haymanator@msn.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://biausa
Should we contact you?: Yes
Date: 11/4/2002
Time: 6:23:01 PM
Remote Name: 67.25.202.223
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.1; MSN 6.1; MSNbMSFT; MSNmen-us; MSNc11)
i am looking for help in colorado pertaining to assistance with finding employment.voc rehab turned me down. they wont let me see my files so other than tbi i don't know any details.in kind of a strange way i am actually smart.in addition ssi decreased my pay to 485.00 per month because i did not inform them of a 20.00 child support payment i recieved.anything would be an improvement.thank you. Kelly Hayman aurora colo.
Name: Sharon Johnson
Organization:
Email: sjohnson23@qwest.net
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 10/29/2002
Time: 6:45:30 PM
Remote Name: 63.229.13.158
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 4.0)
Hello, My niece is in a vegetative state and I found your page while looking for information on appropriate care for her. While reading a story by Michelle's mom I saw the sentence "We have been through the grinding teeth phase - the neuro sweats - the chewing - the look of being alive but semi dead." My neice did a lot of grinding teeth, I think she still does - but I am in a different state and haven't seen her for over a month. Is this common? are there other things like this that are common? The doctor at the long term care facility want to put her on a drug to stimilate brain activity. Do you have any experience with this? We are fearful of more drug allergies or adverse reactions or just interfering with her brain's own ability to heal. If anyone has any words for us, that would be nice. I can pass this on to my sister and brother in law who stay with her most of the time. My sister doesn't have ready access to a computer at this time. Thank You, Sharon
Name: Janet Kieffer
Organization:
Email: nkjl@clover.net
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: No
Date: 10/29/2002
Time: 3:10:25 PM
Remote Name: 209.151.160.41
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 6.0; Windows 98; Win 9x 4.90; Q312461)
I am a mother who is realy missing my son today.No, he has not passed away. He is in a rehaab with catastrophic brain injury from an auto accident 7-10-98 he was 22 years old.I love my new Neal, but I sure miss the old one.Thank You for being here. Just knowing I am not alone is a good feeling. Janet mom to Neal
Name: Tracy Spracklen
Organization:
Email: rocky@brightok.net
Home_Page: http://robbyschiffernstbi
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 10/29/2002
Time: 12:13:33 PM
Remote Name: 204.249.203.33
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.1; Q312461)
I just to say what a bunch of wondefull people. It was a pleasure to come to this site and see the stories and read about you all. May God Bless You All...Hugs Tracy and Robert...TBI 5/20/00.
Name: Jon and Lisa Malmberg
Organization: Josh's parents
Email: h2oplans@aol.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: www.bianc.org
Should we contact you?: Yes
Date: 10/20/2002
Time: 6:26:53 PM
Remote Name: 205.188.209.9
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; AOL 6.0; Windows 98)
Our son,Josh,suffered a TBI on 6/29/02. He has diffuse axonal injury. He spent a month in the main hospital and 7 weeks in the rehab hospital. He came home on 9/18/02,a month ago. He was in a complete coma for 10 days. He is awake and at times seems to understand things. He does not speak yet, he can not walk or support his body. We are doing all personal,physical care at home. A home health agency has been working with him but will be cutting back on therapy (and I assume eventually stopping)if he doesn't show enough improvement. He is 23 years old without insurance-he now has Medicaid approval. We are getting very stressed out. As others on this site have said, no one understands the need for help and care. People don't understand the continuous drain on emotions and physical energy (not to mention the financial burden). I know no one can say how much a person will recover, but I wish there were facilities to do basic care so we could work with our son on therapy-type needs. By the time we do everything else we can't manage the PT and OT type of care. Please let us know of any contacts/care avenues we may have missed.
Name: nola fallis
Organization: friendshouse
Email: nfallis@friendshouse.org
Home_Page: http://friendshouse.org
How did you find us?: Followed a Link
Link_Followed: http://healthnet.com
Should we contact you?: Yes
Date: 10/16/2002
Time: 7:34:32 PM
Remote Name: 66.224.29.250
HTTP User Agent: Mozilla/4.75 [en] (Win98; U)
my grandchild a newborn on 10/11/02. suffered a brain injury at birth. Iam seeking information. the parents are very young.
Name: Ramon Philip P. Jimenez
Organization:
Email: jimenezfirst@aol.com
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 9/30/2002
Time: 9:55:13 PM
Remote Name: 24.49.249.148
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; Windows 98; Win 9x 4.90)
My family had a single vehicle accident last May 1999 which left my now 13 year old daughter in a persistent vegetative state. She is on a trache and breathes humidified air and is fed through a g-tube. My wife and I are the primary caregivers and we are proud to say that she is very healthy and has no bedsores. We believe she is aware but her motor skills are gravely affected. We would give simple commands like to move her fingers or toes and she does them but very faintly. We don't know where to go to provide her intensive rehab or therapy to move her to a higher level. We would appreciate it a lot if you will be able to provide us with information. Is Hyperbaric Oxygen Therapy okay? Thanks a lot.
Name: Missy Waller
Organization: Caregiver for my husband
Email: Enterprise777@earthlink.net
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://biaf.org
Should we contact you?: Yes
Date: 9/27/2002
Time: 10:31:09 AM
Remote Name: 199.174.240.18
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.0; .NET CLR 1.0.3705)
My husband, Kevin, was a pedestrian hit by a truck on 08/25/00. Kevin was in a coma for 22 days. He is now trying to relearn to walk and hold his balance, has much confusion and memory problems. Insurance won't pay for anymore rehab. I know with more rehab he will be able to walk again, helping him to be more independant. He is a very happy person and I don't want him to become depressed or discouraged. Are there any place out there that will help with more rehab? We live in Tampa, Florida
Name: Marie Worthen
Organization:
Email: mothermarie40@aol.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 9/18/2002
Time: 10:26:38 AM
Remote Name: 205.188.209.9
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; AOL 7.0; Windows 98; Win 9x 4.90)
I have a son,18 yrs, who suffered cardiac arrest from a heart problem in April,2002. CPR was performed right away but he still suffered severe brain damage from lack of oxygen. I am trying to find any funding that might be available for home modifications. Any information you might have would be apprecited. I live in New Hampshire. Thank you
Name: Barbara Bayne
Organization:
Email: Kebela@aol.com
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 9/18/2002
Time: 2:00:09 AM
Remote Name: 205.188.209.9
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 6.0; AOL 7.0; Windows NT 5.1; YComp 5.0.0.0)
My 18 year old son had a car accident on July 27th,2002. He has been Dx. with a TBI. He was in a coma for 3 weeks, then transported to another hospital for two more weeks. This has been a very difficult time for my whole family, but I really think it has hit me the hardest. I am the main care giver for my child of course, but sometimes I feel that I don't have the strength to go on. I sometimes feel that maybe my son would of been better left to go with God. When they found him, they told me that he was dead and they had to bring him back by shocking him. (I don't really feel that they needed to tell me that part) I get to feeling guilty that I had ever felt this feeling and when I told a close friend of my feelings, she thought I was terrible for even thinking it. My son is up walking and talking now. His voice is still not what it used to be. He has alot of pain and definately is not the same person that he was before the accident. He was in a day rehab. program until today. My insurance company has determined that he is no longer in need of this therapy. My son tends to agree due to the fact that he doesn't think that there is anything wrong with him except he knows that he hurts. His neck, shoulder, back hurts and occasionally he complains that "his heart hurts." His doctors and therapist aggree that he needs much more therapy and isn't close to being well, but can't do anything d/t the insurance company. We are now at a stand still. I hurt so much for my son, and I also fell that I am going crazy at times. I never sleep much now (and neither does he ) I don't feel that I am as productive at work and I usually sit up all night just thinking about how different my son is. I have 4 other childern that I am trying very hard to keep things as normal as possible for, but that is also very difficult. I don't know where to turn for help and my biggest problem is that everyone seems to think that James is "all better". His physical injury's are not real ovious. It is so hard to deal with people that don't understand my sons injury. I would love to be able to talk to other people that are going through or have gone through the same thing that I am, but going to support groups are not possible for me d/t the fact that the car my son was driving was mine and I no longer have a car. My insurance company has dropped me and I don't have the money to put down on another used car. I am kind of trapped at this time. The rehab. program had a van that they picked my son up in so I didn't have to worry about getting him to that. They are now telling me that James will need to at least go to an out pt. program for this therapy 3 times a week since the insurance company won't pay for his therapy there any longer. What they don't seem to understand is that I just can;t come up with 500.00 to put down on another car and my community support sysytem has failed me since they see James at home and think he is better, they think I no longer need help. People just don't understand. I am hoping that alot of folks come to this site and educate themselves about TBI. It is such a devastating injury, especially since the injury can't be oviously seen. This is a wonderful site for information on brain injury and I appreciate the time that the founders of this site have taken to put it together. Barbara Bayne Douglasville, Ga.
Name: Jenny Mead
Organization:
Email:
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: No
Date: 9/14/2002
Time: 11:02:18 AM
Remote Name: 192.168.1.1
HTTP User Agent: Mozilla/4.79 [en] (Windows NT 5.0; U)
Name: Rhonda H. Baldwin
Organization: Ila Nofziger's friend
Email: rhb113@yahoo.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 3/26/2002
Time: 9:44:41 AM
Remote Name: 64.92.77.2
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; Windows 98; Win 9x 4.90)
My prayers are with each and everyone of you. As a home health nurse I know the pain and stress that you go through. I worked with Ila's daughter Debbie and I saw what Ila had to deal with. Most of her headaches came from our great and wonderful system. Thank you for all the work that you are doing. Love to you all and may God Blees you.
Name: Teresa
Organization:
Email: brattontibbs@aol.com
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 3/19/2002
Time: 11:10:36 PM
Remote Name: 198.81.17.183
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; AOL 6.0; Windows 98; Win 9x 4.90)
My daughter, Nicole, 20, was a passenger in a car accident this past summer, July 12, 2001 and received a TBI. She was in a coma for 6 wks. in the hospital, moved to a nursing home for 4 wks and back to the hospital for inpatient rehab. She came home the very end of Sept. 2001. She has improved since that fateful day but her short term memory is very, very bad, she is very impulsive, frustrated, uninhibited in everything she says (cusses alot), she is very engrossed with past memories of her life before her TBI which was nothing to remember using drugs, hanging out, not doing anything with her life. Now, she has no friends, she is at home with family almost 24/7. I am very frustrated and feel like I'm ready to go nuts, I have taken her to every possible resource around our area, we've been to voc rehab - they say to wait a year she is not ready yet, we've tried to volunteer at an animal shelter - but her fatigue is such that we can't commit to 6 months, we've seen a neuro-psyc. who has given us some good resources but she feels Nicole needs more intensive treatment in a day program where she would go daily away from home, the only one there is is not covered by medicaid. There seem to be so many people with brain injuries and there are no real good resources for them. I feel like my daughter is falling through the cracks and I don't know how to help her. I worry that she will be living at home with us forever and will miss out on having her own life, with husband, home & children. I do believe she is very capable of this a ways down the road but feel we need something in between. I just feel like I'm at my wits end, it is really hard to have a life of your own, even use the bathroom without my name being called. I am grateful to God for letting her live and don't mean to complain & vent, I just don't know how to handle things anymore. Thanks for listening.
Name: Beverly Lord
Organization:
Email: blord@gracehill.com
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 3/12/2002
Time: 9:29:47 PM
Remote Name: 209.214.177.115
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows 98; DigExt)
My family was in a car accident February 22, 1985. My then 6 year old daughter suffered a severe traumatic brain injury. She is now 22. She is considered by the medical community as non-verbal (but she's pretty good at letting me know what she wants and especially what she doesn't want). I am the primary care-giver. There is so much more information available now than 17 years ago and still not nearly enough. Georgia has so far to go. Our schools are the pits and just when I thought it could be no worse than special ed we entered into the adult world of "disabilities" where non-verbal still equates to unintelligent. My hats off to you folks for this positive site.Please let me know how I can help. Beverly Lord (Donna's mom)
Name: Paige A. Eoff
Organization:
Email: paige_eoff@hotmail.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://www.home.tbinet.org
Should we contact you?: Yes
Date: 3/6/2002
Time: 1:11:47 AM
Remote Name: 216.104.75.237
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows 98; DigExt)
My life changed six months ago. My boyfriend of three years fell skateboarding. He was 28, now 29. I am 27. Feeling 50. We are truley blessed by God and many wonderful people. I have put my life on hold, preety much, to take care of him. I'm told that I am doing it well, but I usually feel like a fledgling: Just flapping my wings to stay in the air. Mainly, I want to hear/have stories and support from others whom might relate. In reciprocation, of course. Be well!
Name:
Organization:
Email: rqa7@hotmail.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 3/3/2002
Time: 1:52:57 PM
Remote Name: 204.49.171.32
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows 98; DigExt)
please help, searching for a family friend whose mother is at a stage 2-rancho coma (four weeks out). having trouble with the insurance who is pressuring to find a facility. she can not find a facility much less one that will do therapy (coma stimulation therapy). she is scared that the hospital will kick her out if the insurance stops paying and the insurance says that they will only pay for two weeks at a skilled nursing facility after leaving the hospital. needless to say she is a basket case. we are also looking for national grants or university studies that she could possibly get her mom in. any direction would be greatly appreciated. thanks, t. quintin
Name: Ruth Fell
Organization: home based knitting and computer work
Email: rfell@stny.rr.com
Home_Page: http://hometown.aol.com/
How did you find us?: Search Engine
Link_Followed: http://Brain Injury Support Group NYS
Should we contact you?: Yes
Date: 2/28/2002
Time: 3:05:08 AM
Remote Name: 66.67.21.170
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.1)
I had Encephalitis at 2 1/2 years of age and I am now 76. My parents did not have any help of any support group or anyone to turn to who could explain more about an awareness of Encephalitis and residual effects. I am estranged from my brother and would like very much to start a new relationship with him. I would need help to have someone explain to him that I have a doctor who is treating me and giving me medication for hypertension. I do have a great deal of anxiety and I have medication for that which helps and I am taking calcium which I need as I was not getting enough calcium. For relaxation I drink sleepy time tea and I do art therapy in several programs on my computer and doing art work in them. I use a digital camera and because of my IQ I am not eligible for a Service Coordinator as my IQ is too high. My parents believed the doctors when they told them I would not be able to learn things. With the things I do on the Computer areas in my brain which were not damaged are working to take over what was damaged and I am able to learn and have been told I am a very good advocate for myself.
Name: Colleen Popp
Organization:
Email: colleenpopp@charter.net
Home_Page:
How did you find us?: Followed a Link
Link_Followed: http://search.yahoo.com/bin/search?p=brain+injury
Should we contact you?: Yes
Date: 2/26/2002
Time: 1:51:01 PM
Remote Name: 24.159.126.220
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 6.0; Windows 98; Q312461)
On 12/26/01 while standing at work cutting hair (she's a barber) my sister (45 yrs. at that time) suddenly out of the blue grabbed her head and made the comment she had a headache like she's never had in her life ever. Just that quick. No warning. She suffered a Cerebullar Hemorrhage. She nearly died. I am interested in learning about brain injury so that I can help my sister. I live 2 1/2 hours away from her which makes it somewhat difficult. She is home in her apartment now. I wish there was a way to communicate with her by computer, but she doesn't have one so phone calls and post office mail will have to do. This web site is one of the most informative web sites I've seen since my journey began learning about brain injury. I have learned so much just by reading the information of the injury and also what to expect by reading the stories of others who are caregivers. And of course the information from those who have had the brain injury. I am truly thankful of the eagerness and generosity people are so willing to give to one another. I only hope that I can lend a helping to someone some day from what I learn about brain injury. Sincerely, Colleen Popp
Name: Hollybeth Kulick
Organization:
Email: Hollybeth@peoplepc.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http:// Brain Injury
Should we contact you?: Yes
Date: 2/23/2002
Time: 9:37:39 PM
Remote Name: 209.244.77.243
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 6.0; Windows 98; Win 9x 4.90)
I was in an iatrogenic coma and I was sent home with no therapy plan. I am trying to find out where do I go to get help for my praxis condition which seems to be related to uncontrollable hypoxia when I have an asthma attack now. One day I can do dishes and then after a hypoxic attack I can't even tell you how to do dishes. Does anyone have this too?
Name: Marie Griswold
Organization:
Email: ml_hummingbird@hotmail.com
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 1/30/2002
Time: 7:59:38 AM
Remote Name: 192.216.240.27
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; Windows 98; Win 9x
4.90; IE5.x/Winxx/EZN/xx)
My 45 year old son had a brain aneurysm burst and has left him with brain damage, short term memory loss, all kinds of loss, he is Baylor for rehab now ,they recommend to the family to put him into a group home That is completly out of the question, as far as his wife is concerned, also me as his Mother. we need more positive feed back from his Doctor and we are not getting it. Pure Frustation. His problem started on 12/27/01 I know we have a long way ahead of us. how do we get help, when his insurance runs out.??
Name: Mary Lou Coppinger
Organization: self
Email: mlcbcopp@bcpl.net
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 1/29/2002
Time: 11:50:02 PM
Remote Name: 208.242.126.97
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; Windows 98; Win 9x
4.90)
I read the list starting with Most BRAIN INJURY---- and so agree. I have a son who was injured 15 years ago and it has been a long and lonely fight trying to get the services he needs. As you can see by this note, I am still searching. Mary Lou Coppinger
Name: Kelly Kittleson
Organization: wife of tbi survivor
Email: rkmandm@lakes.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://dogpile
Should we contact you?: Yes
Date: 1/24/2002
Time: 3:10:46 PM
Remote Name: 216.161.97.161
HTTP User Agent: Mozilla/4.08 [en] (WinNT; U ;Nav)
I am the wife of a tbi survivor. We also have a 9 yr. old daughter with physical and learning disabilities. I am looking for someone has 'been there' and have dealt with losing the husband of 'before' has learned to love the 'new' husband. We are Christian and I'd love to find a Christian support system. Thank you.
Name: Sharon LaCombe
Organization: Catawba Valley Brain Injury Assoc.
Email: clearlyme@juno.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 1/20/2002
Time: 6:23:31 PM
Remote Name: 63.16.26.227
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows 98; DigExt)
I have a son with a BI that sustained in 7/98. He is now 23 and we have run into some brick walls with VR and case managers. We will be looking at a structured living facility this week. There is a possibility that he could be moved there by the first week of February.This will be good for the whole family because the stress levels are reaching a max. I know all who will read this will understand.But, there is many mixed feelings in this situation. As I write this, I am feeling sad. I only hope that our difficulties and solutions to those difficulties will be of benefit to someone else.
Thanks for the space to write, Sharon.
Name: Doyle Hayes
Organization:
Email: mdhayes18@aol.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 1/19/2002
Time: 8:15:47 PM
Remote Name: 205.188.198.173
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; MSN 2.6; AOL 7.0;
Windows 98; DigExt)
Name: Bonnie Perry
Organization:
Email: pperry@maxiis.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://www.home.tbinet.org/raf/
Should we contact you?: Yes
Date: 1/8/2002
Time: 11:34:25 PM
Remote Name: 12.2.232.56
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; Windows 98)
Our daughter, at the age of eighteen, suffered a traumatic brain injury as the result of domestic violence. Her fiance, at the time, struck her several times along side the left side of her head; causing a veinal bleed. Two weeks later she collapsed from a massive blood clot, then suffered two major strokes. She underwent brain surgery to remove the clot, but the damage from the strokes remain. It has been one year post trauma and she is still suffering the effects of the brain injury. At the time of her injury she was four months pregnant. While in the hospital in re-hab she gave birth to a beautiful baby girl, who is perfect in every way. Where do we turn for advice and support when it comes to finding therapy and training for a young person with such injury? She has limited physical handicaps since she can walk. The Dr's prognosis was that she would be totally paralyzed on her right side. Her balance is off at times and she falls often. Her gait can be uneven especially when she tires. Since she is ambulatory without the use of a wheel chair or walker she is not viewed as physically handicapped. She has a visual field defeciet, which she can usually overcome, that does cause her some problem when she walks down the stairs. She has long term and short term memory loss and impulsivity. There-hab center she is at now is planning her discharge ina month stating she can be self suffecient for eight hours. The only way I could leave her alone for eight hours would be if I put a tracker on her to find her when I came home. When she is at home there is enough memory recall to be framiliar with her surroundings, but not enough to remember how to get where she wants to go. Are there training programs or help with schooling in the Central Illinois area for someone with her type of injury? I will be anxiously waiting for help from anyone in this area? Thank you in advance for any information you can pass on. Sincerely, Bonnie
Name: Ann Wayland
Organization:
Email: away41@AOL.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: No
Date: 1/7/2002
Time: 7:14:04 AM
Remote Name: 205.188.200.191
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; AOL 7.0; Windows 98)
Name: Rachel Ansert
Organization: personal brain injury survivor
Email: Rachansert@AOL.COM
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 1/6/2002
Time: 9:47:52 AM
Remote Name: 205.188.192.162
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; AOL 5.0; Windows 98;
Win 9x 4.90)
I would like to hear any new news regarding brain injury.
Name: Melodi Westfall
Organization:
Email: iistarbuckii@aol.com
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 1/4/2002
Time: 5:59:56 AM
Remote Name: 205.188.197.24
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; AOL 6.0; Windows 98;
DigExt; Hotbar 2.0)
I'm just searching for info to help my 16 yr old son. He is in what is categorized as a vegitative state resulting from lack of oxygen for an extended period of time. I am taking care of him at home, and any info you can forward would be greatly appreciated. He has been in this state since Oct 2001. Thanks!
Name: susie burton
Organization: caregiver
Email: sus_q_4@hotmail.com
Home_Page: http://www.msnexplorer
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 1/3/2002
Time: 11:13:31 PM
Remote Name: 66.19.85.92
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; MSNIA; Windows 98;
Win 9x 4.90; MSNIA; MSN 6.1; MSNbMSFT; MSNmen-us; MSNc21)
I am the full time caregiver of a TBI survivor. He was in a motorcyccle accident 8-29-99. They said he would never live,but he did. His entire face was crushed from hitting a curb at 60 mph, they didn't repair it for five days. Then they said he would never wake up but he did 70 days later. His jaws were wired together his arms were frozen up and his feet were pulling down at the toes. They botoxed his arms and cast them over and over again they finally came down the left one first and he is right handedof course. he can now walk with very little help and refuses a wheelchair. they said he would never eat normally and gave him a g tube, now he eats everything he wants to. nowthey say he will never speak but he says he will and we believe him. We feel so blessed to have a son this strong and are so proud to be his parents. He had already been in the army for 4 years and spent 9 months in Bosnia. He is now 28 years old and is the sunshine of our life. Proud to be Jays Mom
Name: susie burton
Organization: caregiver
Email: sus_q_4@hotmail.com
Home_Page: http://www.msnexplorer
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 1/3/2002
Time: 11:11:09 PM
Remote Name: 66.19.85.92
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; MSNIA; Windows 98;
Win 9x 4.90; MSNIA; MSN 6.1; MSNbMSFT; MSNmen-us; MSNc21)
I am the full time caregiver of a TBI survivor. He was in a motorcyccle accident 8-29-99. They said he would never live,but he did. His entire face was crushed from hitting a curb at 60 mph, they didn't repair it for five days. Then they said he would never wake up but he did 70 days later. His jaws were wired together his arms were frozen up and his feet were pulling down at the toes. They botoxed his arms and cast them over and over again they finally came down the left one first and he is right handedof course. he can now walk with very little help and refuses a wheelchair. they said he would never eat normally and gave him a g tube, now he eats everything he wants to. nowthey say he will never speak but he says he will and we believe him. We feel so blessed to have a son this strong and are so proud to be his parents. He had already been in the army for 4 years and spent 9 months in Bosnia. He is now 28 years old and is the sunshine of our life. Proud to be Jays Mom
Name: Sandra Waltrip
Organization: Texas Dept. of Human Services
Email: sandra.waltrip@draco.dhs.tx.st.us
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 1/3/2002
Time: 7:41:09 PM
Remote Name: 129.109.166.146
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows 98; DigExt)
Hi Joan,
Just giving some information to a client whose daughter is going home today. She was thrown from a four wheeler in November. She is not going home like she was when she got on that four wheeler and the family stated that nothing will be the same again. But they are all closer and they are all being strong. I printed all this and hope that she can get something from it.
Hope Eddie gets up to see Michelle in the next couple of days. Tell her I am sorry I couldn't make it.
Love, Sandy
Name: kathy loch
Organization:
Email: kaploch@webtv.net
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://www.waiting.com
Should we contact you?: Yes
Date: 1/2/2002
Time: 11:35:45 AM
Remote Name: 205.238.237.59
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows 98; DigExt)
Name: SUSAN BUNN
Organization:
Email: SUE_BUNN@MORTGAGE.GE.COM
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://WWW.HOME.TBINET.ORG
Should we contact you?: Yes
Date: 12/27/2001
Time: 4:23:26 PM
Remote Name: 205.173.95.38
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; Windows NT 4.0)
I see lots of brain injury stories butthe injury is always as a result of an accident. Is there anyone else out there taking care of an anoxic brain injury from a heart attack? My husband was only 49 when it happened 2 years ago and I am his primary cargiver. We would not let him go to a nursing home. He has an aide during the day while I work but the money for that is running out. I'm praying and checking for possible solutions. We have been cared for and helped by many "angels" over the past two years so I am not afraid. But is there anyone else out there dealing with a similar situation?
Name: carol
Organization:
Email: petuniaOO@aol.com
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 12/26/2001
Time: 9:00:00 PM
Remote Name: 204.233.121.94
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; Windows 98; Win 9x
4.90)
!I began to read the letters written and it brought tears to my eyes, I has a traumatic brain injury when I was 6 years old , I am now 35, Reading all that I have I can only imagine what my mother and grandparents went through, I was in a coma for 6 months and the doctors told my mother that I would never walk again and be a vegetable as well... I remember waking up in the hospital with a board of needles in my arm about 12 inches...at that moment my mother went running for a nurse yelling "she's awake, she woke up".I was in a body cast for one year, I had to learn how to walk again....but there's one thing....my mother and grandparents, the entire family....prayed diligently, constant, never ceasing....they came to see me everyday in the hospital...especially my grandparents, they were there every single day from the time visiting hours started and ended...Nan and Pop....Oh how I love my grandparents....as much as my mom !!!! and when I came home......walking was a struggle to say the least but with the help of family I overcame the trial.....they continued to pray and still do.... because of their endless efforts and prayer and love, I have accomplished much ! swam for time trials in the Olympics, played basketball, football with my brothers,helped mentally challanged indivuals, sang and danced walked miles upon miles for my parents wouldn't allow me to own a car till I was 18 loll, graduated with honors for an prestigious college.....and now...I have gone through a divorce successfully, I have two BIG boys of my own, teen agers whom are extreem athletes.. What I want to tell you is, NEVER GIVE UP HOPE, PRAY RELENTLESSLY AND BELIEVE!! THE POWER OF PRAYER IS AMAZING!! I AM PROOF, BELIEVE!!BELIEVE!!NEVER STOP...There is something we all need to think about, I know the hurt and pain along with heart ache that is involved, i have felt and witnessed it ....but i firmly believe God will never give us more than we can handle.
Name: Gloria Dawson
Organization:
Email: beegee1958@aol.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 12/20/2001
Time: 8:26:52 AM
Remote Name: 152.163.207.62
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; AOL 7.0; Windows 98;
T312461)
I'm the caregiver of my now 23 year old son, Joe. He received his TBI Aug 1995 while a passenger in a vehicle which was hit by a drunk driver (no license) who ran a red light. Joe was 17 at the time. Two years ago Joe's anger got to the point that we could no longer care for him (we are older parents) and we had to put him in a rehab group home, where he continues to live. He is not happy there, although we feel they give him good care, he wants to be at home. His anger is better, but when at home he would refuse most of the time, to go to therapy just wanted to sit and watch tv. He also doesn't do as much for himself as he does at the home, and we are under constant stress when he's here. We're afraid to bring him home because we know he would do the same, and start to backslide. He does come home for weekends and Holidays. I carry guilt when we take him back since I know he wants to come home so badly, but know in my head,that where he is is the best thing for him. But sometimes hard to convince my heart! At least at the home he does go to the center for rehab 5 days a week and even though he is physically challanged, he is doing better than he was at home. But, still as a mom, the guilt lives on! Thank you for listening to me. Gloria
Name: Shelly McLaughlin
Organization: The Council on Quality and Leadership
Email: slhcouncil@aol.com
Home_Page: http://www.thecouncil.org
How did you find us?: Followed a Link
Link_Followed: http://www.thecouncil.org/council/resources.htm
Should we contact you?: Yes
Date: 12/18/2001
Time: 4:44:57 PM
Remote Name: 216.32.85.60
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows 98; DigExt)
Your link has been added to our web site!
We are writing to let you know that your site has been added as a Helpful Link and Resource to our web site, www.thecouncil.org. Your link can be found on http://www.thecouncil.org/council/resources.htm.
The Council on Quality and Leadership is an international non-profit organization dedicated to advancing the quality of services and supports to people with disabilities. This is accomplished through its accreditation services, training programs, and research division.
We would ask that you post a link to www.thecouncil.org from your web site under the category Non-Profit Organizations. I can provide you with a logo for our link if you prefer.
Please contact me if you would be interested in participating in an exchange of articles and conference information for use in your newsletters or web site.
Name: Joan Cadreau-Goll
Organization:
Email: jcadreau@umich.edu
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://tbi.com ??
Should we contact you?: Yes
Date: 11/28/2001
Time: 1:33:02 PM
Remote Name: 141.214.32.118
HTTP User Agent: Mozilla/4.73 [en] (Win95; I)
I found your link through one of our post's in the tbi chat room. My husbans was injured in an accidental overdose of heroin and cocaine. He was not my husband at the time, just a recent new boyfriend, though I knew nothing of his addiction then. I fell in love with him and 6 mo nths later this. I stayed by him, his months' in a nursing home, his rehabilitation and now his recovery, which is on going. I am always looking for information and support regarding the brain injured. Any new things I would appreciate. Thanks Joan
Name: Lorie
Organization:
Email:
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: No
Date: 11/28/2001
Time: 3:05:43 AM
Remote Name: 63.14.212.223
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; Windows 98)
Name: Maria Chevallier
Organization:
Email: bettyann@bayou.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 11/25/2001
Time: 3:39:28 AM
Remote Name: 209.209.199.1
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; Windows 98)
I was in a car accident in 1998. Still suffering from injuries. Was not given proper medical care at the time of accident. Within weeks after accident I returned to work and noticed that I lost all memory of the job that I had once trained the people I was working with. I took a few weeks off and started back for a few months. I noticed that I didn't know some people. Within in 6 months of the accident I started having small seizures and stopped working completely. I have been out of work since and have had trouble with seisures now even more than then. I get dizzy and ear ringing. Sometimes turn my head and black out. Still doctors say nothing else. Is there anyone else that can at least tell me that time will help and for me to stop pushing myself.
Name: Brenda
Organization:
Email:
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 11/17/2001
Time: 1:19:30 AM
Remote Name: 24.5.60.253
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.01; Windows NT 5.0)
Name: Barbara Porter
Organization: Central Coast Head Injury Support Program
Email: BarbSlo@aol.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 10/17/01
Time: 6:56:56 PM
Remote Name: 205.188.197.164
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; AOL 6.0; Windows 98; Win 9x
4.90)
Regarding contacting me, your pleasure.
Name: Wanda Altom
Organization:
Email: your1consultant@aol.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://tbinet
Should we contact you?: Yes
Date: 10/14/01
Time: 8:44:48 PM
Remote Name: 205.188.196.48
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; AOL 5.0; Windows 98; DigExt;
AT&T CSM 6)
Brother, Ronny, injured on 7/7/01,MVA as a pedestrian, dragged over 90 ft. Driver not sited. No insurance. Age 40. Divorced. Father of 2 small children. They live with their mother. My brother is now in a nursing home. Mom would like to bring him home. She is needing help in adjusting the home...doors, ramps, bathroom facilities and with nursing care. She is the primary care giver. Has taken FMLA, has exhausted all personal days and vacation days. Step-father unemployed since April. He is needing a back surgery. Has post-poned it due to helping with my brother. I have been trying to locate information via internet. She doesn't have a computer. I live 325 miles away. Ronny now on Medicaid. Awaiting SSI/SSD. No savings or assets. Please advise of non-profit organizations that may assist in these areas. Medicaid has a program in AR to assist, but there are conflicts on how to go about applying. The local office doesn't know how to go about it. The state office says to go through the local office. Please, if anyone has been there...empower us with information and education so that his needs will be met. We also want rehabilitation for him. This is limited. He is getting some. Thanks ever so much!
Name: Mary Ann Perez
Organization: Resources for Living
Email: PerezM@rfl.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://www.biatx.org/
Should we contact you?: No
Date: 10/12/01
Time: 11:26:25 AM
Remote Name: 12.144.198.100
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.0)
Very helpful, thank you!
Name: Rosa Jones
Organization:
Email: jones4699@yahoo.com
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 10/8/01
Time: 1:39:34 PM
Remote Name: 63.24.99.4
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; Windows 98; Win 9x 4.90)
Hi,My name is Rosa Jones and I have a son name Vincent, that was hit by a car in 1984.As I was reading the differnt stories my mine took me back to that time.I felt all alone then and still feel at times the same.Because thier is no one to talk to but God.I am not saiding that God is not caring because He is.But sometimes you need to talk to someone that are going through the same thing.And I am glade that I found this site.I injoyed reading the stories.Thanks Rosa
Name: Marlene & Doyle Hayes
Organization:
Email: mdhayes18@aol.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 10/1/01
Time: 7:21:44 PM
Remote Name: 152.163.194.198
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; MSN 2.6; AOL 6.0; Windows 98;
DigExt)
Our prayers are with you all as you struggle to get help and or answers for your brain injured relatives. God Bless.
Name: Pat Benfield
Organization: Benfield & Podger Associates
Email: benpod@email.msn.com
Home_Page: BrainInjurySpecialists.co
How did you find us?: Followed a Link
Link_Followed: http://bianc.org
Should we contact you?: Yes
Date: 9/28/01
Time: 3:28:59 PM
Remote Name: 63.16.26.250
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; MSNIA; Windows 98; DigExt)
We've started a support group in the Catawba Co. area and find that we have a very diversified group. However, there appears to be a great need for family and caregivers. We'd be interested in using you as a resource, however, we'd like to know more about you.
Pat
Name: Terral Thomas
Organization: none
Email: tlynn1951@aol.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 9/26/01
Time: 10:03:27 PM
Remote Name: 152.163.194.182
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; AOL 6.0; Windows 98)
My husband has Trumatic Brain Injury and I was looking for help getting through. Thank you for the wonderful stories of hope. I was so low that I did'nt know where to turn. Your stories helped me to know that I can do this. One minute at a time until its one hour and than one day. Thank you agian and keep me in your prayers as this road is long.
Name: Anitra Savoie
Organization: individual
Email: savoie10@home.come
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 9/26/01
Time: 9:03:10 AM
Remote Name: 24.21.224.35
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows 98; DigExt)
We are just out of our minds with questions. The problem is that we're not sure what questions to ask next. It seems as though the Drs. have given up on my brother before even rehabilitation has begun. He still has ear problems, dizziness, vomiting and has some trouble with his left eye(blurred or double vision). He is also a bit unstable on his feet and makes up these untrue stories. He knows who we are and even makes some sense. I know he's in there somewhwere, I'm just not sure how to get him back. I'm searching for help. We don't know what to do next. I think the insurance is giving the Drs. a hard time. It's been almost 2 months in the hospital. Help!
Name:
Organization:
Email:
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: No
Date: 9/26/01
Time: 9:02:21 AM
Remote Name: 24.21.224.35
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows 98; DigExt)
We are just out of our minds with questions. The problem is that we're not sure what questions to ask next. It seems as though the Drs. have given up on my brother before even rehabilitation has begun. He still has ear problems, dizziness, vomiting and has some trouble with his left eye(blurred or double vision). He is also a bit unstable on his feet and makes up these untrue stories. He knows who we are and even makes some sense. I know he's in there somewhwere, I'm just not sure how to get him back. I'm searching for help. We don't know what to do next. I think the insurance is giving the Drs. a hard time. It's been almost 2 months in the hospital. Help!
Name: Anitra Savoie
Organization: individual
Email: savoie10@home.come
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 9/26/01
Time: 8:52:51 AM
Remote Name: 24.21.224.35
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows 98; DigExt)
Name: Connie Ashmore
Organization:
Email: mdashmore@huntel.net
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 9/23/01
Time: 1:49:40 PM
Remote Name: 209.74.224.83
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.01; Windows 98)
Name: Jamie Little Bullock
Organization:
Email: waterside@clis.com
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 9/17/01
Time: 12:46:03 AM
Remote Name: 208.33.69.170
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; Windows 98; IE5.x/Winxx/EZN/xx)
I was involved in a motorcycle accident on 06-09-2001. Although suffering from many injuries, as well as a TBI, I am feeling and doing well.
Name: Fred Hebel
Organization:
Email: hebelfl@aol.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 9/15/01
Time: 11:20:34 PM
Remote Name: 64.12.105.159
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; MSN 2.6; AOL 6.0; Windows 98;
DigExt)
I spoke to Ila Nofziger and she told me about this webpage and I also saw the address on a little RAF flyer.
Name: Joshlyn Turner
Organization:
Email: javamamma73@hotmail.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://www.comarecovery.org
Should we contact you?: Yes
Date: 9/14/01
Time: 2:55:36 PM
Remote Name: 216.78.13.174
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; Windows 98; Win 9x 4.90)
Hi, my name is Joshlyn, and I'm a caregiver to my step-son following a car accident he had in March of this year. He was in a coma for ten days. He stayed in the hospital for three months. At first he stayed with his mother, but he didn't like it there. so, he's been here for over a month now. This situation is so very stressful, he was lazy before the accident, but now it's worse. I don't know if it's part of the injury or what. you have got to constantly tell him to get up, brush his teeth,etc. the basic things. He wants to sleep constantly. And his eating habits are awful, he wants nothing but junk food. Is this common things that happen, I desperately need to know. My patience is wearing thin. The hospital has stopped his therapy for awhile, I dont' know if it's because of the money situation or because he's just not showing enough self help. He had no insurance, and the bills are unsurmountable. He was married, but not with his wife, but she is ultimatley responsible. I feel for her. She's been trying for months to get his dissability. Nothing so far. I've tried to get on chat lines, to talk to others in our situation,but couldn't find anything. Please help me. I am so desperate and mentally exhausted. The whole family is just getting disgusted. Any way you can help us, please do. Thank YOu, Joshlyn Turner
Name:
Organization:
Email:
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 9/14/01
Time: 2:51:33 PM
Remote Name: 172.180.86.82
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; Windows 98; Win 9x 4.90)
I found your site while searching for information on BI I have a 13 yr old son with BI'S ande looking for any information that can help him or me in the recovery process.
Name: Eileen Ricci
Organization:
Email: jetexpress2k@yahoo.com
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 9/14/01
Time: 2:49:25 PM
Remote Name: 172.180.86.82
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; Windows 98; Win 9x 4.90)
Name: doyle r. lemaster
Organization: alabama Head Injury Foundation - survivor
Email: poetdl@hotmail.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 8/26/01
Time: 11:38:33 PM
Remote Name: 216.180.81.167
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; Windows 95)
Have done extensive work with disabaled. Run several statewide political campaigns for others, hold a low degree, run support groups for head injuried. I was born with several palsey and am now confined to wheelchair due to auto accident, taught special ed for 14 years, am a successful author and now retired. Am a head injuried survivor, have 2 children with head injuries and wife is suffering from dementia. She is only 48.
Doyle R. Lemaster
Name: Robin Roberts Rich
Organization: Professional AD/HD Coach
Email: AL1ADHDCOACH@aol.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 8/23/01
Time: 5:22:10 PM
Remote Name: 64.12.103.154
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; AOL 5.0; Windows 98; DigExt)
I would like to be able to speak to someone about my daughter and her brain injury. I am at the ends of my rope. I do not know who to turn to for resources, advise, legal advise and all we as a family are going through. Please call me day 251-342-6443 or evening 251-634-4469. I will be anxiously awaiting. P.S. On 8/31/2001 I her IEP meeting will be held. If someone can possibly call before then it would help out alot. Thank you. God Answers Prayers Robin Roberts Rich/Danielle's mom
Name: John Pino
Organization: Office of Rural Health Policy
Email: jpino@hrsa.gov
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 8/20/01
Time: 10:13:07 AM
Remote Name: 158.72.69.124
HTTP User Agent: Mozilla/4.6 [en] (Win98; U)
John Pino 914 Clintwood Dr. Silver Spring, MD. 20902 Home(301)649-1188
John Pino Office of Rural Health Policy 7:30AM to6:PM Mon.thru Thursday 5600 Fishers Lane, Room 9A-55 Rockville MD. 20857 Office(301)443-7650
Please Reply sothat I may be ashured you have received E-mail.
Name: Janice Poindexter
Organization:
Email: Janice.Poindexter@chase.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://wwwbia.tx.org
Should we contact you?: Yes
Date: 8/17/01
Time: 1:26:33 PM
Remote Name: 208.142.193.5
HTTP User Agent: Mozilla/4.5 [en]C-CCK-MCD CBT-IST COMM 4.5 (WinNT; U)
Our entire family lives have changed since my son's Steve accident 12/11/99. From his grandmother thru his youngest cousin, our lives have changed. The thing I find amazing is how little support and help is available for people with TBI. I feel lost alot of times, trying to do what I think is right for Steve. I plan to investigate this site more.
Name: Luciana Mitzkun Cramer
Organization: Jodi House
Email: Luciana@jodihouse.org
Home_Page: http://www.jodihouse.org
How did you find us?: Followed a Link
Link_Followed: http://www.jodihouse.org
Should we contact you?: No
Date: 8/15/01
Time: 9:25:13 PM
Remote Name: 24.177.247.219
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.01; Windows 98)
Jodi House is a non-profit organization providing services for adults with acquired brain injuries in Santa Barbara, CA. We now have a website , www.jodihouse.org, and we would appreciate you putting a link to our site within yours. We hope that the exposure we get on the internet will allow us to extend our services to helping more people on the California central coast. We already have a link to you excellent website within ours. Thank you for all the good work you've been doing. Your site is surely a great source of information and inspiration. Best regards, Luciana Mitzkun Cramer Jodi House Program Director
Name: Cheryl Botbyl
Organization:
Email: Botbyl3@home.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 8/14/01
Time: 11:39:54 AM
Remote Name: 24.4.252.146
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; Windows 98; Win 9x 4.90;
AtHome0200; Hotbar 2.0)
Name: DEBBIE G. MARTIN
Organization:
Email: DMARTIN1FLWOVR@AOL.COM
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://WWW.HOME.TBINET.ORG
Should we contact you?: Yes
Date: 8/14/01
Time: 2:49:44 AM
Remote Name: 152.163.206.199
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; AOL 6.0; Windows 98; DigExt)
Name: Sherri Reynolds
Organization:
Email: sreyns@nc.prestige.net
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 8/13/01
Time: 5:07:43 PM
Remote Name: 65.196.163.48
HTTP User Agent: Mozilla/4.77 [en] (Win98; U)
We enjoyed meeting you all (Debbie and family) at church. What you are doing through your site is wonderful.
Name: cindy cokl
Organization:
Email: abramscokl@aol.com
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: No
Date: 8/9/01
Time: 4:55:38 PM
Remote Name: 206.21.214.100
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.01; Windows NT 5.0)
Name: Joanne Wiechert
Organization:
Email: brujowiech@aol.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: No
Date: 8/9/01
Time: 1:59:45 PM
Remote Name: 63.29.131.200
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; Windows 98; Win 9x 4.90; MSN
6.1; MSNbDELL; MSNmen-us; MSNcIA)
Our daughter had an AVM three weeks ago this past Tuesday, July 17. She is recovering miraculously and we are leaving Emmanuel Rehab in Portland tomorrow, Aug. 10th. She has sight difficulties which they hope will diminish, but may be correctable by surgery if necessary, was paralyzed on her left side but now only has slight weakness, and we are so thankful to God for his healing hands. Our daughter is 11 years old.
Name: Regina D. Koons
Organization: none - just a friend
Email:
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 8/6/01
Time: 4:06:45 PM
Remote Name: 63.168.58.108
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows 98; DigExt)
Finally - I have visited your website. You all are doing an awesome job! God is surely blessing you.
Name: Ruby
Organization: Caregiver/Mom
Email: RubyPurpleLady@AOL.com
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 8/5/01
Time: 6:35:10 PM
Remote Name: 152.163.204.199
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; AOL 5.0; Windows 98; DigExt)
Have been a caregiver now for almost 5 years for my son Rob now 28 who had a MVA 11-18-96. Have been having a bad few weeks - just tired- I am a single parent- and have no help in his care but God has given me strength- I asked God to send me someone to talk to that would under- stand- I accidentially found this site. After reading several of the stories I just wanted to cry. Some of you have it worse than I and some have it better. I wish I could put my arms around all of you and give you a hug that I need myself very much. Like many of you I worry about tomorrow and what will happen to my son if something happens to me. Friends and family disappear as you probably know. No one really understands. I go to support group meetings but our group has speakers that come and not enough time to vent or share feelings. I feel I need to do something to get more services for TBI but then feel guilty about taking the time away from Rob. I like most of you am finanically strapped and have a hard time meeting ends. Have no life to speak of other than Rob's care ( try to do therapy with him and am trying to teach him to walk- He always wants to go somewhere but cannot understand the money part- He Has Short term memory loss and I repeat myself a lot. He is also on medication for seizures and spaciticity. But he has come along way back after eight months in hospital where I lived with him. Some day will write a book- He is my only child and is my life . Would like to hear from anyone who would like to just say I want to scream too, then smile and keep going. Thanks for the ear or eyes as the case may be. God Bless you all
Name: Amy Feasel, RN BSN
Organization: Aldridge Rehab Center
Email: abfeasel@nhcs.org
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://www.neuroskills.com
Should we contact you?: No
Date: 7/31/01
Time: 2:23:10 PM
Remote Name: 199.72.63.206
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; Windows NT)
Name: Debbie
Organization:
Email: litle_deb_2000@yahoo.com
Home_Page: http://www.debs-jag.com
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 7/30/01
Time: 11:09:15 AM
Remote Name: 12.3.241.254
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; Windows NT 5.0)
Very nice site and I read your guestbook. so many sad stories. It was so heart touching. Wish I could help every one..... Keep the sight going I can see you are doing alot of good with it!!!!
Name: Maggie
Organization:
Email: johnsdiddy@msn.com
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 7/27/01
Time: 1:15:20 PM
Remote Name: 63.227.96.164
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; Windows 98; Win 9x 4.90; MSN
6.1; MSNbMSFT; MSNmen-us; MSNcIA)
I'm the spouse of a male closed head injury,he was injured on 12-27-98. When taken to the E.R. after being hit in the head with a steal door, he was unsure if he had L.O.C. and with out scalp damage was examined and released. Three days later, taken back to E.R. with what I thought might be seisure activity, finally a C.T.scan was done. This revealled a right occipital fracture, and again sent home! Since then I have fought to get him help at a local rehab. However when Labor and Industries closed his case all medical, emotional help ceased. I knew the moment that I saw him on the day he was injured, that "my husband of 16 years was gone." My husband was never able to cognitively, or emotionaly able to recover. I'm now married to a child who is constantly angry, violent, and suicidal. When he was first injured, I vowed to do what ever I could to enable him to be as independent, and balanced as possible. God help me I have failed him, and I'm failing my self as a result. I have no insurance, as I have lost my job for his needs. I have him on SSD and he gets medicare, but no ongoing psychological or perscription drug therapies. I used to tell him that there was hope, when he expressed wanting to die. Now I think I understand his inability to no who he was, and what he has become, and still want to live. I now find myself praying that he finds peace, because he hasn't known joy, since the day he died, and the monster took over. That is the only way I know to describe this new person in my life. My problem is that I fully realize that the only thing between his life now, and a cardboard sign in the street, are his meds, and me. How do you let go with out guilt, when do you no that you have done all that you can, and more than the patient ever wanted. Please help me, my family used to support my efforts, however with such a negative outcome, they now want me to leave him. He has no other family. How can I stay true to me and be strong for him?
Name: Rachel Leffel
Organization:
Email: rnoya@tampabay.rr.com
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 7/20/01
Time: 9:56:30 PM
Remote Name: 206.65.190.134
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; Windows 98; Win 9x 4.90)
I am a survivor of Tramatic Brain Injury which happened in a car accident 12/25/99. I am 25 years old, unmarried(yet!), and living with my parents. My mom is my primary care giver.
Name: Nanette Jeanae Jones
Organization:
Email: jeanae_j@yahoo.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://tbinet.org
Should we contact you?: Yes
Date: 7/17/01
Time: 9:55:10 AM
Remote Name: 64.218.31.25
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; MSN 2.5; Windows 98; DigExt)
I need help with knowing long-term effects of TBI as we just get a diagnosis for my husband. About 28 years after the injury, which is verifiable, took a lot of digging to get the information but I got it. My husband has been struggling with this for all of these years, trying to hide the symptoms, so that nobody would think that he crazy. Since his injury was so long ago there is not a lot of information out there on Long-Term Effects. I need help for the children & I to understand how to help him with this. He has been unable to work for 4 years. Thank you any information would be greatly appreciated.
Name: jnaae green
Organization:
Email: jhgtrav@hotmail.com
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 7/13/01
Time: 2:37:32 AM
Remote Name: 128.143.191.231
HTTP User Agent: Mozilla/4.08 [en] (Win95; U ;Nav)
Name: Virginia Reid
Organization:
Email: reidfamily4@yahoo.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 7/9/01
Time: 9:39:15 AM
Remote Name: 4.4.159.41
HTTP User Agent: Mozilla/4.7 [en] (Win95; I)
We need help finicially, maybe if possible a compuer for me,support for my son and Husband. 828-466-3291 Thank you all again virginia Reid
Name: Virginia Reid
Organization:
Email: reidfamily4@yahoo,com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 7/9/01
Time: 9:35:14 AM
Remote Name: 4.4.159.41
HTTP User Agent: Mozilla/4.7 [en] (Win95; I)
Another survivor recommented this site. My first accident was 12/26/96 I was rearended as I was stopped due to Police Officier directing traffic The lady was going 55mph, and pushed me 71 feet.Two weeks before my promotion. Ended my career.Did not know my husband or son.Attorney settled for minimal amout, did not fight for me,the day this case was supposed to go to court, I was still in the hospital,charges were dismissed.Bills were according to my husband,were devastating. Second accident April 19,1996, my church friends were going to take me to a concert,we never saw the concert, we were rearended.ER Doctor did not know what a TBI was. Discharged with a cervical collar,no sling for my right shoulder which was dislocated. was dislocated, and pain pills.Third accident September 26,1996,a kid ran a stop sign, broad sided me and flipped me three times, incurred second brain injury. All three accidents were not my fault,All three times red cars. I get to borrow this computer.April accident, no settlement.third accident,kid was not fully insurred.There is more, but if you will contact me,I will answer more questions, or explain, any of this for you all Thank you all for the ear Virginia Reid reidfamily4@yahoo.com
Name: Jeannine Walston
Organization:
Email: www.jeannine6@hotmail.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 6/25/01
Time: 1:24:21 PM
Remote Name: 206.187.232.130
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; Windows NT 5.0)
Any information that anyone could give me concerning inpatient treatment facilities in Florida for TBI would be greatly apprec- iated. I have tried every where that I can think of and can find absolutely nothing. My husband needs to be admitted to one and even his doctors can't tell me of one by name, only that they know of one in Wauchula and one in Sarasota, but they can't give me a name or phone number or address. Please help if you can. Thank you.
Name: Theanne
Organization: Yahoo! Christian Caregiver's Club
Email: tlccros@yahoo.com
Home_Page: http://www.tcrossett.com
How did you find us?: Followed a Link
Link_Followed: http://clubs.yahoo.com/clubs/christiancaregiversclub
Should we contact you?: Yes
Date: 6/19/01
Time: 1:55:43 PM
Remote Name: 209.240.220.199
HTTP User Agent: Mozilla/4.0 WebTV/2.6 (compatible; MSIE 4.0)
Hi Ila, came by to visit your site! It's difficult for me to absorb how many folks receive head injuries. Makes me want to wear a "crash" helmet all the time. When I worked for a facility (mentally/physically challenged) in Virginia we had residents who were brain injured because of abuse. That's a heart breaker!
Hope your daughter continues to progress with the "new" treatment she will be receiving.
{{{{hugs}}}} Theanne
Name: john osberg
Organization: tbi survivor myself
Email: john-w-o@home.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://www.home.tbinet.org
Should we contact you?: Yes
Date: 6/5/01
Time: 1:57:27 AM
Remote Name: 163.230.7.5
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; Windows 95)
I have no direct need to be contacted. I meet my wife in a brain injury survivor support group in 1989. We were married in 1992 and have two wonderful children. I would like to be an email pal to one or more survivors. My wife, Donna, and I would enjoy that very much!
Name: JACQUELINE KATCHUR
Organization:
Email: JJVNK@AOL.COM
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 6/4/01
Time: 8:32:58 AM
Remote Name: 205.188.192.151
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; AOL 6.0; Windows 98; DigExt)
My daughter, Victoria was injured two years ago at camp, she suffered a TBI. I have given up my job (I worked for an airline) to take care of her. Eventhough her dad and I are still married, it's me who is her primary caregiver. I'm at all her doctor's appointments and she never misses cognitive. I don't resent her and never will, but there are days when I just want to stay in bed and cry, but I don't, its not me I feel bad for, but her. This website has such nice people who understand and give advice, and it does help. Some days I just need someone to listen, who maybe has the same thing going on in their lives, and can understand. Thank you for including my daughter and me. When she is older, I'm sure she'll participate in this website, hopefully she can help another mom or child through her experience in getting better.
Name: Pamela Nachel
Organization: none
Email: pamela.nachel@kmz.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://braininjuryclubhouse.com
Should we contact you?: No
Date: 5/30/01
Time: 4:08:42 PM
Remote Name: 204.233.233.66
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; Windows 95)
Just searching for information for a dear friend age 18 who has suffered a severe head injury and is now learning to live again with spinal damage and frontal lobe damage.
Name: Kathie Welborn-Lindsey
Organization:
Email: kldwrl@aol.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 5/28/01
Time: 4:42:10 PM
Remote Name: 64.12.101.184
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; AOL 6.0; Windows 98; Win 9x
4.90)
This is a site I had not seen until today (May 28). I found it because of a prayer request that I asked Teri Belloti to pass along. I immediately heard from Iia and checked out the site. I have searched out TBI sites for years and could not believe I had missed one. It is a wonderful site and I'm sure many people have been helped by it, as I have. Thanks to you all.
Name: Marjorie Fredell
Organization:
Email: mfredell@vnet.net
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: No
Date: 5/24/01
Time: 4:54:08 PM
Remote Name: 166.82.120.173
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; Windows 95)
Daughter Barbara received severe TBI on Sept 8, 1992. She was 27 and there were no services for her because of her age. It was a long seven year fight to get her the help she deserved and the home she deserved.
Name: kacky hammon
Organization: bianc
Email: kacky.hammon@bianc.net
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 5/24/01
Time: 2:11:51 PM
Remote Name: 165.247.157.162
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows 98; DigExt)
Loved meeting the whole family this week-end, gang. It was GREAT to finally see each other face to face! I hope you all had a blast, networked and made new friends. If there's anything I can do for you here just holler! Love, kack
Name: Norma M. Thompson
Organization: survivor
Email: kijan@grits.net
Home_Page: http://n/a
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 5/24/01
Time: 1:36:49 PM
Remote Name: 216.53.232.104
HTTP User Agent: Mozilla/4.5 [en]C-CCK-MCD compaq (Win98; U)
I was introduced to you by Diane Rankin. I had a brain stem hemorhage in Apr, '93.Diane has kept in touch by e-mail as I am not near any support group.(nearest is 1 and 1/2 hours one way.) I am diagnosed as ABI (congenital)since I wasn't injured nor did I have any reason.? I was in a coma for about 10 days, spent 1 month in Ruherford hosp, 3 months in Mt Vernon in Arlington. My husband is sole caregiver.My afflictions ?:left face, no musculature, eye partially sewn shut. Right leg, some paralysis, right arm & hand, motor not good. Am now PARTLY left-handed, use 1 finger on pc. Have had 7 or so surgeries.Wheelchair & walker, no balance. Am alive!
Name: Shaun Best
Organization: The Challenged Conquistadors, Inc.
Email: Shaun_Best_2000@yahoo.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 5/23/01
Time: 4:06:38 PM
Remote Name: 208.204.248.27
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; Windows NT)
I'm a teacher in the public schools. I survived a coma of three months back in 1977. I, also, promote positive recovery awareness? I have a web page at www.SpeakersQuest.com/speakers/Best.htm. Have A Best Day! SW Best
Name: Patt Abrahamson
Organization:
Email: pattgary@up.net
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 5/22/01
Time: 9:50:08 PM
Remote Name: 208.16.252.179
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; Windows 98)
I became aware of this site from a conversation with Ila Nofziger. Presently I am on a state committee in MI that is in the process of preparing a resource guide for caregivers and their loved ones with brain injuries. I am the mother of Gary (age 50) and wrote the book, BRAIN INJURY: A FAMILY TRAGEDY
Name: melanie Price
Organization: BIsurvivorfamily
Email: Talgirl44 @aol.com
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 5/21/01
Time: 10:20:03 PM
Remote Name: 152.163.205.72
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; AOL 6.0; Windows 95; DigExt)
Thanks for giving the rest of us hope for the future!
Name: Melissa Forcade-Thompson
Organization:
Email: melbles@yahoo.com
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 5/18/01
Time: 6:57:24 PM
Remote Name: 24.20.125.112
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows 98; DigExt)
I had to fight back tears as I read so many heart touching stories. It seems most doctors and nurses take the same class in "Stupid comments to make to the family of a TBI patient!" I had my accident on April 26, 1995. It seems like decades ago. I was in a coma for a week and began "responding to commands," according to my medical report, shortly after I was "awake." (Gee, they made me sound like a circus animal.) Many of my actions were labeled as reflexes, but my family and fiance' did not listen to the doctors and allowed themsleves to heal a bit more as I healed. Every wink of my eye or puckering of my lips was taken as a form of communication. My memories of the trauma unit do not exist, thank God. I remember the rehabilitation unit in Houston quite a bit. I was well taken care of, but as soon as I decided to not attend an outpatient program the hostpital sponsored for head injury patients, I was forgotten. Forget that I was not expected to do much when and if I recovered. Forget that I married the man my doctor said would probably leave me. "50% of couples break up when a one partner is head injured, you know." I beat the odds. They said I may never walk....I walked out of the hospital with a walker and leg brace and I walked a mile last week at the gym without a cane or brace. They said I would probably never drive again, I bought a new car last month. They said it was an unrealistic goal that I would ever return to college and succeed. I graduate with my B.A. in 2002. I had an initial Glascow of 6 and a shunt in my head and all the other goodies that indicate possible life time need for help. I own a home, I cook. I bathe and grrom myself,I take care of my dog, I even drive to th egrocery store and shop alone. I have a wonderful and caring husband who stuck by me before we even took the vow of "til death do us part." I do many things they said I would never do. I still get pretty bad headaches and my eye sight is poor. My feet get a little numb when I walk too much and I still need to slow down sometimes and rest. I have moved mountains and intend to continue. I am currently volunteering with the Idaho Brain Injury Association Chapter. I may do my senior internship with them and look forward to meeting other survivors. What a fabulous site this is and I hope many people find it and find just what they are looking for.
Name: esther tien
Organization: boon church of ocm
Email: et_boon@hotmail.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://www.yahoo.com
Should we contact you?: No
Date: 5/10/01
Time: 5:06:08 PM
Remote Name: 63.23.147.120
HTTP User Agent: Mozilla/4.04 [en] (Win95; U)
Name: Lorrain Armstrong
Organization:
Email: twobluefeathers2@hotmail.com
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: No
Date: 5/3/01
Time: 8:32:37 PM
Remote Name: 203.29.128.21
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; Windows 95)
My son Mark was struck by a car on September 30th 2000, and as a result suffered massive brain injury. He has had partial frontal lobe lobe removal,partial parietal lobe, and temporal lobe removal.I was also told that the rest of he's brain was so badly bruised that the doctor's didn't hold to much hope for my son. After the 9th day of Mark's accident the doctor's told us of the results of he's brain scan. They did not look good. Mark would not Know us, have no memory of anything or anyone, would not be able to walk, talk, or control he's bodily functions,the best we could hope for is that Mark would possibly be able to only feed himself. So Mark was taken out of the drug induced coma. Five day's later Mark sat up in he's bed and askedwhere I had been. He has been home with me since the end of January. Because of he's brain injury he could not cope with being hospitalized. It is a hard struggle sometimes being a single parent and working full time. At times I feel like giving up but something keeps me going. Maybe it's the pleasent times with my son that get's me through the hard times that we sometimes have. By the way my son is able to walk, and remember, and altough sometimes he can not say some words he has no trouble describing what he want's to say. I have two other sons and a good family and when I need to have a cry I talk to one of them. I have worked with head injury patients for 16 year's as a Physical therapist but nothing had prepared me for this. I live in Australia in a small country town and have a wonderfull rehab centre that I work in and Mark can come with me. Thankyou for this page.
Name: Demetra Caldwell
Organization:
Email: sunsnow_26@yahoo.com
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 4/30/01
Time: 1:15:47 AM
Remote Name: 199.44.40.251
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows 95; DigExt)
My name is Demetra Caldwell. I am 27 yrs old and is married to a Closed brain injured spouse. His accident happened on April 14, 2001. I don't know what to do. My husband doesn't have any insurance and I'm trying to get him on Medicaid. The hospital discharge planning team is consulting with me about his after care. I don't know what to do. They said that its a problem with the assistant funds. I know that once he gets on medicaid then I can put him in a rehab center. I can't take him home because I have to work to keep the bills paid. I don't know what to do. This is the first time I ever dealt with someone with a brain injury. If you have any suggestions and comments please feel free to contact me at my e-mail address. I need help and don't know where to begin. Thank you for taking the time out to read this comment. P.S. I live in Tallahassee, Fla.
Name: Robin Roberts Rich, Professional ADHD Coach (Certification July 2001)
Organization: Coastal Coaching Center
Email: AL1ADHDCOACH@AOl.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://www.adap.net
Should we contact you?: Yes
Date: 4/17/01
Time: 12:14:24 PM
Remote Name: 152.163.204.69
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; AOL 5.0; Windows 98; DigExt)
Iam interested in T.B.I. for two reasons. 1. My daughter was in a severe M.V.A. 9-1-99 and we are still having problems and new symptoms developing. 2. I am a Professional A.D.H.D. Coach and a current Clinical Director to a speciality field of A.D.H.D. as well as ofther diagnosis.
I am always in searce for additional resource material as well as current events and support groups for our clients/patients at my workplace and for my personal business.
I look forward to hearing and possibly receiving more information. Side - By - Side Building a Partnership Robin Roberts Rich Professional ADHD Coach (Certification July 2001)
Name: Marilyn Lash
Organization: Lash and Associates Publishing/Training
Email: lapublishing@earthlink.net
Home_Page: www.lapublishing.com
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 4/13/01
Time: 10:14:06 AM
Remote Name: 168.191.248.236
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows 98; DigExt)
We provide practical information on the consequences of brain injury for children and adolescents and have a line of tip cards, books and manuals specially written by and for parents, clinicians and advocates. Our special focus is helping parents and educators meet the special educational needs of students with brain injuries. Please visit our web as we have made it a central resource for information on youths with brain injuries. You can also call us at 919-562-0015 and request a free catalog.
Name: nancy winkler
Organization:
Email: nwink@charter.net
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 4/12/01
Time: 11:31:13 PM
Remote Name: 24.216.14.15
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; Windows 98; Win 9x 4.90)
Name:
Organization:
Email:
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 4/12/01
Time: 11:28:39 PM
Remote Name: 24.216.14.15
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; Windows 98; Win 9x 4.90)
my son at the age of 26 yrs suffered anoxic brain injury. doctors told us at the time he would never recover, the son we knew was gone. it has been 16 agonizing months. jamie , our son, has made very slow progress. his body is healthy and looks the same as he ever did. he recognizes us and smiles and cries, but is unable to move his body. he is not eligble for rehab and is currently in a nursing home. we drive 50 miles one way to see him every day are involved in his care. it has been an unbelievable nightmare for us. i would like to be in contact with a family who has someone suffering anoxic brain injury.
Name:
Organization:
Email:
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 4/12/01
Time: 11:28:29 PM
Remote Name: 24.216.14.15
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; Windows 98; Win 9x 4.90)
my son at the age of 26 yrs suffered anoxic brain injury. doctors told us at the time he would never recover, the son we knew was gone. it has been 16 agonizing months. jamie , our son, has made very slow progress. his body is healthy and looks the same as he ever did. he recognizes us and smiles and cries, but is unable to move his body. he is not eligble for rehab and is currently in a nursing home. we drive 50 miles one way to see him every day are involved in his care. it has been an unbelievable nightmare for us. i would like to be in contact with a family who has someone suffering anoxic brain injury.
Name:
Organization:
Email:
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 4/12/01
Time: 11:28:22 PM
Remote Name: 24.216.14.15
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; Windows 98; Win 9x 4.90)
my son at the age of 26 yrs suffered anoxic brain injury. doctors told us at the time he would never recover, the son we knew was gone. it has been 16 agonizing months. jamie , our son, has made very slow progress. his body is healthy and looks the same as he ever did. he recognizes us and smiles and cries, but is unable to move his body. he is not eligble for rehab and is currently in a nursing home. we drive 50 miles one way to see him every day are involved in his care. it has been an unbelievable nightmare for us. i would like to be in contact with a family who has someone suffering anoxic brain injury.
Name: Colleen kluender
Organization: Creighton University occupational therapy student
Email: colleenkluender@aol.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 4/10/01
Time: 4:16:48 PM
Remote Name: 147.134.201.108
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; Windows 98)
I am doing some research on traumatic brain injury. I am wanting to know the needs of the person after released from rehabilitation centers/hospitals, etc. I am also interested in what the family of the person sustaining the brain injury feels would be beneficial--more independent living centers, home health, education. Let me know what your opinions are. Thank you for your help! Colleen Kluender
Name: Karlene
Organization: Son is headinjury survior
Email: nineholegolf@hotmail.co,
Home_Page: don't have one
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: No
Date: 4/7/01
Time: 11:00:03 PM
Remote Name: 12.35.115.14
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows 98; DigExt)
My son is a survior and I saw email about Terri I made a mistake think ing that Terri was the husband. Debbie told that Terri is the daughter. I understand what Terri parents are going through sort of. You see my son was married and she talk about pulling his support an if she would have continue I would have fought her. Because he deserves a chance. She did divorce him an now I am the cargiver and gald of it. I still have my son and I hope Terris parent can win so they can give Terri a chance. Karlene
Name: Betsey Zook
Organization: Dept of Rec, Univ of North Carolina
Email: bzook@email.unc.edu
Home_Page:
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 4/6/01
Time: 10:20:58 AM
Remote Name: 152.2.58.127
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; Windows 95)
Hi, Ms. Nofziger sent me an email about your site. I am a therapeutic recreation specialist and currently working on a project with adults with brain injuries. We are looking at ways to improve community based services. You can learn more at our project web site: http://www.unc.edu/depts/recreate/crds/SSPBI
Name: MICHAELDEAN
Organization: DISABLED PERSON
Email: Mrdean50@aol.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 4/4/01
Time: 3:12:05 PM
Remote Name: 205.188.200.42
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; AOL 6.0; Windows 98; Win 9x
4.90)
how does a person get involved with the legislative portion of your orgiznation
Name: Cindy Smith
Organization:
Email:
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed:
Should we contact you?: Yes
Date: 3/28/01
Time: 5:37:40 PM
Remote Name: 12.77.24.205
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.01; Windows 98; AT&T CSM6.0)
I am the mother of a now 8 year-old (BI 1/99). It has drastically changed our lives; we now structure our lives around him. We also have a 16 year old daughter very active in school activities; needless to say, our social life is almost non-exisistent! We have all come a long way, but still have a long way to go
Name: David Skinner
Organization: Vann Mann (Adaptive Mobility) Corporation
Email: jdskinner@msn.com
Home_Page: http://www.vannmann.com
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 3/27/01
Time: 6:48:08 PM
Remote Name: 63.31.205.209
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; MSNIA; Windows 98; Win 9x 4.90)
We try to help families and individuals overcome disabilities and maintain independence and mobility by providing products and services for the home and transportation. If we are unable to provide you with the items you need, we will try to help you find a source that can. Please call Dave Skinner or Gary Miller at 800-596-8266 for assistance. This message is intended to be a resource guide, rather than an advertisement.
Name: Linda Collins
Organization: Caregiver
Email: yaffa@swbell.net
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 3/27/01
Time: 12:51:56 PM
Remote Name: 216.62.119.213
HTTP User Agent: Mozilla/4.76 [en]C-SBIS-NC404 (Win98; U)
I have been looking for a caregiver support group for twenty years. I am so glad to have met Paulette Keeney in Austin while we were both there to support HB1676. If she hadn't left the cards with the ribbons I never would have known about this organization. Thank you.
Name: JANICE WICKS
Organization:
Email: BJWICKS@LRBCG.COM
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 3/26/01
Time: 3:20:16 PM
Remote Name: 206.162.40.212
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows 98; DigExt)
I ACTUALLY HAVE A QUESTION. WHEN MY YOUNGEST DAUGHTER WAS BORN THE DOCTOR DIDN'T CATCH HER. AS A RESULT OF THIS SHE NOW HAS SEIZURES SHE IS THREE MONTHS OLD NOW AND I STILL DON'T KNOW ANYTHING. DOES ANYONE IN YOUR ORGANIZATION HAVE ANY INFORMATION ABOUT THIS KIND OF BRAIN INJURY. I WAS TOLD IT WAS ALMOST LIKE SHAKEN BABY SYNDROME. IF ANYONE CAN HELP I WOULD APPRECIATE ANYTHING ANYONE COULD TELL ME.
THANK YOU
JANICE WICKS
Name: cindy higgins
Organization:
Email: cindyhigins@msn.com
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 3/24/01
Time: 11:17:54 PM
Remote Name: 63.27.159.185
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; Windows 98; MSN 6.0)
i hope to get some good help from here as my husband has a head injury and is in alot of pain and vomiting now since they push his shunt valve they do not know what happened to cause him this much pain and vomiting,if anyone can help me i would like to hear form you.thank you cindy
Name: Yvonne Tinney
Organization:
Email:
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 3/23/01
Time: 9:59:19 PM
Remote Name: 206.242.84.7
HTTP User Agent: Mozilla/4.72 [en]C-CCK-MCD compaq (Win98; U)
Name: Brandi Clark
Organization:
Email: brandic@networksplus.net
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://brandinjury.com
Should we contact you?: Yes
Date: 3/23/01
Time: 12:56:28 AM
Remote Name: 199.240.180.98
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows 98; DigExt)
Name: melanie price
Organization:
Email: metosing@yahoo.com
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 3/22/01
Time: 7:56:17 AM
Remote Name: 64.12.101.154
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; AOL 6.0; Windows 95; DigExt)
I'm the mom of tbi surivor--It will be a yr -May 27th 2001 since my sons accident--He was in a coma 3mos---but has gained great strides in recovery--He learned how to do everthing all over again---He returned to his high school--but has been in a special class---has had a one-on-one teacher too!--But in the last two mos his behavior has gotten worse---he lives with his dad---they are fighting all the time because of food and etc---we need help with temp placement--HELP--our insurance doesnt pay --any suggestions?
Name: David Etzwiler
Organization: Medtronic Foundation
Email:
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: No
Date: 3/20/01
Time: 11:47:49 AM
Remote Name: 144.15.249.68
HTTP User Agent: Mozilla/4.5 [en]C-CCK-MCD (Win98; I)
Name: Paula Simmons
Organization:
Email: gjpjtj@ptd.net
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 3/18/01
Time: 8:49:21 PM
Remote Name: 24.229.36.32
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows 98; DigExt)
I'm looking to find out some information to educate myself and family. My brother is in a coma and we would like to know every detail of what to expect and to understand what is being said to us.
Name: Tammie Renfroe
Organization: headinjury
Email:
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 3/14/01
Time: 12:49:33 PM
Remote Name: 166.102.97.54
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows 98; DigExt)
Tammie Renfroe March 14,2001 1456 cypress pond rd. willacoochee,Ga. 31650-4453 My name is Tammie Renfroe and my son name is John Herring and on June 9,1998,my 10 year old son drown, or i should say near drown. John is 12 year old now, but he is what you would call long term impairment. See he can'nt move, talk, do'nt know id he can understand what you are saing or doing around him. I know or hope there is help out there for me to help him. There is so much more I need to say. But I'm on my mother complete and I do'nt knew her e-mail address. Please help me to help my son Thank -you
Name: Roni Moore
Organization:
Email: vrmoore@mindspring.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 3/7/01
Time: 10:41:10 PM
Remote Name: 165.247.171.209
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.01; Windows 98)
Name: Jae
Organization: RedHood
Email: jaecasey@netscape.net
Home_Page:
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 3/5/01
Time: 2:34:47 PM
Remote Name: 24.115.58.209
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows 98; DigExt)
What a wonderful site. I have been patterning my friend Dino for almost 2 years, it helps to prevent atrophy, and is a very good source of stimulation for ABI and TBI patients. Please come visit my friend Dino. http://RedHoodWarriors.homestead.com/REDHOOD.html
Name: Cecil Greene
Organization: Brain Injury Association of NC
Email: cecil.greene@bianc.net
Home_Page: http://bianc.net
How did you find us?: Followed a Link
Link_Followed: http://inofziger@aol.com
Should we contact you?: No
Date: 2/20/01
Time: 12:33:31 PM
Remote Name: 205.188.193.177
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.01; AOL 5.0; Windows 98)
Enjoyed reading your information. Very well presented. I hope to attend your golf outing in May.
Name: Todd Sibley
Organization: Push America
Email: toddsibley@yahoo.com
Home_Page: www.pushamerica.org
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 2/18/01
Time: 3:07:32 PM
Remote Name: 64.183.80.186
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; Windows NT 4.0)
I work for a non-profit organization that helps raise funding and awareness for people with developmental disablities. I truly appreciate the work that your organization has done to help people with severe brain injuries.
Name: Rennie Gray
Organization:
Email: mtwindwill@aol.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 2/17/01
Time: 12:56:49 PM
Remote Name: 38.144.151.137
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows 98; DigExt)
Im looking for resources for my son who was injured in a hit and run accident.
Name: Joseph M Plant
Organization:
Email: dwitherspoon1@yahoo.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://www.home.tbinet.org/raf/
Should we contact you?: Yes
Date: 2/10/01
Time: 6:00:17 PM
Remote Name: 63.31.40.82
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows 98; Yahoo V1.0)
Our son Joseph recvd. a closed head injury in 1981. He is presently attending classes at the TLC Center in Galveston Texas. Can anybody provide information on obtaining results with SSI disability???
Name: John Kumpf
Organization: Ontario Brain Injury Association
Email: jkumpf@obia.on.ca
Home_Page: http://www.obi.on.ca
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: No
Date: 2/7/01
Time: 5:31:37 PM
Remote Name: 209.5.60.47
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.01; Windows 98)
Name: Jennifer Morgan
Organization: Families USA
Email: jmorgan@familiesusa.org
Home_Page: http://www.familiesusa.or
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 1/29/01
Time: 10:04:49 AM
Remote Name: 205.252.20.94
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows 98; DigExt)
Name: Rachel
Organization:
Email: rnoya@tampabay.rr.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 1/28/01
Time: 8:05:41 PM
Remote Name: 65.32.30.179
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; Windows 98; Win 9x 4.90)
I am a survivor and would like any information on brain injury and rehabilitation that you may have.
Name: Pam Piasecki
Organization:
Email: pamlarry@yahoo.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://www.waiting.com
Should we contact you?: Yes
Date: 1/24/01
Time: 6:45:20 PM
Remote Name: 24.28.195.17
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.01; Windows 95)
I'm searching for the best brain injury program I can find for my sister. She is a 39 year old woman who suffered a severe head trauma on Dec 31 in a car accident. She also suffered incomplete breaks of C1 and C4/C5 in her spine. She has been in a coma since that time. We live in the Washington, DC area and she is a resident of VA. She has no insurance and we have applied for MEDICAID. The hospital has only directed us toward skilled nursing facilities. I feel there must be more that I can do to help her recover. Can you recommend some acute head trauma programs?
Name: John P. Morgan
Organization:
Email: morgan_2408@yahoo.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://www.bj'scloset
Should we contact you?: Yes
Date: 1/23/01
Time: 6:52:32 PM
Remote Name: 63.214.218.167
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; MSNIA; Windows 98)
I suffered a tbi in 1984. Since then, I have suffered three more severe concussions, with additional damage. Though I have progressed, I still suffer most of the effects of these tbi's sixteen years later. The information here is terrific.
Name: Larry Buhrow
Organization: BIA of Ohio
Email: lbuhrow@biaoh.org
Home_Page: http://www.biaoh.org
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 1/12/01
Time: 12:10:35 PM
Remote Name: 208.51.35.196
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows 95; DigExt)
This looks like a very useful, friendly, and needed wbwsite. I will refer others to it. thanks,
Name: gisele reay
Organization: parent of Jane reay
Email: reay_g_h@hotmail.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: No
Date: 1/9/01
Time: 2:59:11 PM
Remote Name: 204.174.248.2
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; Windows 98)
i don't feel quite so alone as a parent of a brain injury teen. when the accident happened my husband and i were alone. there was not enough information by the health professionals about brain injury and what to expect and what to do to helpo our child. great that there is a site on brain injury
Name: William Shirley
Organization:
Email: Ramshead@Concentric.net
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 1/3/01
Time: 9:06:47 AM
Remote Name: 64.220.240.68
HTTP User Agent: Mozilla/4.72 [en]C-DIAL (Win95; I)
Browsing the web, trying to find out more about my sons injury. He has been in an unresponsive state since Nov 7, 2000.
Name: molly oglesby
Organization: katy,tx
Email: milttgif@aol.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 1/2/01
Time: 7:21:10 PM
Remote Name: 205.188.193.171
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; AOL 6.0; Windows 95; DigExt)
My son Bryan, suffered a TBI 9-8-97,at age 19 due to a car accident. He is now legally blind, stroke (marked left side weakness, no use of his left arm), seizure disorder and suffers from depression. I am in search of assisted\supported\supervised living situation which will help him in both physical and mental challenges. I may be dreaming but I must try to find him somewhere where he will have some independence and purpose in life. Thank you for your time...Molly
Name: Alise Elias
Organization:
Email: alisee2@aol.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 12/29/00
Time: 12:45:25 AM
Remote Name: 152.163.204.193
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; AOL 4.0; Windows 95)
Name: Connie Grundmeyer
Organization:
Email: pedal@attglobal.net
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 12/28/00
Time: 3:02:08 PM
Remote Name: 32.100.44.185
HTTP User Agent: Mozilla/5.0 (Windows; U; Win98; en-US; m18) Gecko/20001108
Netscape6/6.0
Mother, caregiver for daughter 21 sever TBI auto accident 5/5/95. Still not speaking or doing for herself, but loves people and is expressive facially.
Name: Rob Conklin
Organization: Lambo Advertising
Email: rob2264@yahoo.com
Home_Page: http://www.lambocar.com
How did you find us?: Followed a Link
Link_Followed: http://www.lambocar.com
Should we contact you?: Yes
Date: 12/10/00
Time: 6:11:09 AM
Remote Name: 63.214.219.40
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; Windows 98)
nice site
Name: Connie Hachborn
Organization: caregiver
Email: Broomhilda54@yahoo.com
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 12/9/00
Time: 9:30:30 AM
Remote Name: 149.99.220.58
HTTP User Agent: Mozilla/4.7 [en] (Win95; I)
I am a caregiver of six years My partner suffers from anoxia. i have an extremely difficult time advocating for the medical supports my partner requires in Kitchener Ontario Canada. i have found the medical community is unable to understand that if proper rehabilitation and support were provided for my partner in the short term this would reduce medcial costs over the long term as my partner could be desinstitutionalized and reside at home which is great cost saving factor to the system. although i have achieved for greater success getting supports than many in my community i would like to become a better advocate for my pertner and pass it on to other families who are experiencing similiar difficulties who are overwhelmed and intimidated by the medical establishment any advice or support would be greatly appriceiated i also our system appears to be lacking on the information as regards anoxia and any information you may have on this speific brain disorder would also be greatly aprreciated thank-you coniie hachborn
Name: Nicole Kontz
Organization: none
Email: t6114@aol.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 12/8/00
Time: 8:19:56 PM
Remote Name: 152.163.201.203
HTTP User Agent: Mozilla/2.0 (compatible; MSIE 3.0; AOL 4.0; Windows 3.1)
Name: Michele Tutalo
Organization: Caregiver/Liason
Email: M2talo@aol.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 12/3/00
Time: 8:18:33 PM
Remote Name: 152.163.213.202
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; AOL 5.0; Windows 98; DigExt)
Way to go Ila !!!
Name: kelly schooler
Organization:
Email: thesmell@sigecom.net
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 12/1/00
Time: 8:00:32 AM
Remote Name: 63.64.13.151
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; Windows 95)
Name: Julie Reiskin
Organization: Colorado Cross-Disability Coalition
Email: JReis29622@aol.com
Home_Page: www.colorado2.com/ccdc
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 11/28/00
Time: 8:15:20 AM
Remote Name: 205.188.199.161
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; AOL 5.0; Windows 98; DigExt)
This is a great page and it sounds like you are doing amazing work--both personally and professionally---keep it up. We need people like you.
Name: Mike Brokaw
Organization: AgrAbility Unlimited; 2715 S. 4th Street; Springfield, Il 62703
Email: esealsil@mcleodusa.net
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 11/27/00
Time: 3:41:58 PM
Remote Name: 216.43.231.157
HTTP User Agent: Mozilla/4.61 [en] (Win98; I)
I work with disabled farmers. I was contacted by a farmers wife whose husband has suffered a TBI. I would appreciate any information you can provide about the recovery and rehabilitation process
Name: KATIE SMITH
Organization:
Email: ksmith3594@aol.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 11/23/00
Time: 8:55:43 PM
Remote Name: 64.12.102.172
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; AOL 6.0; Windows 98; DigExt)
Name: Earline Surratt
Organization:
Email: artist@inteliport.com
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 11/20/00
Time: 10:29:00 PM
Remote Name: 208.27.31.4
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows 98; DigExt)
I was happy to find another web. site on brain injury. I am a mother a wife and a caregiver for life. My son Daniel was hit by a car in 1994 and recieved a TBI can't walk or talk and my husband and I are his caregivers. Good to meet any one who walks in our shoes. Earline
Name: merav
Organization: NESS
Email: clinic@ness.co.il
Home_Page: http://www.nessltd.com
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: No
Date: 11/20/00
Time: 10:21:18 AM
Remote Name: 64.210.241.101
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows 98; DigExt)
"While there is life there ’s hope." (John Gay)
Name: Bettie Timberlake
Organization:
Email: BTimber12@aol.com
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 11/14/00
Time: 10:09:45 PM
Remote Name: 205.188.200.181
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; AOL 6.0; Windows 98; Win 9x
4.90)
I am now into my seventh year of caregiving to my son Michael. He is a brain stem shir., quadriplegic, peg fed, trache dependent 39 years of age.I would love to hear from others with family members of brain injury survivors. I have very little contact with outside aide, (I am a 24 hour caregiver). I look forward hearing from you. God Bless. Bette
Name: Debbie Bryan
Organization: East Tx Chapter BI Assoc. of Texas
Email: ETBIA@aol.com
Home_Page:
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 11/12/00
Time: 12:34:24 PM
Remote Name: 205.188.197.48
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; AOL 5.0; Windows 95)
I love your site and the information you provide. We have linked your Foundation to our site (www.homestead.com/etbraininjuryassociation) and would appreciate it if you would please consider adding us to your list of support groups on your reference links page. We offer monthly support meetings for BI survivors and caregivers throughout the East Texas area as well as education,prevention activities in the communities.
Name: Michele Tutalo
Organization: caregiver
Email: m2talo@aol.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 11/10/00
Time: 9:58:51 PM
Remote Name: 64.12.103.54
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; AOL 5.0; Windows 98; DigExt)
Name: PHYLLIS
Organization:
Email: SASSYSISPEP@AOL.COM
Home_Page: http://ALZHEIMERS HEART
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: No
Date: 11/8/00
Time: 7:31:50 AM
Remote Name: 205.188.199.46
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; AOL 5.0; Windows 98; DigExt)
DEAR ILA: THERE IS SO MANY PEOPLE WITH T.B.I.. WE ALL NEED TO BE MADE MORE AWARE OF IT. YOU ARE DOING A FINE JOB.IF THERE IS ANYTHING I CAN DO, PLEASE LET ME KNOW.HUGS TO YOU. PHYLLIS
Name: Vicki Johnson
Organization: Sian's mom TBI 10/8/93
Email: sian@uswest.net
Home_Page: none yet but comming soon
How did you find us?: Followed a Link
Link_Followed: http://www.BI-CHILD-L@TBINET.ORG
Should we contact you?: Yes
Date: 11/6/00
Time: 4:43:35 AM
Remote Name: 209.181.105.181
HTTP User Agent: Mozilla/4.5 [en]C-CCK-MCD {U S WEST.net} (Win98; U)
Great job on this! What can I do to help? Please send us 3 ribbons for our little family to wear and inform those who are so uninformed!
Name: Joanne Smith
Organization:
Email: jmlines@epix.net
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 11/4/00
Time: 10:47:07 PM
Remote Name: 199.224.79.70
HTTP User Agent: Mozilla/4.5 [en]C-CCK-MCD (Win98; I)
Name: Duke Haney, Father od Dennis
Organization: Care giver
Email: dukeh@semo.net
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 11/4/00
Time: 9:44:30 PM
Remote Name: 209.145.168.44
HTTP User Agent: Mozilla/2.0 (compatible; MSIE 3.01; Windows 95)
I think it is wonderful, what you all are doing, and i am with you, I also want a ribbon, and want to make a contribution, no rush, I know you are very busy right now but when it slacks up alittle. Your friend Duke
Name: Tammy Richardson
Organization:
Email: Natetbi@aol.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://caregivers online.
Should we contact you?: Yes
Date: 11/3/00
Time: 4:26:11 PM
Remote Name: 152.163.206.178
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; AOL 6.0; Windows 98)
I am caregiver to my son Nate, TBI survivor since 5/97. Am open to talking and helping in areas I can. Nice Web site, will come back often.
Name: Cathe St. Jean
Organization: RACO Records
Email: CATHE10@aol.com
Home_Page: http://www.miditrax.com
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 10/31/00
Time: 10:49:38 PM
Remote Name: 152.163.206.208
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; AOL 6.0; Windows 98; Win 9x
4.90)
Name: Betsy Callahan
Organization: Cornerstone Services Inc.
Email: csinc@boone.net
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 10/31/00
Time: 3:35:51 PM
Remote Name: 208.19.72.79
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; Windows 98; Compaq)
I have been in touch with Ila Nofziger. We are service providers in Boone,NC with many ideas & much knowledge of the systems. Please feel free to contact us, our mission is advocay & information sharing as much as anything else. I cmend you for your efforts and keep you all in our prayers, I know what you face is not an easy road and certainly not one you planned on being on. Keep up the great work!
Name: Richard Wynne
Organization:
Email: rwynne@mlode.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://protection & advocacy
Should we contact you?: Yes
Date: 10/29/00
Time: 1:28:59 PM
Remote Name: 208.12.101.121
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.01; Windows 98; ezn)
I am a TBI suvivor, and am getting screwed by a NAZI police force
Name: Carolyn Tjoland
Organization:
Email: Carolyn105@aol.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 10/28/00
Time: 2:15:25 PM
Remote Name: 205.188.200.43
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; AOL 5.0; Mac_PPC)
Because of a friend's daughter who suffered a brain injury 2/13/00, I visited this site. I've been moved by your stories to tears of pain and grief, yet at the same time I feel your hope and faith and joy. Who would have ever known that so many "angels" are out there! Thank you!
Name: Carolyn Tjoland
Organization:
Email: Carolyn105@aol.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 10/28/00
Time: 2:14:26 PM
Remote Name: 205.188.200.43
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; AOL 5.0; Mac_PPC)
Because of a friend's daughter who suffered a brain injury 2/13/00, I visited this site. I've been moved by your stories to tears of pain and grief, yet at the same time I feel your hope and faith and joy. Who would have ever known that so many "angels" are out there! Thank you!
Name: Bradley W. Haar
Organization: Employment Solutions
Email: eccoemp@dtgnet.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: No
Date: 10/24/00
Time: 10:44:46 PM
Remote Name: 24.178.139.186
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; Windows 98; Win 9x 4.90)
Name: Madeline Lofthouse For Michael (survivor)
Organization: Wife,Best Friend,And full time caring companion
Email: Z1mika@aol.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 10/24/00
Time: 4:33:16 PM
Remote Name: 172.142.116.111
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows 95; DigExt; JUNO)
Name: Kenneth Schonert
Organization:
Email: KRSchonert@AOL.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 10/24/00
Time: 8:56:17 AM
Remote Name: 152.163.201.63
HTTP User Agent: Mozilla/2.0 (compatible; MSIE 2.1; AOL 3.0; Mac_68K)
Name: Mrs. Joan Wagner
Organization: n/a
Email: wagjobob@msn.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://familyoncall.com
Should we contact you?: Yes
Date: 10/19/00
Time: 11:41:19 PM
Remote Name: 63.22.148.205
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.5; MSN 2.6; Windows 95)
My husband had 12 Bleeds to the Brain in Oct. 1996 and I am his caregiver. So I was curious about your information.
Name: JoAnn Taylor
Organization:
Email: spoty@aol.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 10/10/00
Time: 1:32:38 AM
Remote Name: 152.163.197.199
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; AOL 4.0; Windows 98; DigExt)
Name: Shane Atwood
Organization:
Email: s_atwood69@hotmail.com
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 8/15/00
Time: 7:01:54 PM
Remote Name: 4.54.185.230
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.01; Windows 95; SPINWAY.COM)
hey, well i was looking on the internet when i came across this page and lovin it! i am a tramatic brain injury survivor. on sept. 25th it will be one year since the accident and i was looking for help and support out there. i need to know that i am not a lone. so if you could write me back and try to help i would appreciate it. thanx! shane
Name: Bob Schindler
Organization: Terri Schiavo-Schindler
Email: bobschindler@hotmail
Home_Page: http://www.terrisfight.or
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 8/13/00
Time: 4:41:16 PM
Remote Name: 205.188.199.43
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; CS 2000; Windows 98; DigExt)
Name: Heather Mayer
Organization:
Email: feathermaster27@aol.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 8/13/00
Time: 12:47:52 PM
Remote Name: 208.49.238.132
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; AOL 5.0; Windows 98; DigExt)
I am in need of help..please
Name: terry houlihan
Organization: none I live with TBI for now
Email: houville@webtv.net
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://oprah Winfrey 5.7
Should we contact you?: Yes
Date: 8/5/00
Time: 11:00:54 PM
Remote Name: 209.240.200.135
HTTP User Agent: Mozilla/3.0 WebTV/1.2 (compatible; MSIE 2.0)
I came out of coma my wife told me our 7 year old son was dead,andlater of her battles with doctors.She has been my caregiver,our 5 year old twins caregiver,until the children's doc decided foster care was better!Over cold dead bodies,we sent kids to live at wife's brother home while we battle docs,S.S.I,insurance,fate,etc......I've learned some expensive lessons.I'm very lucky person,most people say I LOVE YOU they don't know what it really costs,my wife suffered so much yet if I died she would have killed herself kids ornot deppresion can do as much damage as anything.Carry on people fight the GOOD FIGHT WE CAN WIN!!!THANKS FOR THE SOAP BOX LOVE,TERRY
Name: Edward Ziegler
Organization:
Email: z-man4u@erols.com
Home_Page:
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 8/5/00
Time: 3:57:10 PM
Remote Name: 207.172.244.21
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows 98)
Insufficient space to list my home page. http://careersupport.net/millhouse
The Mill House is a new program for individuals with brain injuries that I have been participating at since it opened (August, 1999). I developed the Web Site as a learning experience and would welcome any feedback.
Name: Connie Cannizzaro
Organization:
Email: spumpkin@capital.net
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 8/4/00
Time: 11:31:42 AM
Remote Name: 209.23.10.177
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows 95;
CNETHomeBuild051099)
My daughter Cheryl had a severe anoxic brain injury on Oct 5, 1997. I might of contacted you before. She still lives at Hilltop Manor brain injury rehab, which has really changed since the new owners took over to a nursing home. It would be hard for me to take her home, because my son Michael had a kidney transplant and still has some problems. I am also a single parent. I am only one mile from the facility. I take her home for visits and to the mall and moves. Cheryl still can't talk, walk, move legs arms or hands is blind and on a feeding tube. She does smile and laugh outloud quite a bit. Cheryl is 21 now and this happened whens he just turned 18. Cheryl also has a baclofen pump in her stomach for spasticity.
Name: Sue
Organization:
Email: growll@sssnet.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://www.biausa.org
Should we contact you?: Yes
Date: 8/1/00
Time: 9:49:35 AM
Remote Name: 12.4.179.30
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows 98; DigExt)
Have a 28 year old son suffered TBI in 1991. He has been living independently for the last 6 years. The day to day frustrations with the system, his stubborness and the helplessness in general is sometimes unreal.
Name: Cindy Lovenvirth
Organization: Brain Injury Assn of Florida
Email: info@biaf.org
Home_Page: http://www.biaf.org
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 8/1/00
Time: 9:27:07 AM
Remote Name: 199.227.189.59
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.5; Mac_PowerPC)
Great site! I am currently redesigning our site and will be happy to put a link to your site when the new site is up. I will also use your site as a resource while creating the new site. Thank you for all your hard work.
Name: Deana Aldrich
Organization:
Email: deje396@aol.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 7/29/00
Time: 3:47:50 AM
Remote Name: 205.188.192.46
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; AOL 5.0; Windows 98; DigExt)
Looking for information on short term memory and it's effects.
Name: Patsy Fowler
Organization:
Email: pgf10@sccoast.net
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 7/22/00
Time: 10:18:02 AM
Remote Name: 207.144.102.216
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; Windows 98)
Name: sylvie
Organization: Headway
Email: T3BENZ@aol.com
Home_Page:
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 7/16/00
Time: 6:19:41 AM
Remote Name: 152.163.197.82
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; AOL 4.0; Windows 98; DigExt;
tco2)
A wonderful site being a care giver this site is what all care givers need,The need to feel we are not alone thank you for this wonderful site sylvie.
Name: Antonia Moser
Organization: tbi survivor (ha)
Email: MOSERA@prodigy.net
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 7/10/00
Time: 9:49:47 AM
Remote Name: 209.253.215.18
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows 98; DigExt)
Name: Brenda Rue
Organization:
Email: rue5@penn.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 7/9/00
Time: 7:37:21 PM
Remote Name: 206.229.116.82
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows 98; EASY INTERNET;
DigExt; TUCOWS; ezn/32/62/m)
Name: Laura Makuaole
Organization:
Email: renowahine@prodigy.net
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: No
Date: 7/8/00
Time: 9:37:21 PM
Remote Name: 64.197.75.181
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; Windows 98; Compaq)
Just found your site and I hope it will help me find answers to my questions:) ~Laura head injury in 1992
Name: Kathy Reynolds
Organization:
Email: reynoldsnagem@aol.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 6/30/00
Time: 11:51:09 PM
Remote Name: 205.188.198.31
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; AOL 5.0; Windows 98; DigExt)
Name: Victor S. Whitehead
Organization:
Email: sundown@wt.net
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://www.protection and advocacy.com
Should we contact you?: No
Date: 6/30/00
Time: 10:40:41 PM
Remote Name: 205.230.159.22
HTTP User Agent: Mozilla/4.04 [en] (WinNT; I ;Nav)
You are filling a much needed role.
Name: Linda Miller
Organization:
Email: Lindam5552@netscape.net
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 6/27/00
Time: 3:41:32 AM
Remote Name: 63.29.84.48
HTTP User Agent: Mozilla/4.72 [en]C-CCK-MCD NSCPCD472 (Win98; U)
Karen you're always here for us. Thank you
Name: kiwiDan
Organization:
Email: newstart_nz@yahoo.co.nz
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 6/27/00
Time: 2:30:22 AM
Remote Name: 210.55.12.251
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows 95; DigExt)
fell 6ft head first hit head on a rock 4/14/97 not work since..left front lobe damaged not able to work again..
Name: Teri Belotti
Organization:
Email: TBImom@aol.com
Home_Page:
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 6/22/00
Time: 9:50:49 PM
Remote Name: 152.163.207.203
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; AOL 5.0; Windows 98; DigExt)
I am mother and caregiver to my almost 17 year old son, Jason. He was TBI at age 12 by a speeding golf ball. You may read his story at this URL:http://pages.ivillage.com/bh/tbimom/Jason.html. It is so nice to see other parents getting down right mad at the system and want to do something about it. I am not one of those meek, quiet Mom's that just sit back and believe what the Doctor's, Lawyers and Social Securtiy people think I should "just do." I want changes and and much better education and understanding of all brain injuries, and I am determined to be heard and help make changes. Thanks for this wonderul site. You may see mine TBI site at this URL:http://pages.ivillage.com/bh/tbimom/index.html. Angel ((((HUGS)))) Teri <BR> <center><img src="http://pages.ivillage.com/bh/tbimom/images/Teri.bmp">
Name: KAREN LEE KRANZ
Organization: TBI SOCIAL NETWORK
Email: karentbisocnet@aol.com
Home_Page: JOIN THE TBI SOCIAL NETWO
How did you find us?: Followed a Link
Link_Followed: http://www.angelfire.com/ca/kktbisocialnetwork
Should we contact you?: Yes
Date: 6/18/00
Time: 8:08:54 PM
Remote Name: 24.160.32.197
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; MSN 2.5; Windows 98; DigExt;
JUNO)
Dear Ila, First of all, I would like to give you the ENTIRE NAME OF MY WEB SITE since I couldn't fit it all in above. It is JOIN THE TBI SOCIAL NETWORK.
Secondly, I would like to thank you for all the hard work you have been and are doing on behalf of TBI survivors and caregivers. WHAT A JOB YOU HAVE TAKEN ON, despite the 24/7 care you need to give to your daughter. YOU ARE A VERY SPECIAL AND INCREDIBLE LADY, MY FRIEND!!!
Now, I'd like to share my story with you and your viewers. My spelling and focus have been the pits since my TBI so I hope this doesn't ramble too much.
Thank God I had a daily routine of bringing downstairs a cup of coffee for my Dad, putting the newpaper on the kitchen table for him, putting out the mail and turning off the front porch light. I had always done this routine between 8 - 8:30am every single morning.
One morning, it was 10:30am and I still hadn't done any of this. Worried, my Dad came upstairs where he found me paralyzed and barely able to respond mentally, other than to say "Dad, I fell out of bed 5 times!" He was unable to get me to my feet and called the paramedics. I had had numerous symptoms for a month that SOMETHING was wrong with my brain...a loss of balance and coordination, loss of my ability to do math, type or read my piano music. Unable to calculate, even 2 + 2 without counting on my fingers. Such horrible dizzy spells that I had to grab onto nearby furniture to keep from falling backwards. Too grogy to wake up in the morning...feeling like I had a bottle of sleeping pills in my system. Many short term memory problems. Terrible migraine headaches that wouldn't go away no matter what medication I took for them.
My Dr. didn't know what was wrong with me, nor did he even refer me to a hospital for a cat scan or MRI when I went to see him. He determined that I didn't have a stroke, but didn't offer any other explanations for these symptoms. I was supposed to see him the next week. But I never made it because just 5 days after having WALKED into his office, my Dad found me paralyzed. At the hospital, a catscan and MRI of the brain revealed an enormous mass that had permeated my ENTIRE BRAIN plus I had considerable swelling to my brain. They told my Dad that they thought I had brain cancer and that considering the size of it THROUGHOUT my brain, they were certain I wouldn't "make it"!!! But a surgery revealed the mass to be, not cancer or a tumor, THANK GOD, but a streptococcus baterial infection. They told my Dad, "Mr. Fleishman, we don't think your daughter will make it through the night. Usually an abscess this large and extensive would have killed her within 10 hours. We don't have much hope for her. We sorry."
They drained the abscess, and according to Dad I was very talkative that first night. But then I slipped into a coma, and was rushed back for a second (emergency) surgery. They found that the abscess had not only returned, but that it was DOUBLE IT'S ORIGINAL SIZE and they drained it again. At this point they held even LESS hope for my survival. This bacteria seemed to be doubling itself throughout my brain by the hour!!!
After the second surgery, I experienced an incident of respiratory failure. What else in my system would break down....one could only guess, but it looked terribly bleak.
To make a long story short and to get to the point, my story of recovery is too long to tell here. So, let's get to the past 3 or 4 years since I have been discharged from my extensive out-patient treatment with physical, occupational, social, speech and cognitive therapies.
Once I had been discharged from the hospital my best girlfriend dumped me. I was no longer able to be the "caretaker" in our relationship as I had been for over 6 years. Now, I was the needy one and she just couldn't handle that. I learned in my rehab program that this is a very common experience. I met others who also had lost good friends. I DECIDED TO DO SOMETHING ABOUT IT!!! I founded a support group for TBI survivors and caregivers. My website explains who we are and what we do. I have been running it since 2/97. Then, also in 1997, I entered a 2 year program at Santa Monica College for ABI's. This was my very first time back in school since I had earned my Master's Degree in Guidance and Counseling at Wayne State University in Detroit (1970). I loved this college program and became a very active college student. Joined campus clubs, became an officer in them, initiated a petition drive for safer student parking on campus, and more parking spaces, collected 3300 signatures, presented them to the Board of Trustees, college President, got a story about myself written in the college paper (also on my website), won some campus awards, and now I am a client of Vocational Rehabilitation and in computer training. (How ironic...I had worked for 19 years as a rehabilitation counselor and psychotherapist in private practive when I live 19 years in Michigan).
At the same time, I am still running the TBI SOCIAL NETWORK, caring for my Dad (87yrs.) and 3 pooches who are my life.
My life is full and rewarding. I have many dreams for the future. Funny, Doctors didn't think I would make it...three times....during my journey they expected me to die. Boy were they ever wrong. They forgot to even consider or factor in to the equation, our human spirit to survive, to live, the intervention of God (who can ever predict that!!!). How dare they be so foolish. How many people die because the Drs offered no hope when HOPE WAS THERE and they just couldn't see it because it doesn't fit their medical model to suit them.
Now, sorry to go on, but you might like to hear about my Dad too. I don't want to write a book here, so let me simply say that he has been absolutely INCREDIBLE AS A CAREGIVER. He is my hero and the wind beneath my wings. PLEASE, PLEASE READ MY TRIBUTE TO HIM ON MY WEBSITE. It is called "A Father's Love: From A Daughter's Perspective". You caregivers might find it very touching. But, I would like to add one more thing that IS NOT on his page, because I haven't added it yet. Last year my Dad had a cancer (sabecious carcenoma (sp?) on his nose. Half of his nose was practically removed so it wouldn't metastasize (sp?). Last month I said to him, while we were out to breakfast together, "Dad, everytime you look in the mirror and see your nose, does it bring back horrible memories of your battle with cancer and all your surgeries, and pain and all that?". His reply: "no...I don't even think about it. NO TRAUMA CAN COMPARE TO YOUR DAUGHTER HAVING A TRAUMATIC BRAIN INJURY, OR THINKING THAT YOU WERE GOING TO LOSE HER!!!! NOTHING!!!"
At that point I better realized what Dad must have been going through the year of 1996 and I loved him even more (if that is even possible). He never "burdened" me with the stress and fear he must have experienced. GOD LOVE AND BLESS HIM!!!
THANKS TO ALL OF YOU FOR READING THIS. I HOPE I DIDN'T TALK YOUR HEAD OFF. LOVE, KAREN LEE KRANZ
Name: Bob Schindler
Organization: Terri Schindler Schiavo Foundation
Email: trr1203@cs.com
Home_Page: http://terrisfight.org
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 5/26/00
Time: 10:33:23 AM
Remote Name: 205.188.199.154
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; CS 2000; Windows 98; DigExt)
Thank you for all the assistance you are providing in our fight to keep Terri alive.
Name: Joseph Pelt
Organization: For my daughter
Email: J-pelt@worldnet.att.net
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://www.headinjury.com/linktbisup.htm
Should we contact you?: Yes
Date: 5/24/00
Time: 6:03:19 AM
Remote Name: 12.76.115.157
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.01; Windows 98; AT&T WNS5.0)
My daughter was involved in a car accident and has been in a coma since. I know little about head injuries and coma's.
Name: Patricia C. Martin
Organization:
Email: jtmarco@intercom.net
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 5/21/00
Time: 8:29:24 PM
Remote Name: 216.240.101.36
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows 98; DigExt)
This is a wonderful Foundation! My hope is that it will take off like a rocket. You have already helped many people, and I am sure there will be many more. I know I will be there to help in any way I can.
Name: Melissa Carleton
Organization:
Email: Carletonbb@AOL.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 5/21/00
Time: 1:38:36 PM
Remote Name: 152.163.201.191
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; AOL 5.0; Windows 98; Compaq;
DigExt)
I live in California and care for my 23 year old son who has an anoxic brain injury (7/99) due to cardiac arrest. I am always interested in what others have to share.
Name: Barbara Emery-King
Organization: Bev's troubles
Email: King378001@aol.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 5/21/00
Time: 9:23:39 AM
Remote Name: 205.188.197.184
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; AOL 5.0; Windows 98; DigExt)
My sister was in a MVA on 3/21/00. She has brain injuries from the accident.She is curently in a rehab hospital but will be coming home before to long. I really have never been around this situation before. I am looking for all the help & guidance I can reveive. I will be her caregiver when she leaves the hospital. My sister & I are the best of friends & I will do anything in the world for her.
Name: Frances Toney
Organization: Mechanicsville, Virginia
Email: xzzu@aol.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 5/21/00
Time: 7:20:41 AM
Remote Name: 205.188.196.52
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; AOL 5.0; Windows 98; DigExt)
You three did an outstanding job. Keep up the good work.
Name: Paul D. O'Brian, PT, CSCS
Organization: Accelerate Physical Therapy, P.C.
Email: XLR8PT@aol.com
Home_Page: hometown.aol.com/xlr8pt
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 5/19/00
Time: 6:15:07 PM
Remote Name: 205.188.198.189
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; AOL 5.0; Windows 98; DigExt)
Congratulations on your efforts! The internet may be wonderful medium to communicate so many concerns and provide many people support. Keep up the great work!
Name: Elaine
Organization: Bev's troubles--help!
Email: bptaylor2001@earthlink.net
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 5/14/00
Time: 4:34:54 PM
Remote Name: 168.191.221.228
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows
98)::ELNSB50::00000510028001e00233009d000000000502000800000000
My sister, Bev--45 yrs. old-- was in a car accident on March 21, 2000--she has brain damage--the 3&6 cranial nerves are both damaged--she's been in and out of six hospitals--I need your help--my name is Elaine--her older sister--47 yrs. old.
Name: Debbie Miller
Organization:
Email: gemini8400@juno.com
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 5/12/00
Time: 2:34:09 AM
Remote Name: 209.245.15.177
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.01; Windows 98; FREEI v2.53)
I'm a single mom with a 27 yr. old son, Brian, with a TBI from a motocross accident. He is 6'2" and 229 lbs.and quite a hand full. I have been taking care of him since 7/97 by myself.He had a brain stem injury and he is considered a quad.I was told he would never come out of a veggitated state and they wanted to put him in a nursing home, not as long as I am alive and able to take care of him. They fought me not to bring him home. I did anyway and am glad I did even though the stress and frustration of the system has taken a toll on me. He is far from in a veggitated state now.The differance was noticed from the very first day I brought him home and would be even better if we could get any one to care. I'm so tired of hearing "that's what happens with brain injury" whenever there is a problem instead of finding solutions. I'm tired of fighting the system and Dr's that try to give you no hope and no answers.I'm tired of not getting respite. The system has not only cheated my son on rehabilitation but has also made me feel very disabled. I'm tired of fighting. But the rewards I get from my sons progress keeps me in the war. I can relate to almost every story on this site. I'm sorry to hear there are so many of us out there and the system hasn't done anything. What do we have to do to change this?
Name: Kent and Darlene Manning
Organization:
Email: taps@hiline.net
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 5/11/00
Time: 7:29:45 PM
Remote Name: 208.145.65.24
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows 98; DigExt)
We are the parents of Chris and Elaine. Elaine's story appears in your web site. It has not been easy caring for Chris but we would not have it any other way. We love him and will always take care of him. He has not changed much from when he came home but we feel that there has been some improvement. He smiles somtimes at things that are said and while he can still not express himself it is something more than he used to do. Our lives now revolve around his needs. Our youngest son is very understanding about his brother's special needs. They seem to have a special bond between them. Johnny understands what Chris is trying to express sometimes even though Chris can not talk . Chris appears to know when his brother is sitting with him as he never tightens up when his brother is beside him. This brings us hope for further recovery. We believe that God will answer our prayers and Chris will begin to talk to us one day and come out of his current state. Our faith, prayers, and people like you will carry us through until then. It has been a big help to us to talk to others who are going through what we are and understand all the trials involved in being caregivers.
Name: George Allen
Organization: Michigan State University
Email: alleng@msu.edu
Home_Page:
How did you find us?: Followed a Link
Link_Followed: http://www.headinjury.com/linktbisup.htm
Should we contact you?: Yes
Date: 5/8/00
Time: 1:33:41 PM
Remote Name: 35.8.142.131
HTTP User Agent: Mozilla/4.7 [en] (WinNT; I)
Am creating brochures for family caregivers of TBI sufferers. Would like to share information and ideas.
Thanks!
Name: Deb Trennepohl
Organization: Care Giver
Email: trennepohl@cyberport.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 4/28/00
Time: 8:32:02 PM
Remote Name: 204.134.119.97
HTTP User Agent: Mozilla/4.72 [en] (Win95; I)
I am a care giver to my son who is almost 16. He suffered a TBI in 9/1998. I need help locating help for him. I am looking for a camp or somewhere he can go for a short time to possible learn to overcome some behavioral problems. My son is very alone now. He was once a very popular, smart (still is), and athletic boy. He has no friends now besides our family. I am afraid that he will not receive treatment that is available because I don't know where to look or how to find it. Please contact me if you can be of help. My name is Deb Trennepohl, 505-334-0432 (home), 505-334-2510 (work), or email me at the address given. Thank you so much for your web-site
Name: Donna Lamarche
Organization:
Email: d-lamarche@tamu.edu
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://www.headinjury.com
Should we contact you?: Yes
Date: 4/28/00
Time: 3:56:49 PM
Remote Name: 165.91.118.62
HTTP User Agent: Mozilla/4.51 [en] (Win95; I)
I haven't had much time to look over this site. I hope to do so later. My 17 year old son was in accident 9/1/99. We are very blessed to still have him with us, but it is very hard to not have the young man we use to have. At any rate, I am always glad when I find a site that I can get encouragement and hope from.
Feel free to contact me.
Name: vedasimmons
Organization: familiesusa
Email: vsimmons@familiesusa.org
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 4/27/00
Time: 2:59:24 PM
Remote Name: 205.252.20.99
HTTP User Agent: Mozilla/4.7 [en] (Win98; I)
The stories I have read are very touching and supported and they really need to recognize these children. I admire your group keep up the good work.
Name: Kristi Schaefer
Organization: Brain Injury Support Group of Portland
Email: coppercreek@bigplanet.com
Home_Page: http://www.pacifier.com
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 4/26/00
Time: 4:44:24 PM
Remote Name: 4.54.68.218
HTTP User Agent: Mozilla/4.04 [en]C-BP951 (Win95; U)
What a wonderful idea. I'm excited to have a new resource to share with survivors. Kristi
Name: Robert Royal
Organization:
Email: miracleman@msn.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 4/24/00
Time: 6:47:11 PM
Remote Name: 63.25.241.10
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; MSN 2.5; Windows 98)
Deborah Garner, mother of Robert Royal, tbi injury 3-15-97 at the age of 14. We were told by the doctors that Robert would not live and if he did he would be a vegetable. Robert has just started to walk a little, speech with low volume and slurred but comprehensible.Looking to go to Humble, Texas this summer to a water therapy rehab. Does anyone know if there is a TBI support program in Humble or Houston, Texas? We need help finding affordable accommodations. Thanks, Deborah Garner 507 Red Hill Road Mt. Olive, North Carolina 28365 919-658-9192
Name: Jenny Houston
Organization: Northern California TBI Grassroots Legislative Committee
Email: ladeyj@ix.netcom.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 4/24/00
Time: 5:15:16 PM
Remote Name: 165.236.178.150
HTTP User Agent: Mozilla/4.7 [en] (Win95; I)
Ila, ladeyj here. Is there someway i can put a contact request on your site to attract all California TBI families for political action. Thanx. jenny
Name: Stacey Anne Gordon
Organization: mom of 6 and cargiver of husband
Email: momuv@hotmail.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://www.oxygen.com
Should we contact you?: Yes
Date: 4/21/00
Time: 11:47:25 AM
Remote Name: 216.79.112.96
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.01; Windows 98)
As the wife of a stroke survivor and mother of 6, I took great comfort in the words read above. It is such a wonderful treat to hear or see your feelings being expressed by others. I so tire from having to explain myself to people on the outside. They try to be comforting, but end up invalidating my heartfelt distresses. I am fortunate in the sense that my husband is a kind and loving father to our kids, but he is not the man I chose to spend my life with. His personality, likes, dislikes, wants, and needs have so changed-I feel a great loss of partnership. There are times, most often, that I feel I am acting as a single parent. However, if parenting were the bulk of my life, somehow I think things might be easier. Our children range in ages 18 down to 5 years old. I have had to access all the social services available to us and am now working waiting tables to try and make ends meet. My husband was self employed for 16 yrs. and worked until the morning of his stroke. From that moment on, he has no concept of our finances, expenses-how bills are paid or what is required that we live from day today. I am sorry if I tended to ramble on, but I felt as though I had found someone or someplace that would truly understand the emotion involved in maintaining life after brain injury. Thank You So Much for Allowing me to Vent !! I cannot express how much it means. Stacey Anne Gordon
Name: Carrie Morris
Organization: Brain Injury Association of Texas
Email: donandcarrie@earthlink.net
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 4/19/00
Time: 10:42:08 AM
Remote Name: 63.25.2.100
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows 95; DigExt)
Quite exciting to find this site. Those of us who care for our loved one without assistance from medical community need to have an arena in which to express our thoughts/concerns.
Name: loralie n. schaus
Organization: Head Injury Association of Nevada
Email: seanchai43@aol.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 4/18/00
Time: 6:44:46 PM
Remote Name: 205.188.199.47
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; AOL 5.0; Windows 98)
I am amazed. Thank you. loralie
Name: Lynae Bombaro
Organization:
Email: LBombaro@aol.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 4/14/00
Time: 10:07:28 PM
Remote Name: 205.188.192.161
HTTP User Agent: Mozilla/2.0 (compatible; MSIE 3.0; AOL 3.0; Windows 3.1)
lla:
Thanks for leading me here from the TBI caregivers list.
Lynae
Name: Normand Cabral
Organization:
Email: SCRATSY@AOL.COM
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: No
Date: 4/12/00
Time: 11:27:58 PM
Remote Name: 152.163.201.66
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; AOL 4.0; Windows 98; DigExt)
Our daughter sustained a closed head injury which resulted in TBI in a mva 12/01/98. We have been members of John Lyons [CARE] SUPPORT group since June 1999. Have learned much from caring people like Ila Nofzinger among others.
Followed her link to this site today. Have not yet fully explored the site and have no comments at this time about the site. However any site that offers knowledge about TBI has to be OK.
Name: karen liebman
Organization:
Email: jdliebman@aol.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: No
Date: 4/11/00
Time: 10:53:54 AM
Remote Name: 205.188.200.43
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; AOL 5.0; Windows 98; DigExt)
Name: Barbara Westphal
Organization:
Email: bwestphal@trammellcrow.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 3/21/00
Time: 8:33:47 AM
Remote Name: 12.6.11.162
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows NT; DigExt)
Name: Janet L Kieffer
Organization:
Email: nkjl@clover.net
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 3/20/00
Time: 3:07:36 PM
Remote Name: 209.151.186.103
HTTP User Agent: Mozilla/4.7 [en] (Win98; U)
I am a mother looking for information on pvs my son had mva 7/10/98 thank you Janet K
Name: Robert Nofziger
Organization:
Email: jddar@henry-net.com
Home_Page: www.jddar.km.net/
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 3/17/00
Time: 6:05:52 AM
Remote Name: 207.19.167.16
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows 98; DigExt)
I am Debbie's uncle and appreciate the opportunity of seeing this web page. God bless all of you.
Name: Louise P. Martin
Organization: Alzheimer's Association
Email: louise.martin@alz.org
Home_Page: www.perigee.net/~alz
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 3/8/00
Time: 3:22:05 PM
Remote Name: 216.189.62.19
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows 95; DigExt)
Good luck in the good work you are doing.
Name: Sammie DeSpain
Organization: caregiver
Email: despain1@prysm.net
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 3/4/00
Time: 10:58:06 PM
Remote Name: 208.206.76.44
HTTP User Agent: Mozilla/3.01Gold (Win95; I)
I found your web site and read the wonderful stories and found the strength to fight my fears, fatigue, and loniness. My son suffered a closed head injury almost three years ago and he and I have been surviving at home after 272 days in acute care facilities. Thank you so much!
Name: Jan Lehnert
Organization: Total Care
Email:
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 3/2/00
Time: 11:34:34 PM
Remote Name: 152.163.205.68
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; AOL 5.0; Windows 98; DigExt)
what a wonderful webpage Ila and the rest!!! i've started reading a few things, but i'll have to come back and finish, now i can mark it as a favorite. you all do a remarkable job!
Name: Tom christie
Organization: Individual
Email: TRCWINSLOW@AOL.COM
Home_Page: http://members.aol.com/tr
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 2/25/00
Time: 11:24:12 PM
Remote Name: 152.163.206.193
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; AOL 4.0; Windows 95)
Ila was kind enough to distribute this URL at the BRAINSTORM permanent, private TBI chat room on AOL
Name: donna huddleston
Organization:
Email: dstrickl@hornet.dmsc.k12.ar.us
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://www.home.tbinet.org/raf/guestbook.htm
Should we contact you?: Yes
Date: 2/25/00
Time: 3:55:59 PM
Remote Name: 170.94.241.241
HTTP User Agent: Mozilla/4.06 [en]C-compaq (Win98; I)
Name: Carol W.
Organization:
Email: camcmw@esva.net
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 2/8/00
Time: 7:24:16 PM
Remote Name: 207.7.73.13
HTTP User Agent: Mozilla/1.2N (Windows; I; 16bit)
Joan, I'll come back when I have more time to browse. You have done (and are doing) a wonderful job. Thank you for sending me the address--I'm bookmarking it for the future, and for sharing.
Name: Angie
Organization:
Email: hmomo4byz@aol.com
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 2/4/00
Time: 9:50:07 PM
Remote Name: 152.163.197.54
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; AOL 5.0; Windows 98; DigExt)
Hi! My cousin, Darrell has been in a coma (tbi) for over a month now. His wife and I are trying to gather information to help us help him. I really enjoyed your site and will visit again with his wife. God Bless
Name: Jeff Jones
Organization:
Email: jcjones@lodinet.com
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 2/4/00
Time: 12:29:48 PM
Remote Name: 206.101.173.167
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; Windows 95)
I suffer from a TBI due to a car accident over 2 years ago. We are trying to financially survive until the legal case is settled. Any help for my attorney would be appreciated.
Name: barbara jean
Organization:
Email: bjscloset@webtv.net
Home_Page: Traumatic Brain Injury
How did you find us?: Word of Mouth
Link_Followed: http://community.webtv.net/bjscloset/TraumaticBrainInjury
Should we contact you?: Yes
Date: 1/31/00
Time: 7:10:40 PM
Remote Name: 209.240.200.95
HTTP User Agent: Mozilla/3.0 WebTV/1.2 (compatible; MSIE 2.0)
I have been reading for hours! I put my URL into the followed link as that's where you'll find a link to your web site! I am honored and proud to be able to link to you site! Coming from a survivors point of view, I cried when I saw the stories and felt the stuggles as they are some of the same struggles I'm still facing (25 months post truama). It's nice to know that others are out there who really CAN make a difference. I look forward to further contact as time goes on. barbara jean
Name: Betsy Leader
Organization: None
Email: bleader@slonebroadcasting.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://www.headinjury.com
Should we contact you?: Yes
Date: 1/31/00
Time: 5:34:51 PM
Remote Name: 209.12.12.161
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows 95; DigExt; TUCOWS)
I have a brother with a TBI. I am looking for information to help him and my family. He suffers repeated seizures. Can anyone help?
Name: Lori Sparkman
Organization: Carolina Raptor Center
Email: lorisparkman@mindspring.com
Home_Page: http://www.birdsofprey.or
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 1/31/00
Time: 2:48:02 PM
Remote Name: 165.247.197.88
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; Windows 95)
Name: Rob Bierregaard
Organization: Carolina Raptor Center
Email: rbierreg@email.uncc.edu
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 1/31/00
Time: 9:24:08 AM
Remote Name: 165.247.213.221
HTTP User Agent: Mozilla/4.7 (Macintosh; U; PPC)
Name: Patsy Juanita Bayer
Organization:
Email: nannan@zebra.net
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 1/28/00
Time: 11:27:25 PM
Remote Name: 209.12.13.166
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.01; Windows 95)
My son Jeffery suffered cardiac arrest after huffung gasoline fumes in1992 We are 8 yrs out he remains in an infantile state. We have ins. and medicaid but can not seemto find any help for him other than his primary dr. I would be happy to help in any way I can, from home as I as unable to leave most of the time except to go to work. When I'm wrking my husband care for our son and vice versa. We get some rspite care but not much. I'll do what i can
Name: Jim Keegan, Associate Pastor
Organization: Bethel Presbyterian Chruch
Email: Jekeegan61@AOL.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 1/26/00
Time: 5:02:52 PM
Remote Name: 152.163.197.69
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; AOL 5.0; Windows 98; DigExt)
Ila, Thanks for recommending your site. I will come back to it later to check it out further.
In Christ,
Jim
Name: Teri Epp
Organization: Caregiver/Mom -board member for local head trauma support project
Email: gettingbusy@hotmail.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 1/21/00
Time: 4:40:03 PM
Remote Name: 209.21.20.143
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows 98; DigExt)
What a wonderful place you have here. I am in Sacramento and have been the caregiver of my daughter Brandie age, 18 who was injured 11 years ago in an auto accident. I am and have always been(except for about a minute back in the 80's) a single parent( there is and never was no dad around-long boring, irrelevant story) and despite being a very savvy advocate, my daughter has consistently slipped thru the cracks in the system. I am having and have always had a very hard time with many things.I am spunky, resilient, cheerfully optimistic. pragmatic, realistic and absolutely dedicated to helping my daughter live a busy, happy life.I am also so tired and weary and exxasperated with the system -that I would like to blow up some building or at least have the opportunity to punch some person in power right in the kisser and as much as I love and adore my daughter who can make me laugh and cry all in the space of 5 minutes. sometimes I would like to rip her arms off and beat her with them. I don't of course.!She is much stronger than I and without arms I would have to hand feed her and she would no doubt be a spitter!There is no ambilavance like the ambivalence of being a caregiver- trying to be loving supportive, set limits, be structured, not take the abuse and sometimes violence personally(HAHAHAHA) , find time for yourself(HAHAHAHA), fight and advocate for your loved one , stay slim and witty, good natured and positve, deal with the grief , sadness, isolation, anger , fear of the future, the ostracizing that inevitably takes place with friends and family, the challenge to squeez a nickle so hard that the buffalo poops(!) and to make top ramen 17 different ways,trying hard not to succomb to being a martyr and to count my blessings -which- while they are always there- are many times obscured, I try to stay grateful and help others and it is the best therapy. I have a support group and have applied for many resources but we seem not to meet the criteria for them- even with great advocy and documentation and wonderful professionals who have gone way beyond the call of duty to try and help us get approved for services..Such is TBI. We are very typical. Mental Health won't touch her in spite of the fact that she has significant psychiatric problems- because she does not have an axis one diagnosis. Regional Centers have turned us down in 3 different locations in Ca (we go to fair hearing with Alta next month)becasue she has a high IQ, however, her cognitive deficits(frontal lobe injury at age eight)make her very much like a retarded adult in terms of needing supervision to be safe and not being able to remember stuff, monitor,her own behavior, use good jusdgement,plan her actions, understnd anything abstract,and is as typical with frontal lobe injury - she has little insight into her deficits and this makes Brandie very much impaired weven tho she can read at a 6th grade level and is very verbally articulate. and etc, She is 18 but still plays with dollies, colors , plays with younger children and is like a 9 year old in many ways-even though intellectually she is very bright. As you know-with TBI _IQ is irrelevant. We have been turned doen for In HOme Support Serics becasue she sounds and looks just a little odd, but can be very articlulate for 20 minutes.You have to follow her around in real life to see the problems. They don't show up on standardized IQ test. Brandie has had diabetes and been on insulin since she was 2 and takes 4 shots a day. She can do her own shots and blood sugars, but doesn't know when , how much, etc. COCNSISTENTLY and what she knows today, she may not know tomorrow. She knows what to eat on her food plan in theory(she knows alot in theory and can tell you all about it and sound quite convincing) but can't always apply what she knows.She also had Tourrettes Sydome(mild) and ADHD before her accident. She is beautiful and very immature and gragarious and at great risk of being victimized. I have been fortunate to live in a mobile home park full of nosy seniors, half of whom are deaf(so they don't hear her when she is throwing her tantrums or cussing) and some of whom have dementia or Alheimers(so she kind of fits right in.) The intact folks kind of watch out for the ones that need help and so as a result , Brandie can toodle around the park and has surrogate family(which is good becasue I don't have any willing to be involved with her) and be fairly safe. I can't let her out of my sight in a regular neighborhood. I can leave her alone for maybe 1/2 hour if a neighbor checks in on her but she has such bad judgement and has caught her clothes on fire, let strangers in, left the house, etc. so I seldom do it. IHSS sited all this neighborly support as one reason she wasn't eligible for help.They figured that if she can give a shot -she should be able to other things- besides- she wants to sound good- doesn't want people to know that she is impaired and works hard and efficiently at covering up. She is physically just fine(How fortunate we were with that) and was in a coma for a month and had an amazing recovery. But that frontal lobe stuff- the intrusive, overbearing, nasty ,impulsive, often violent stuff coupled with lack of insight of her disabilty, lack of judgement and the immaturity that is to be expected with a frontal lobe injury in a prepubescent child make her a reall handful. I have been saying for years that I can't keep doing this by myself.If I dropped dead at this point, there would not be an agency in CA that would case manage her.Blah Blah Blah. It is- as you know- 50% of the battle with dealing with TBI to fight for services and in Ca you better have a good settlement(we don't) have great insurance(Brandie finally did get SSI and medical) have a 71 or below IQ and/or a seizure disorder to qualify for Regional Center Services(not that they have a clue as to what to do with TBI folk anyway!) or have a mental illness that makes you eligible for mental health services( which are few and far between and terribly unable to accomodate TBI anyway). Believe me . I think I have left no stone unturned.I have had medical social workers call ME for info becasue I have been researching resources for years and years and the most frustrating thing that happens is all the misinfomation about whats available and the wild goose chases you go on- to find that- you don't qualify for that service(A service that the doc, social worker, principal, BIA ETC...was sure you just hadn't checked out thoroughly). and the reasons you don't qualify? You have blue eyes instead of brown. You can qualify with blue eyes ONLY if the month you were born in has an "s " in it- unless of course there was a full moon the might you were born. Then you are out. Unless you have a family member who went to Woodstock. Then you qualify. Unless that family member used public transportation to get there. Then you're out. Unless you have a gas stove- now you're in again- unless you have had it less than a year and you are renting. on and on and on ...... It is material for a Seinfeld Episode and you better keep your sense of humor about it or you will put your head in the oven. I am sure this is not news to you. I know were are very lucky in some ways but I am so tired and frustrated. And There are so few options residentially for Brandie becasue of funding, partly and becasue of lack of services addressing TBI even if you do get funding.We are in Sacramento.Brandie is in the Easter Seal Help to Recovery Program from 9-3 since August. It is specific for Brain Injury and she is doing much better there than she was in the special ed programs for emotionally disturbed, mentally ill, and delinquent kids that she had been in for years. That is standard faire with higher functioning TBI kids in Ca. There are no TBI classrooms and so you have mental health people making misdiagnosis and making things worse. We go to support groups for caregivers and survivors thru the Head Trauma Support project. I am a very active Caregiver Volunteer and am on the board of directors. I see so many other people who have also fallen thru the cracks. We sometimes have people take 4 buses to get to the survivors meeting and people coming from 3 counties away becasue this is one of the few groups avail. I am exploring options for Brandie-If she was easy to take care of she could stay with me forever. But the ongoing stress of everyday difficulties has taken it's toll on me and I also know that she does better in a structured setting or with other people helping her- when I can just be "MOM" and not who she takes everything out on.I have been unable to keep a job because of how many appointments she has, transportation to and from programs, behavior stuff or health stuff that send her home from program early or make her not be able to go.I clean houses when I can but I an getting old and tired and hurt a lot. Have been taking computer classes to try and do something out of my home, eventually. Board and cares for TBI are scarce and those that take ssi are even scarcer- and you shouldn't send a dog to some of those. Regional Center has lots of group Homes for DD adults , but TBI folks blow out of them becasue of the behavior stuff. They have some TBI folks set up in supported living, but they are usually pretty independent and becasue of the diabetes Brandie will need lots of care. I don't know exactly what to do. I know that an answer will come. One lady rented an apartment across the street for her daughter(of sourse the family could afford to supplent her living expeses) and that way they could help and be close but still have some space.That young woman has bloomed like crazy with the opprtunity to grow and be on her own with lots of support, help and PROTECTON. That woman was also getting IHSS to help. Another family bought or rented a duplex with the same kind of idea. Some families(and I am primarily talking those who are dependent on public funding) rent a 2 bedroom apartment and give free room and board and a stipend to a college student working on their degree in Special ed, nursing, occupational therapy etc. They only last a few months becasue they usually burn out pretty quick but there are always more young enthusiastic people to call on.Lot of things are possible. I am writing to you at a time when I am at a crossroads.We have been in continuance for this regional center hearing for 14 months and will have a decision one way or the other by march, hopefully- but we do not have a very good chance of winning due to the previous refusals of other Regional Centers, and due to the mental health background that she has.(but she's not elible for mental health services as an adult, remember?) Protection and ADvocacy kindly offered to represent us against regional center( Iwaited 6 months for them to decide if they would take the case and then finally went down there and begged and cried and made them understand that my daughter is WORTH FIGHTING FOR! she is amazing in many ways, but needs support, protection, guidance and more than I can give her.It is unreasonable to expect me to be able to do this without respite, breaks, funding, support etc. and that is not news.If they say no then I will be trying to come up with some plan to help her. She will always live with me or near me and I don't know what will happen but I am learning options from other caregivers. But they have $$$$. I have no money and dont' see any coming. I don't know exactly how you could help Brandie and I, becasue I don't know what is going to happen, but I sure would like to hear some solutions that you have helped other caregivers with. I am a very resourceful person(I just can't type worth shit) and have done lots of fund raising, info and referral, and am a great asset to have if you need something and can't find it. I would be happy to halp your endeavor in anyway that I could to further your cause. In other words I am not looking for a handout. In the past when we were out of food and a church helped us, or our electricty got turned off and soemone helped us get it back on- I went and cleaned for them, or worked on the food closet, or took a perishioner to the doctor who needed it or worked somehow to thank them. They never asked for it, but I always did it. Even if you wind up not helping us, I would be more than happy to be available to your organization in any capacity that I might be of use. Also there are some other caregivers in this area who are in much worse shape than I(there but for the grace of God go I) and they should know about you.Well -I am not sure if I was supposed to write so much in such a little box but I have found it's always better to ask forgiveness than permission so - here you go.My phone number is 916-364-8092. my email address is gettingbusy@hotmail.com. Please forgive my typos as a friend just bulit this computer for me a cuple of months ago and I am just learning to use it.Hope to hear from you. I bet we know a lot of the same people.YOu are doing something so good, and so needed. And the hearts you have and committment to doing what's right shines very brightly.I'm waxing philosophical so I'll stop before I get mushy.-Sincerely Teri and Brandie Epp.
Name: Jean Beacham
Organization:
Email: Jbeacham4@prodigy.net
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 1/16/00
Time: 12:33:37 PM
Remote Name: 209.156.167.105
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; MSN 2.5; Windows 98)
Name: Pat Thompson
Organization:
Email: Irishtemp@aol.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 1/16/00
Time: 9:59:49 AM
Remote Name: 152.163.197.72
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; AOL 5.0; Windows 98; DigExt)
Thanks Ila for listening to me!
Name: Lori Graham
Organization: N/A
Email: lorigraham@prodigy.net
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://www.headinjury.com
Should we contact you?: Yes
Date: 1/11/00
Time: 11:51:19 PM
Remote Name: 209.254.166.100
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; Windows 98)
I contacted Miles Affleck a few months back with questions on behalf of my ex-husband who suffered a brain injury in a motorcycle accident. Miles was very helpful. This a wonderful site for support and I hope it continues to grow!
Name: Betty Rupp
Organization:
Email: bjrtaxer@aol.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 1/7/00
Time: 9:45:09 PM
Remote Name: 152.163.195.179
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; AOL 5.0; Windows 98; DigExt)
I heard of this site from Ila Nofziger, an old friend. I empathise with you all. As foster parents we took care of a brain injured child in the 70's and I still remember what a 24 hour job it was. Of course a foster child moves on and yours must stay.
Name: Diane Rankin
Organization: Brain Injury Association of NC
Email: diane.rankin@bianc.org
Home_Page: http://bianc.org
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 1/7/00
Time: 3:44:39 PM
Remote Name: 63.10.84.168
HTTP User Agent: Mozilla/4.7 [en]C-CCK-MCD NSCPCD47 (Win98; I)
I am the Brain Injury Assoication of North Carolina's Peer Counseling Coordinator. I work in the Regional Support Center. From my own observation we have very limited resources in the state. Two bills which were passed in the legislature to help us have been canceled due to the needs of the eastern part of the state. Support groups seems to be the most cost effective and efficient way to help people with brain injury. Also for the passst 4 years we have put on a Survivors' Conference. It truly is by and for us. It is informative, inspirational, and fun.
Name: Glynis Stuart
Organization:
Email: lstu@mindspring.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 12/21/99
Time: 7:19:14 PM
Remote Name: 207.205.200.166
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; Windows 98)
I am interested in finding more info on HBOT and if there are any organizations that will help pay for treatment. Thank You
Name: Tina Rushing
Organization:
Email: TRush44832@aol.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 12/13/99
Time: 12:26:07 PM
Remote Name: 205.188.197.186
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; MSN 2.5; AOL 5.0; Windows 98;
DigExt)
Looking for help to care for my nephew. I am his sole care giver and I need help. Plus leagal help.
Name: Vieta Sheldon
Organization:
Email: carbonsheldon@msn.com
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: No
Date: 12/11/99
Time: 10:21:21 PM
Remote Name: 63.22.216.144
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; MSN 2.6; Windows 95)
Thank you for this page.So many people need support, kindness and information.
Name: beverly collins
Organization:
Email: bevjeancol@aol.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://headinjury.com
Should we contact you?: Yes
Date: 12/5/99
Time: 9:28:20 PM
Remote Name: 152.163.205.77
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; AOL 5.0; Windows 98; DigExt)
Name: sammi smith
Organization:
Email: samsmith@gateway.net
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 11/22/99
Time: 12:34:30 AM
Remote Name: 63.23.58.220
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; Windows 95)
I was referred here by Toby Edmondson. I sent my son on Thurs to a wilderness camp at the urgent recommendation of his neuropsych (long story). Well, after 2 days, he had 2 seizures and wound up in the hospital yesterday. These are his first seizures since his TBI 8/7/97. The EEG showed major irregularities, and now the camp is having a meeting tomorrow, to determine whether or not he can return to the camp. The field supv today told me that he highly doubted that they could take him back, even with an anti-seizure med. He's begging and sobbing to be home with "his Mommy". A week ago tonight, he hated me and I threatened to call 911, as I was afraid he would hit me. Amazing, what a week can bring! Anyway, if they send him home, I've lost everything. He will have won again. Anyone have any suggestions on somewhere to send an 18yr old? Please, I'm desperate. In the last 2-1/2 yrs, I've tried in-patient & out-patient drug rehab, substance counselor, psychiatrist, sent him to Juvy Detention Center, moved him cross country for a "fresh start", psychologist, neuropsychologist, and now a wilderness camp. Thanks for any input.
Name: Lois A. Sasada/mother of Kevin Lynch
Organization: No Org./just concerned mother of TBI
Email: lois1748@aol.com
Home_Page:
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 11/18/99
Time: 2:01:29 PM
Remote Name: 152.163.204.187
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; AOL 5.0; Windows 98; DigExt)
I talked to Joan Landon, back in April, and at that time I was trying to find help for my son. I was not giving up til I did. Through it all, it was a hard thing to do, but I believe it will make him a better & stronger person. I love him very much & I miss him very much. He is in SUNBRIDGE REHAB Lynn, Mass. Thank you.
Name: Pam Stephens
Organization:
Email: TSteph4166
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 10/27/99
Time: 12:27:45 AM
Remote Name: 205.188.198.42
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; AOL 4.0; Windows 95; DigExt)
My son suffered a TBI in December of 1994. I have been trying to find SOMETHING since then. There are virtually no services for people in his situation. This looks like something both Matt and I can turn to, to let him know he is not alone. Thank you.
Name: Sherry Fields
Organization: Family Oriented Counseling Services
Email:
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: No
Date: 10/12/99
Time: 7:58:50 PM
Remote Name: 199.217.214.208
HTTP User Agent: Mozilla/4.01 [en] (Win95; I)
Name: Linda Voss
Organization:
Email: vossdoli@pacbell.net
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 10/7/99
Time: 12:24:22 AM
Remote Name: 206.170.7.211
HTTP User Agent: Mozilla/4.6 (Macintosh; U; PPC)
My husband, Don, was assaulted in August, 1992 and suffered severe tbi. The doctors seemed to write him off. We have pursued all kinds of healing techniques, most of which have helped to one degree or another. The main side effects still lingering and for which we continue to search for assistance are a profound hearing loss (no hearing in right ear, very little hearing in left ear), short term memory deficits, and poor balance. Hearing aids help, but until recently, technology had not caught up with demand. We understand that the latest generation of power aids and listening devices may provide more clarity and volume than the one Don currently has. The cost of the new devices will be over $5, 000, and insurance pays none of it. Any assistance for finding funds to defray costs would be greatly appreciated.
Linda Voss
Name: Larryetta Schall
Organization:
Email: schalll@atsc.army.mil
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://tbinet.org
Should we contact you?: No
Date: 10/5/99
Time: 10:01:18 AM
Remote Name: 155.217.51.55
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows NT; DigExt)
Terrific site! My daughter was in an auto accident May 23, 1998 and is still in a coma (stage 3/4 of Ranco Scale. I may contact you for information. It's nice to know you are here.
Name: Donnie Fraier
Organization:
Email: DSFJ415@AOL.COM
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 10/2/99
Time: 10:10:49 PM
Remote Name: 205.188.195.52
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; AOL 4.0; Windows 95; DigExt)
Name: sherrill shamblin
Organization:
Email: ssrunhom@aol.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 9/28/99
Time: 9:57:08 PM
Remote Name: 152.163.197.74
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; AOL 4.0; Windows 95)
Name: John J. Kieley III
Organization: USN (ret)
Email: JOHNKIII3@aol.com
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: No
Date: 9/27/99
Time: 12:47:14 AM
Remote Name: 205.188.196.26
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; AOL 4.0; Windows 98)
Name: Danielle Grandelis
Organization:
Email: oneimom@aol.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 9/25/99
Time: 12:12:04 PM
Remote Name: 152.163.206.204
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; AOL 3.0; Windows 98)
Just a look :
I lost a twelve month old baby due to shaken baby with impact from a neighbor/friend four years ago in Va. Guess I thought I'd take a look being brain injury site and all?:)
Name: April Soares
Organization: Centre for Neuro Skills
Email: CNSTX@aol.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://www.headinjury.com
Should we contact you?: Yes
Date: 9/21/99
Time: 12:54:09 PM
Remote Name: 205.188.198.172
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; AOL 4.0; Windows 95; DigExt)
Name: Maxine Bonneau
Organization:
Email: Max4Gos@aol.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://recovery awareness foundationI
Should we contact you?: Yes
Date: 9/13/99
Time: 7:26:40 PM
Remote Name: 152.163.213.192
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; MSN 2.5; AOL 4.0; Windows 98)
I am the caregiver of my 30yr. old daughter with ceberal palsy. This was due to a birth injury.She was born with the cord wrapped around her neck and she was also breech. You may contact me at any time if you like. Thanks for this web site.
Name: Debbie Baremore
Organization: cb@apex2000.net
Email:
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://CARE-TBI@HOME.TBINET.ORG
Should we contact you?: Yes
Date: 9/10/99
Time: 2:48:49 PM
Remote Name: 208.192.8.120
HTTP User Agent: Mozilla/3.0Gold (Win95; U)
In 1993 my 18 yr,old son suffered a closed head injury from a mva. He was in a coma for several months. He lives at home with us, and is not independent. He is in a wheel chair and his speech is not very clear. I am interested in hyberberic oxygen therapy for him. Is there any place in Texas that will provide hbo therapy for head injury and is there any funding available? Thank you
Name: Linda Jones
Organization: Allan Brubaker's Legal Guardian
Email: lfj@bitstreet.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 8/31/99
Time: 12:30:25 AM
Remote Name: 206.142.134.50
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; MSN 2.6; Windows 98)
Allan brubaker has started a support group in Abilene Tx. He has since been in touch with congressmen on TBI issues Please send mor information.
Name: Allan Brubaker
Organization:
Email: allan@abilene.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://www.Iforgot.braininjury.survivor.com
Should we contact you?: Yes
Date: 8/31/99
Time: 12:25:34 AM
Remote Name: 206.142.134.50
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; MSN 2.6; Windows 98)
As of Sept.5, 1997 Will be two years for me. I had 8 fractures to my skull, Part of my brain was removed, to stop the bleeding. I have an awesome story of my recovery. I would like to share it here.
Name: Mark E. Affleck
Organization: Personal
Email: maffleck@avocado.org
Home_Page:
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: No
Date: 8/27/99
Time: 1:33:26 PM
Remote Name: 207.71.116.229
HTTP User Agent: Mozilla/4.04 [en] (Win95; I)
To the RAF team:
Just received the "newsletter" via email and then jumped into your website. What I saw was incredible! You have done a superb job! It looks great. Good luck and God Bless you and your efforts on behalf on those in need. LOVE GOD...FEAR NOTHING Mark E. Affleck Very proud to be Miles Affleck's brother
Name: Nancy Woodbury
Organization:
Email: woodbury@mediaone.net
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 8/25/99
Time: 6:00:37 PM
Remote Name: 24.129.24.107
HTTP User Agent: Mozilla/4.61 [en] (Win98; I)
My son Justin sustained a severe TBI in a MVA on 3/15/99.
Name: Gail Shreve
Organization: Orlando Brain Injury Support Group
Email: PDSGSS@AOL.COM
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 8/7/99
Time: 8:31:24 PM
Remote Name: 152.163.201.82
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; AOL 4.0; Windows 98)
Mother of survivor, 22 yr. old son, TBI suffered from auto accident at age 18, continued problems from seizure causing another coma and more damage one year ago, starting over from newborn like status again, walking, some speech, feeding and showering self, but no short time memory, needs constant cuing, and a lot of long term memory loss this time.
Name: Walt Prouty
Organization:
Email: wprouty@ix.netcom.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 8/7/99
Time: 3:29:25 PM
Remote Name: 128.154.82.72
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows 95; DigExt)
I have know Joan and Michele for 15 years and recently visited Michele for the first time since her accident. She is still the same beautiful, smiling girl I remember from when she was 14. Michele, Joan, and Bill are all great inspirations of faith and hope and caring. Please help if you can. Joan, Bill, Michele..you know I love you all.
Name: SALLY FAIRBANKS
Organization:
Email: defairbanks@worldnet.att.net
Home_Page:
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 8/6/99
Time: 4:52:27 PM
Remote Name: 12.77.152.172
HTTP User Agent: Mozilla/4.51 (Macintosh; I; PPC)
Name: RENE SCHULMAN
Organization:
Email:
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 7/30/99
Time: 9:25:38 AM
Remote Name: 209.139.139.131
HTTP User Agent: ŕłŸxůE
PLEASE MAIL TO: 141 SPRINGTIME LANE LEVITTOWN NY 11756
Name: Shellie Beck
Organization:
Email: ohbell@flash.net
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://care-tbi
Should we contact you?: Yes
Date: 7/25/99
Time: 11:19:37 AM
Remote Name: 209.30.236.248
HTTP User Agent: Mozilla/4.04 [en]C-FLASHNET (Win95; I)
Wonderful site. Lots of good information here and support for caregivers. Keep up the good work and many thanks
Name: Mike Nofziger
Organization: RAF
Email: lillie car
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 7/19/99
Time: 10:03:50 PM
Remote Name: 152.163.207.66
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; AOL 4.0; Windows 95)
Debbie's little brother, who has seen his big sister go through a rough time and his mom (Ila) go through a rougher time trying to fight the system. What I learned from mom, NEVER GIVE UP!!! God bless the R.A.F.
Name: Tom Schwelitz
Organization: Tom & Melody's TBI Academy
Email: tschwelitz@aol.com
Home_Page: not enough room for myurl
How did you find us?: Word of Mouth
Link_Followed: http://www.geocities.com/athens/sparta/7026 (ME)
Should we contact you?: No
Date: 7/18/99
Time: 3:12:43 PM
Remote Name: 152.163.207.197
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; AOL 4.0; Windows 95)
You have a great site. I need help as a survivor of TBI. Me and Melody have our own newsletter and website. (Tom & Melody's TBI Academy) subscribe at "tschwelitz@aol.com". Our URL is "www.geocities.com/athens/sparta/7026". Come visit us anytime.
Name: Connie Jean Koebke Barsic
Organization:
Email: conniek@family-works.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://TBI-Care
Should we contact you?: Yes
Date: 6/29/99
Time: 3:14:10 PM
Remote Name: 156.46.65.157
HTTP User Agent: Mozilla/4.04 [en] (Win95; I)
Thank you Joan, Miles and Ila! You are doing a beautiful thing for others with this website! God Bless You All! ConnieK
Name: Barbara Cobb
Organization: none
Email: BeeBeeC@AOL.Com
Home_Page: http:// none
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 6/24/99
Time: 5:23:10 PM
Remote Name: 205.188.199.163
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; AOL 4.0; Windows 95)
Just sending a prayer to all the caregivers and the patients. May God`s Blessings be with you!
Name: ANGELA ESTRADA
Organization: NONE------- HOME
Email: PONYWALKER@AOL.COM
Home_Page: http:// NONE
How did you find us?: Followed a Link
Link_Followed: http://MOMSONLIE@LISTSERV.AOL.COM
Should we contact you?: Yes
Date: 6/17/99
Time: 9:23:37 PM
Remote Name: 205.188.209.104
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; MSN 2.6; AOL 4.0; Windows 95)
MY DAD HAD A HEART & 2 STROKES AUG.12,1997.IT HAS BEEN REALLY HARD.WE ALL TRY TO HELP WITH HIM.I HAVE HAD TO HAVE 3 MAJOR SURGEYS IN THE LAST YEAR,SO I CAN'T HELP LIKE I DID.WOULD REALLY LIKE INFO ABOUT HOW TO HELP MY DAD WITH HIS MEDS & ETC. WE ALL LOVE HIM SO MUCH.HE HAS CHANGED ALOT.HE WILL TELL ME KNOW THAT HE LOVES ME.TOOK 46 YRS.MY STEPMOM & 2 HALF BROTHERS ACT LIKE MY OLDER BROTHER & MYSELF DON'T EXIST. MAKES IT HARD FOR US TO SEE DADDY.COULD YOU SEND ANY INFO THAT WOULD HELP MY DAD.HE WAS ALWAYS SO ACTIVE.HE WILL BE 69YRS OLD NOV.26. HE IS A SWEETHEART OF A MAN.ANY HELP & INFO WOULD REALLY BE APPERCIATED THANKS SO MUCH ANGELA ESTRADA
Name: Samantha Hart
Organization: just me
Email: liddyis@aol.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 6/16/99
Time: 1:22:00 PM
Remote Name: 205.188.198.23
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; AOL 4.0; Windows 95; DigExt)
I am the survivor of a head injury 21 years ago. Life has been an odessy and I am glad to find there are others like me. Also, bravo to all of you who are helping.
Name: Tina Coleman
Organization:
Email: beachnut33@aol.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://momsonline.aol.com
Should we contact you?: Yes
Date: 6/16/99
Time: 1:17:08 PM
Remote Name: 152.163.205.21
HTTP User Agent: Mozilla/2.0 (compatible; MSIE 3.0; AOL 3.0; Windows 3.1)
Ila,
I did get your email, thank you. I am working today, but will try to respond tomorrow. As awful as my mother's illness has been for us, I can't begin to imagine how I would feel if it was one of my children who was brain injured. God Bless you and your daughter.
Best, Tina Coleman
Name: Laura R.
Organization: none at this time
Email: Bigb308@aol.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 6/16/99
Time: 12:03:56 PM
Remote Name: 205.188.195.34
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; MSN 2.5; AOL 4.0; Windows 98)
Hi my name is Laura I'm in Omaha, Nebraska I have a brain injury I had 2 brain aneursym 5 years ago would like to keep in touch with people like myself if you have the time please contact me thank you so much all of us need more help in this country then the goverment is giving us my heart goes out to others I myself could of been worst but I was a 1 in a million chance of living but I made it I do have problems but I don't let this stop me from going on I had a second chance in life and I'm going to make the best of it. If there is others out here that would like to talk I'm all ears :) thanks again for your time in reading this it means alot to me . :) Laura
Name: Jessica Whitt
Organization:
Email:
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 6/14/99
Time: 8:37:12 PM
Remote Name: 208.251.131.54
HTTP User Agent: Mozilla/4.01 [en] (Win95; I)
daughter to Debbie, grandaughter of Ila, friend of Joan and Michelle. It's hard but we'll make it. I love all you guys.
Name: Julie A. Parks
Organization: Rehab Without Walls
Email: dolfin_jp@hotmail.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 6/14/99
Time: 7:50:36 PM
Remote Name: 208.238.255.18
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; MSN 2.5; Windows 98; Compaq)
Name: Maureen
Organization:
Email: herlacheauto@earthlink.com
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: No
Date: 6/13/99
Time: 11:57:46 AM
Remote Name: 38.27.155.24
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; Windows 98; c_athome)
Can't find my earlier 'sign-in', probably because of computer problems we had been having...
Wish I had more time to follow through on some of these. My sister, Colleen suffered a tbi on 7/2/98 in an accident that killed both my mother and father. I'm a lucky one...I had their love and companionship for almost 50 years. But, I want my sister back and I am confident that she is here and will regain more ... it's time and patience and keeping my faith in that belief... and pages like this and people like all of you are a most welcome sight.. Thanks'. P.s. Guess it just has to hit even closer to home... I also have a cousin who suffered a tbi from an anorism (I can't spell), a cousin who was injured in a motorcycle accident (who is greatly recovered) and a cousin-in-law injured in a snowmobile accident. Yet I never really before this year was remotely aware of what they had suffered, are suffering and are surviving.
Name: Gloria Ashmore
Organization:
Email: TxazFlower@aol.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 6/11/99
Time: 5:43:17 PM
Remote Name: 205.188.195.48
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; AOL 4.0; Windows 95)
My sister gave my name to someone and they had Ila write to me. It is wonderful to have this way to share our joys(inch by inch) and to have support as we need it. Thank you for this site!
Name: Jacqueline McAdams
Organization:
Email: Jam81596@aol.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 6/1/99
Time: 10:53:26 PM
Remote Name: 152.163.213.63
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; MSN 2.5; AOL 4.0; Windows 95)
I am an old friend of Michelle's we used to be roomates at one time prior to her accident. I just got back this weekend from visiting her with my cousin Amy, who was a very close friend of Michelle's. I heard of the website through Amy and wanted to learn and see what it was about.
Thank you,
Jackie
Name: Lois Hoekema
Organization:
Email: lhoekema@aol.com
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 5/28/99
Time: 10:17:44 PM
Remote Name: 205.188.193.178
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; AOL 4.0; Windows 98)
My spouse had TBI since 8-93. We own a farm and I have had to run the dairy along with my young sons. Major--major changes in my life. God does care--he gave me incredible strength to carry on.
Name: Karol Cipra
Organization:
Email: Karolclown@aol.com or KCipra@juno.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 5/23/99
Time: 9:04:34 PM
Remote Name: 152.163.201.211
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; AOL 4.0; Windows 98)
This is wonderful..and hopefully very supportive for all who visit the site. I am a tbi survivor, some days feel overwhelmed, completely undone...but know that survivors have a multitude of gifts to give others...and very few avenues left to them in order to give what they so desperately want to give...so please, remember to let them, to help them find ways to do so, and to remind others to always take the time for them to be able to receive these very precious gifts!!! And Ila, et al, keep up the fantastic job u r doing...and do remember, the masses of bi survivors adore you for your every effort!!!
Name: Michael Van Meter
Organization: none
Email: vanmeter@voicenet.com
Home_Page: http://!not long enough!
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 5/22/99
Time: 10:42:15 PM
Remote Name: 207.103.119.159
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; Windows 98; DigExt)
Our problem isn't medical now... it's the stress of the friction caused by endless repetition. The medical costs are mostly covered by medical assistance.
Name: Marjorie Conner
Organization: Hope United in Giving "HUG"
Email: ContactHug@aol.com
Home_Page: http://Building in progre
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 5/21/99
Time: 8:06:47 PM
Remote Name: 152.163.197.207
HTTP User Agent: Mozilla/2.0 (compatible; MSIE 3.0; AOL 3.0; Windows 3.1)
Though we are in contact with each other regularly I did want to sign your guest book. I hope your viewers will feel free to contact us at "HUG" and allow us to share with them the appreciation we feel for the great job caregivers are doing. We will contact them by email, postal mail (with our newsletter) and a small gift every other month to let them know we care.
Name: John Haynes
Organization: Haynes Technologies
Email: johneiko@aol.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 5/21/99
Time: 5:32:45 AM
Remote Name: 205.188.192.174
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; AOL 4.0; Windows 95)
I learned of Ila Nofziger and her daughter Debbie a couple days ago from a customer. I spent time on-line yesterday talking to her and am so impressed with this lady's faith and determination. I hope I can make some contribution in her battle to get the she needs for Debbie.
Name: Kathryn Paul
Organization:
Email: tandemrider@prodigy.net
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 5/15/99
Time: 7:55:52 PM
Remote Name: 209.156.168.7
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; Windows 95)
I am a TBI survivor. 11/23/93. This is a great place to visit and only after years of therapy am I able to even go on line are try and follow things. I do have a very interesting story that I would like to tell someone regarding my recovery.
Name: Linda K. Barry
Organization: Vacaville Unified School District
Email: lkbarry@yahoo.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 5/6/99
Time: 6:28:22 PM
Remote Name: 206.110.98.2
HTTP User Agent: Mozilla/3.01 (Macintosh; I; 68K)
Visited this home page because I am friends with Miles and Debbie Affleck, the parents of Ryan Affleck who suffered a terrible head injury awhile back. I was told about this web site and wanted to see for myself what it was all about.Please feel free to contact me with any future updates connected with this issue. Thank you- Linda Barry
Name: Pattie DeRosa
Organization:
Email: pattiebuny@aol.com
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 5/6/99
Time: 12:55:05 AM
Remote Name: 205.188.193.188
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; AOL 4.0; Windows 98)
My 17 year old son is a tbi from a car accident and i was looking for some equipment that could help him at home any help would be wonderful
Name: Joyce M. Durham
Organization:
Email: Rangeriv@aol.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: No
Date: 5/1/99
Time: 3:18:02 PM
Remote Name: 152.163.197.52
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0; MSN 2.5; AOL 4.0; Windows 98)
I am new at this and when I learn more about what I am doing, I'll return to this site.
Name: CLAUDIA HACKETT
Organization:
Email: BUNKEYH@AOL.COM
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: No
Date: 5/1/99
Time: 12:42:05 AM
Remote Name: 152.163.197.77
HTTP User Agent: Mozilla/2.0 (compatible; MSIE 3.02; AOL 4.0; Windows 95)
Name: Sue Reed
Organization: Sheridan,Calif.
Email: WReed@aol.com
Home_Page: http://tbinet.org
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 4/29/99
Time: 1:08:49 PM
Remote Name: 205.188.199.44
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; AOL 4.0; Windows 98)
Mother of 14yr old son with TBI. MVA on 12/30/97. In coma for almost 2 months.Looking for support from other parents of same or near age. He had left frontal lobe damage, plus other major medical. he was in the hospital 4 months but is doing great now. Physicaly almots back to normal.Please feel free to contact me. Thanks for the support and great site!
Name: lauri siwik
Organization:
Email: Siwik4465@AOL.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 4/29/99
Time: 9:24:32 AM
Remote Name: 205.188.197.24
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; AOL 4.0; Windows 98)
Thank you for contacting me. I had so much support at first,but I have discovered after a while people get on with their lives as I have. I can feel very isolated at times.I feel it is good to keep in touch with other caregivers. My husband, age 44 had a brain anureysm. I am 38. He had to learn to swallow,sit up,walk and talk again. He was a CFO at an Engineering firm. Our lives have changed. We have two children ages 10 and 13. We will never be the same .That is okay since we view change as growth, and to grow is to continue to live. He is a retired Air Force Officer and he is on disability so we do not have the typical financial worries. We are also blessed since he has recovered enough to move about independantly at home. I continue to pray for all the others out there and I thank God we have been blessed.
Lauri Siwik
Name: Jackie Tripp
Organization: Sister to Michele
Email: tripps@shore.intercom.net
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 4/26/99
Time: 5:14:09 PM
Remote Name: 204.183.211.64
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; Windows 98)
Great job Mom,Ila, and Miles.I want to help in any way. I love you, Michele.
Name: Shirley Figaro
Organization: --------------------------
Email: Figaro24@aol.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 4/24/99
Time: 10:26:26 PM
Remote Name: 152.163.197.187
HTTP User Agent: Mozilla/2.0 (compatible; MSIE 3.02; AOL 4.0; Windows 95)
Thanks for the referral, Ila. You are right, the page is very nice. Hello to Debbie and Gabby!
Name: Teresa Lovins
Organization:
Email: LovinsT@aol.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 4/22/99
Time: 12:25:01 PM
Remote Name: 152.163.213.56
HTTP User Agent: Mozilla/2.0 (Compatible; AOL-IWENG 3.0; Win16)
I am the mother of a 26 yr. old son who is a tbi survivor of a May 6, 1998 MVA. We had to bring him back to KY after 8 mos. acute care and rehab in Orlando, FL. Sites such as this help in just knowing that you are not alone in this new life.
Name: Peggy Dietrich
Organization:
Email: dietrich@mddc.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://care-tbi@home.tbinet.org
Should we contact you?: Yes
Date: 4/21/99
Time: 4:01:19 PM
Remote Name: 208.132.89.127
HTTP User Agent: Mozilla/4.5 [en] (Win95; I)
Glad I found this site. I am caregiver to Jon, age 19, who suffered severe tbi on 5-14-98 as a result of hemorrhage due to arterialvenous malformation. I am constantly seeking information and support. I'll be back to visit often
Name: bigfoot
Organization: none
Email: taylor@tri-lakes.net
Home_Page: none
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 4/18/99
Time: 5:19:33 PM
Remote Name: 12.14.230.159
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; MSN 2.5; Windows 98)
none
Name: pippi
Organization:
Email: cwynar@bellatlantic.net
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 4/18/99
Time: 3:40:51 PM
Remote Name: 151.199.125.211
HTTP User Agent: Mozilla/4.5 [en] (Win95; I)
I met Ila (raptor?) in TBI Chat and she told me about this page. I am a survivor of mva over seven years ago. Without the help and support of my caregivers (mostly my mom), I wouldn't have come as far as I have.
This page is very good. I can see how serious you are. I hope we have a chance to chat again, Ila.
Name: Kim Zimmerman
Organization: none
Email: Zimrmn2@aol.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://www.betterhealth.com
Should we contact you?: No
Date: 4/15/99
Time: 10:57:17 PM
Remote Name: 152.163.197.179
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; MSN 2.5; AOL 4.0; Windows 98)
My mom is an epileptic who went thru brain surgery in 1991 to try to rid her of the seizures...the surgery was a failure and it took "my mom" away. She suffered a major personality change and now has major behavioral problems..she is a totally different mom from the one I have always known. She is 49 years old right now. I am alone in this situation..only child and my dad has never really been of any help at all with mom..I begged them..(the doc's) to recommend her to a head injury program/brain injury program after the surgery, because after she was released to her home she couldnt do the every day things that a person does in life..the getting up and brushing teeth, combing her hair..ect..it's like she forgot it all..and if I asked her about it..she was get extremely angery with me. Finally the agreed for an evaluation for some rehab..their determination was that she didnt need it. Now..here we are 8 years later and things have just worsened over the years. She was never taught how to be consistent and how to "live" again..she is currently in a mental facility. I feel strongly that if the proper measures were taken and if someone had listened to me and taken me seriously..my mom wouldnt be in such the bad shape that she is in today. They are the professionals..well they claim to be, but when it comes right down to it..the people that care for and have lived with these patients are really the professionals here. If you have any suggestions about anything I have written please e-mail me anytime. I have married since and have two small children...and dont know what to do about mom..I love and miss her very much.
Kim
Name: Shannon Bell
Organization: I am a friend of the Nofziger family.
Email: BELLKAOS2
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 4/15/99
Time: 1:07:35 PM
Remote Name: 205.188.196.43
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; AOL 4.0; Windows 98)
I WISH YOU GUYS THE BEST OF LUCK!
Name: Marjorie Conner
Organization: Hope United in Giving POBox 6604 Lake Charles LA 70606
Email: Hugpatsmom
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 4/10/99
Time: 7:36:31 PM
Remote Name: 205.188.196.29
HTTP User Agent: Mozilla/2.0 (compatible; MSIE 3.0; AOL 3.0; Windows 3.1)
Following the TBI of my son Patrick Stamm in l996 I sat at my kitchen table and founded the "HUG" Hope United in Giving organization. We try to reach as many caregivers as possible on a monthly basis with some small gift or newsletter to assure them we care and can in one way or another understand what they may be going through. I am so pleased to have found this foundation. I will certainly mention it in our next newsletter due to be mailed toward the middle of May. We attempt to offer emotional as well as educational support to our listed caregivers. All caregivers are welcome to "HUG". Thank you for being there for us. Marjorie
Name: Martha Sanchez
Organization:
Email: iggytoys@prodigy.net
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 4/10/99
Time: 12:30:02 AM
Remote Name: 207.115.62.41
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; Windows 98)
Name: David Blanding
Organization: none
Email: spikevenue@aol.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 4/5/99
Time: 10:45:03 AM
Remote Name: 205.188.192.151
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; AOL 4.0; Windows 95; Juno)
I don't care what you do. And, yes, I am very bitter.
Name: Kathryn Wendt-Mackey
Organization:
Email: VHWendt@worldnet.att.net
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: No
Date: 4/5/99
Time: 8:33:52 AM
Remote Name: 12.76.116.34
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.0; Windows 95; AT&T WNS IE4.0)
I am a survior of a traumatic brain injury and was given your link through Marshall Simons another survior.
Name: Marty Zobrovitz
Organization: BIA of MI (Macomb Chapter)
Email: MRussian2@aol.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://pops102@juno.com
Should we contact you?: Yes
Date: 4/4/99
Time: 11:34:14 PM
Remote Name: 152.163.213.82
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; AOL 4.0; Windows 95)
I suffered a TBI on 7/13/91, it has been a very long and hard road since then. I am not a person that will give up with out a fight. I have gone back to college and have been a volunteer counselor at the Fowler Center in Mayville, MI, working with both children and adults with TBI's. If you want to know more, contact me. Love and Light, Marty Z
Name: Judy Landon
Organization:
Email: judyl@shore.intercom.net
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 3/30/99
Time: 9:56:16 PM
Remote Name: 208.236.173.92
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; MSN 2.5; Windows 98)
Knowing the family of Michele, I can understand the commitment which is shown to her because of the accomplishments that have been achieved.
Name: Terry Spurlin
Organization:
Email: TSPUR95
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 3/30/99
Time: 6:06:51 PM
Remote Name: 152.163.204.61
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; AOL 4.0; Windows 95)
I think you guys have created a very good foundation and I hope you are able to help a lot of people through it. If I can be of any help to you I would be happy to do what I can.
Name: steven zakely
Organization: carolina raptor center
Email:
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 3/30/99
Time: 8:03:09 AM
Remote Name: 169.200.25.140
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; Windows 95)
Hello, Ila.....Haven't seen you in awhile. I hope your doing well...We missed you the other day at Deb Sue's retirement party.......But from the looks of things you have been pretty busy with the foundation. I think what you are doing is very admirable and very courageous.......You have always been very focused once you started something (ie: Adopt-a-Bird). Maybe we'll get a chance to see each other sometime in the near future. Until then I wish you the very best....
Name: Linda Emberland
Organization: none
Email: lemberland@hotmail.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 3/29/99
Time: 8:44:13 PM
Remote Name: 209.252.65.90
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; Windows 95)
Hi, my name is Linda, I am Michele's sister. This is the first time I have beem able to get thru to the webpage. I am very impressed! This is a wonderful way for people to seek comfort and help.
Name: Paul Drega
Organization:
Email: pdrega@aol.com
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 3/28/99
Time: 1:57:39 PM
Remote Name: 152.163.201.181
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; AOL 4.0; Windows 98)
Hi and thank you for your web site.I am desperately triing to find a way to help my brother Mark Drega who is greatly impaired by TBI. He has been institutionalized for several years now and we believe he will never be totally independent. However, we are searching for a more homelike setting for him since we believe he could improve much faster in that type of environment. He can walk and talk and recognizes people. He also follows instruction very well when prompted. but he cannot remember the simplest procedures or follow through on any task without constent cueing. Although his basic daily needs are met by the institution ("Hospital for Special Care" located in New Britan, CT) My mother and I spend much of our time and resources traveling to him (I currently reside in Texas) and doing activities with him to keep his spirits up. I have been on layoff from my job as a design engineer since october of last year and am relying on savings and investments to pay all my bills. At least it is allowing me more time with my brother and this contact seems to be helping him. If there was some wy to financially assist us and/or provide us with information on selecting private housing (in the Connecticut area) where we could take in a few other TBI affected peopleto help defray costs it would be greatly appreciated. Thank you and God Bless.
Name: Jan Kreiner
Organization:
Email: jkre264736@aol.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 3/24/99
Time: 11:07:13 PM
Remote Name: 205.188.198.153
HTTP User Agent: Mozilla/2.0 (compatible; MSIE 3.0; AOL 4.0; Windows 3.1)
My "significant other" was injured in a motorcycle accident in 1982, while we were engaged. He spent 9 1/2 years in nursing homes, and finally came home after some significant legislation was passed in Ohio in 1991. We are doing well, considering... We now have 2 beautiful children, 5 years and 2 years, and our 3rd is on the way. Life hasn't been easy... but it is always good.
Thanks for putting the time into this site! We're jazzed to start "digging in!"
Name: dale gowing
Organization: the mooresville tribune
Email: none (phone: 704-664-5554)
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 3/23/99
Time: 11:40:38 PM
Remote Name: 206.154.1.137
HTTP User Agent: Mozilla/3.0C-SurferKit (Win95; U)
Mrs. Nofzinger came into my office and we chatted. I told her I would check out your Web site, and we may be doing a story on her daughter and your organization.
Name: Angela Segle
Organization:
Email: Ang88@Juno.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 3/23/99
Time: 8:32:40 PM
Remote Name: 155.99.156.67
HTTP User Agent: Mozilla/4.5 [en] (Win95; I)
My younger brother, Ben, was in a MVA on March 6, 1999. He's still in a coma on full life-support. He has severe trauma to the left frontal lobe. I'm won't be his caregiver, but my mom will, and she's in no state of mind to do anything but pray and hang on right now. I'm trying to find out ways to help defray medical bills as my parents have no insurance. My brother is 17 years old.
Name: Angel
Organization:
Email: ANGELWITH4@aol.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://www.home.tbinet.org/raf/
Should we contact you?: Yes
Date: 3/23/99
Time: 4:59:01 PM
Remote Name: 205.188.200.38
HTTP User Agent: Mozilla/2.0 (compatible; MSIE 3.02; AOL 4.0; Windows 95)
I never realized before how much support there is within this computer screen. There is such a need for support for the caregivers of loved one's. THANK YOU
Name: leona hanson
Organization: kevin mother [bi 7/98]
Email: nosnah@icomnet.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://www.home.tbinet.org/raf/
Should we contact you?: Yes
Date: 3/23/99
Time: 4:13:12 PM
Remote Name: 206.156.87.148
HTTP User Agent: Mozilla/2.02E-KIT (Win95; U)
this injury has been the hardest thing i have ever had to deal with my life seems to be in turmoil all the time. i know ther must be others out there feeling the same thing, i go to a support group and do alot of reading to try to understand what my son is going through,would enjoy contact with other families that are living the family tragedy
Name: Shelia Watts
Organization: TBI
Email: Sheliahp
Home_Page: http://www.home.tbinet.or
How did you find us?: Followed a Link
Link_Followed: http://www.home.tbinet.org/raf/
Should we contact you?: Yes
Date: 3/22/99
Time: 10:52:54 PM
Remote Name: 205.188.197.23
HTTP User Agent: Mozilla/2.0 (compatible; MSIE 3.0; AOL 3.0; Windows 3.1)
I would love be a part of the support group. My brother has TBI. I'm in High Point N.C. I'm also a caretaker for him
Name: Donna Eaton
Organization:
Email: donnaeaton@mindspring.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 3/22/99
Time: 1:07:54 PM
Remote Name: 165.247.205.235
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; Windows 95)
Great website. God Bless! Hang in there Ila!
Name: Paula Leveille CNA1
Organization: Bayada Nurses
Email: Jakfrost@bellsouth.net
Home_Page: http://yahoo.com
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 3/20/99
Time: 4:13:34 PM
Remote Name: 209.214.186.216
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; Windows 98)
I have never personally experienced B.I.. However, because of my field of work I have been blessed with meeting Debbie and her mother, Ila Nofziger. Thank God for sending us these angels, such as Ila and her friends at the R.A.F. It is very fulfilling to see the progress that Debbie makes each time I visit. It is also very sad to know that even with all our technology, this can happen to any one of us, at any time. Therefore, again, I say... we should all be thankful for these angels. Because they are fighting for us all. I don't know how I can help-but I will help in any way I can. And to Ila and Debbie: You are always in my thoughts and prayers. I love you both.
Name: Frances Buckle
Organization: Survivor's Mom and Project STAR
Email: fbuckle@skybest.com
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: No
Date: 3/19/99
Time: 11:12:52 PM
Remote Name: 207.144.87.126
HTTP User Agent: Mozilla/3.01-C-INFOAVENUE (Macintosh; I; PPC)
Nice Web Page.. good contacts. Keep up the good work. The more people who are aware of TBI the more services may become available and more persons will become educated about the problem.
Name: adrienne boyd
Organization:
Email: rboyd123@aol.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: No
Date: 3/19/99
Time: 11:33:13 AM
Remote Name: 152.163.204.201
HTTP User Agent: Mozilla/2.0 (compatible; MSIE 3.02; Update a; AK; AOL 4.0; Windows
95)
daughter to ray tbi from bicycle accident 10-17-98, abi from code-choking-10-31-98
Name: Linda Stewart
Organization:
Email: linda_stewart@oclc.org
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 3/17/99
Time: 10:32:41 AM
Remote Name: 132.174.198.78
HTTP User Agent: Mozilla/2.0 (compatible; MSIE 3.02; Win32)
Thanks Ila for all of your encouraging words, I have passed on the info to my family and am eager to hear more. Thanks again.
Name: jenn dentzer
Organization:
Email: mxdblsng@aol.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 3/16/99
Time: 3:59:00 PM
Remote Name: 152.163.232.38
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; AOL 4.0; Windows 98)
Hi joan, and Illa, and Miles. I've finally taken the time to check this out. Thanks for taking the time. Jenn, mom to Melissa, 31 months post MVA
Name: sheri wright
Organization:
Email: irwright@msn.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 3/16/99
Time: 11:49:09 AM
Remote Name: 63.10.70.78
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; MSN 2.5; Windows 98)
great site and information as a survivor of mild tbi you have alot to give to those caregivers and their loved ones its hard road and we need all the fighters we can get
Name: Michele Tutalo
Organization: caregiver
Email: M2talo@ao.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 3/12/99
Time: 8:50:53 PM
Remote Name: 152.163.197.187
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; AOL 4.0; Windows 98)
I'm a 35 year old caregiver to my husband with tbi 2 1/2 years from injury to face. I have 2 children. I have my story under tbichat.org under Michele Tutalo. My husband has mostly a frontal lobe injury.
Name: Billy Geiger
Organization:
Email: scalemodeler@mindspring.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 3/7/99
Time: 1:24:20 PM
Remote Name: 207.69.243.103
HTTP User Agent: Mozilla/2.0 (compatible; MSIE 3.02; Windows 95)
RAF (Joan Landon) was instrumental in locating scale model kits (cars) to assist in my therapeutic hobby.
Name: debbie
Organization: none
Email: joe@mail.faynet.com
Home_Page: http:// none
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 3/3/99
Time: 8:48:36 PM
Remote Name: 208.11.174.219
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; Windows 95; SPEED)
i just wanted to visit your web site and let you all know that i am thinking of you all in need like myself. thank you
Name: David R.
Organization:
Email: ElToro518@aol.com
Home_Page:
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 2/27/99
Time: 4:32:42 PM
Remote Name: 24.128.44.6
HTTP User Agent: Mozilla/4.06 [en]C-MOEATL (Win95; U)
Nice page. I would like to know? Where is everybody. People surviving, family,friends and care givers. Everyone is welcome to come to my little home page and read my true inspired stories. About surviving with brain injury. Please come visit and sign my/our guest book. http://www.geocities.com/HotSprings/Spa/7713 Thank you all. Take care. "Still Surviving" David R. :) :)
Name: Elizabeth wilson
Organization: none
Email: NYREDSKIN@AOL.COM
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 2/24/99
Time: 1:04:25 PM
Remote Name: 205.188.195.33
HTTP User Agent: Mozilla/2.0 (compatible; MSIE 3.0; AOL 3.0; Windows 3.1)
Mother and caregiver to Nick mva at age 15,now 23...one day at a time.... great job you three
Name: Barbara A. Milazzo
Organization: Brain Injury Assn of Florida--Survivor
Email: BMilazzo@aol.com
Home_Page: http://tbinet.org/storie.
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 2/10/99
Time: 10:36:41 PM
Remote Name: 152.163.201.53
HTTP User Agent: Mozilla/2.0 (compatible; MSIE 3.02; Update a; AK; AOL 4.0; Windows
95)
I'd like to know more about your plans
Name: Shelly Mitchell
Organization:
Email: geomitchell@Prodigy.Net
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 2/7/99
Time: 12:18:48 PM
Remote Name: 166.72.147.132
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; Windows 98)
Name: Erin Bennett
Organization:
Email: Bandon99@aol.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 2/6/99
Time: 1:40:18 PM
Remote Name: 205.188.193.164
HTTP User Agent: Mozilla/2.0 (compatible; MSIE 3.02; Update a; AOL 4.0; Windows 95)
Thank you for being there.
Name: Jo Vaughn
Organization: none -- just a caregiver & mother
Email: Jevaughn1@aol.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://www.home.tbinet.org/raf
Should we contact you?: Yes
Date: 2/5/99
Time: 12:02:57 AM
Remote Name: 152.163.204.72
HTTP User Agent: Mozilla/2.0 (compatible; MSIE 3.02; AOL 4.0; Windows 95)
I'm really glad to have found this site. You have some good info & some great links here. Thanx for being here. Keep up the good work. If there's ever anything I could help with, please let me know. Jo
Name: Affleck, Mark
Organization: Personal (Miles Affleck's brother)
Email: maffleck@avocado.org
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: No
Date: 2/2/99
Time: 12:25:08 PM
Remote Name: 207.71.116.229
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; Windows 95)
Just pulled everything off your site. It looks great! I'll look forward to taking a look at the printed copies.
"LOVE GOD...FEAR NOTHING"
Mark Affleck
Name: Pam Hamilton
Organization:
Email: pam.cullen.rick@worldnet.att.net
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: tbi caregivers list
Should we contact you?: Yes
Date: 2/1/99
Time: 10:18:32 AM
Remote Name: 12.75.130.17
HTTP User Agent: Mozilla/4.5 [en] (Win98; I)
My son was diagnosed with a Massive Bi-Thalamic Arteriovenous Malformation when he was 7 1/2 after experiencing fine and gross motor skill declines. He had 2 staged embolizations procedures when he was 8 years old and another one when he was 9. He is now non-verbal, is not able to walk and has a severe movement disorder. He also experiences frequent headaches. He had to have a feeding tube a few months after the last embolization procedure, because he was having trouble swallowing. He also had surgery last year for an Intrathecal Baclofen Pump to help manage his spasticity. He now has worsening scoliosis and will require surgery in a couple of months for placement of a rod in his spine. I quit my job to care for him and am having a lot of financial struggles but do not want to place him in a facility until I can no longer manage his care. The information contained here looks wonderful!! Support has been extremely difficult to find! You are absolutely right when you say "It is an extremely stressful situation that creates problems for the caregiver that they are not prepared to cope with." and it has been my experience that the non-caregivers don't have a clue!
Name: Linda Bucher
Organization:
Email: BUCHERL@MSN.COM
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://WWW.HOME.TBINET.ORG/RAF
Should we contact you?: No
Date: 2/1/99
Time: 3:54:45 AM
Remote Name: 208.254.8.136
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 5.0b2; MSN 2.5; Windows 95)
Name: Brenda Wright
Organization: caregiver for Amanda, my daughter 3/4/98 ejected from high speed
rollover now 9 years old
Email: brenda75@pdrpip.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://care-tbi
Should we contact you?: Yes
Date: 1/31/99
Time: 6:58:27 PM
Remote Name: 207.224.145.119
HTTP User Agent: Mozilla/2.0 (compatible; MSIE 3.02; Windows 95)
we need all the support we can get and this is a good one. anything I can do let me know
Name: donna zaken
Organization:
Email: dzaken@aol.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://www,home.tbinet.org/raf
Should we contact you?: Yes
Date: 1/26/99
Time: 9:17:37 PM
Remote Name: 152.163.194.206
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; MSN 2.5; AOL 4.0; Windows 95)
I am a cargiver to my husband; tbi 8/97 I am also a medical professional who is currently trying to make a difference for others by education health care providers, and attempting to get a grant to follow patients with minor tbi's, who get stuck in the "system", are underdiagnosed and undertreated, and HELP that I didn't get and so desperately needed.
Name: Joy Kazlauskas
Organization:
Email: JI2Tweetie@aol.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 1/25/99
Time: 2:06:45 AM
Remote Name: 205.188.198.151
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; AOL 4.0; Windows 95)
Great site...
Name: Erika Hoyt
Organization:
Email: Gapper@prodigy.net
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: No
Date: 1/24/99
Time: 11:11:30 PM
Remote Name: 32.101.25.19
HTTP User Agent: Mozilla/2.0 (compatible; MSIE 3.02; MSN 2.5; Update a; Windows 95)
Name: KRIS CLARK
Organization:
Email: DIFFIEFAN7@AOL.COM
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: No
Date: 1/24/99
Time: 6:38:41 PM
Remote Name: 205.188.197.33
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; AOL 4.0; Windows 98)
Name: Trish
Organization:
Email: fancytrish@aol.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 1/21/99
Time: 10:49:10 PM
Remote Name: 152.163.204.79
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; AOL 4.0; Windows 98)
Wonderful page...
Name: Linda McCormack
Organization:
Email:
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: No
Date: 1/14/99
Time: 6:46:00 PM
Remote Name: 194.112.60.169
HTTP User Agent: Mozilla/2.0 (compatible; MSIE 3.02; Update a; Windows 95)
I am Miles Affleck's sister and woulld l ike to say how impressed I am with this excellent support net. We have watched Ryan progress and know that prayers and a wonderful group like this have helped immensely . Keep up the hope...
Name: Carrie Puett
Organization:
Email: CPuett1@AOL.COM
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 1/12/99
Time: 9:05:55 PM
Remote Name: 205.188.192.23
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; AOL 4.0; Windows 95)
An excellent source of information and support. You three have established a foundation that WILL make a difference for caregivers and our loved ones. Thank You!!!
Name: AMBER TAYLOR
Organization: Nice page I like the piture.
Email:
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: No
Date: 1/9/99
Time: 10:55:32 AM
Remote Name: 209.74.60.224
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; Windows 98)
I like your webpage it should be very helpful to many people. I like your piture Nickie
Name: John Mayer
Organization:
Email: lynvets@ezs.net
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://CARE-TBI LIST
Should we contact you?: Yes
Date: 1/8/99
Time: 1:13:28 AM
Remote Name: 207.198.251.58
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; Windows 95)
My son Jon was injured in a mva 10/24/94. Jon is 22 years old now, and is in a pvs. He has a rating of approx. 3 on the Ranchos Scale. My wife and I brought Jon home from the nursing home from hell, 7/96. It was the best decision we have made. I am looking for all research projects to help Jon. Hyperbaric oxygen therapy looks like a step in the right direction. However, Most hospitals won't treat brain injured patients, and insurance sure doesn't cover it. We need pressure from all groups covering BI so that we can get the necessary treatments for our loved ones. Thank you, John Mayer.
Name: James T. McDeavitt, MD
Organization: Charlotte Institute of Rehabilitation
Email: jmcdeavitt@carolinas.org
Home_Page: http://www.charweb.org
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 1/6/99
Time: 8:52:10 PM
Remote Name: 199.35.92.216
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; Windows 98)
Name: Ted Phipps
Organization: Cotswold Headway Trust (UK)
Email: TedPhipps@aol.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 1/6/99
Time: 5:37:10 PM
Remote Name: 152.163.204.76
HTTP User Agent: Mozilla/2.0 (compatible; MSIE 3.0; AOL 3.0; Windows 3.1)
Congratulations to all of you for your efforts in producing this site. Thank you Joan for redirecting me back again. I'll endeavour to make this site known to our head-injured community here in the UK
Name: Cheri A. Counard
Organization: none
Email: Dacjn@aol.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 1/6/99
Time: 2:57:27 PM
Remote Name: 152.163.201.187
HTTP User Agent: Mozilla/2.0 (compatible; MSIE 3.02; Update a; AK; AOL 4.0; Windows
95)
I have a 15 year old son who is a TBI survivor. He also had a SCI at the same time. I would enjoy talking with other mothers of boys near the same age. We are just coming off a bad year with lots of major surgeries.
Name: William Bruce Robb,Jr.
Organization: Disabled survivor of TBI
Email: robb@microbyte.net
Home_Page: http://homepages.infoseek
How did you find us?: Followed a Link
Link_Followed: http://homepages.infoseek.com/~wbrjr/wbrjr.html
Should we contact you?: Yes
Date: 1/6/99
Time: 1:05:05 PM
Remote Name: 207.201.197.50
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; Windows 95)
Full url to homepage is under follow link. Learned of this by contact with lla.
Name: Donnie Frazier
Organization:
Email: DSFJ415@AOL.COM
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 1/6/99
Time: 6:33:40 AM
Remote Name: 152.163.205.59
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; AOL 4.0; Windows 95; AT&T
WNS2.5 IE4.01)
Name: Fránces Toney
Organization:
Email: xzzu@aol.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 1/5/99
Time: 8:12:12 AM
Remote Name: 205.188.195.47
HTTP User Agent: Mozilla/2.0 (compatible; MSIE 3.01; AOL 4.0; Windows 95)
Hey you guys the web page is great! I really like it. The picture is very good and I did not know she was such an artist! She is very, very good Joan.
Name: DAVID EDDIE SILVA
Organization: MICHELE'S DAD
Email: FESTUS-1@WEBTV.NET
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: No
Date: 1/4/99
Time: 9:09:06 PM
Remote Name: 209.240.197.39
HTTP User Agent: Mozilla/3.0 WebTV/1.2 (compatible; MSIE 2.0)
I WOULD LIKE TO THANK EVERYONE FOR THEIR HELP AND SUPPORT
Name: Beth Weil
Organization:
Email: bethspoon@aol.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: Traumatic Brain Injury list
Should we contact you?: No
Date: 1/4/99
Time: 1:40:20 PM
Remote Name: 205.188.198.173
HTTP User Agent: Mozilla/2.0 (compatible; MSIE 2.1; AOL 3.0; Mac_PPC)
I clicked on Recovery Awareness Foundation when I was reading tbi list. I had a cerebral hemorrhage in 1991. If you need to talk to me, send me an email.
Name: sieglinde jacobs (cindy)
Organization:
Email: dougsmom1@webtv.net
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://caregiversonline
Should we contact you?: Yes
Date: 1/2/99
Time: 2:57:47 AM
Remote Name: 209.240.200.55
HTTP User Agent: Mozilla/3.0 WebTV/1.2 (compatible; MSIE 2.0)
this site looks sooo exciting, i'm just scratching the surface & am liking it a lot!!! i'm taking care of my adult son who is recovering from the effects of "diagnosed anoxic brain damage"
Name: Charles Walters
Organization: Mo.Brain Injury Ass.
Email: cwalters@ccp.com
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 1/1/99
Time: 3:13:30 PM
Remote Name: 207.193.243.97
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; Windows 98)
I am President of the Missouri Brain Injury Ass. in North west Missouri
Name: Suzann Rowe
Organization:
Email: AcornDrive@aol.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: No
Date: 1/1/99
Time: 4:30:25 AM
Remote Name: 152.206.146.178
HTTP User Agent: ; AOL 4.0
I was directed to this set by Ida. My son, Andrew, sustained BI in July 1995. He has made tremendous and courageous progress, but will never live the life because of the disabilities, ie. speech and motor injury. I belong to National Foundation of Caregivers Association and find that the support of their cards and quarterly newsletter helps very much. I am always interested in chatting online with others who are caregivers. We need one another because this can be very isolating.
Name: Cindy Harrison
Organization: Caregiver
Email: Cindy@cfi.net
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 12/30/98
Time: 11:09:39 AM
Remote Name: 209.36.101.98
HTTP User Agent: Mozilla/2.0 (compatible; MSIE 3.01; Windows 95)
You are each doing a great job, if you ever need my help, in any way, let me know
Name: Debbie Baron
Organization:
Email: debsinbavaria@hotmail.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 12/30/98
Time: 8:04:50 AM
Remote Name: 205.188.198.172
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; AOL 3.0; Windows 98)
Me and my Mom have been in Germany for the past 5 months helping my sister recovering from a tbi as a result of complications during childbirth. We would appreciate any help or support.
Name: Faith Scheib
Organization:
Email: fspeace1@ptd.net
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: No
Date: 12/29/98
Time: 6:41:34 PM
Remote Name: 204.186.34.15
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; Windows 95)
I followed a link from the TBINet e-mail! I think this is great & wish I had the time & energy to help!!!!! Son TBI 7-14-97
Name: Ron Payne
Organization: caring for others
Email: aliwicki@aol.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: No
Date: 12/29/98
Time: 12:43:17 PM
Remote Name: 152.163.232.43
HTTP User Agent: Mozilla/2.0 (compatible; MSIE 3.02; AOL 4.0; Windows 95)
Name: Carla Servant
Organization:
Email: bobarla@webtv.net
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 12/29/98
Time: 1:30:20 AM
Remote Name: 209.240.200.105
HTTP User Agent: Mozilla/3.0 WebTV/1.2 (compatible; MSIE 2.0)
Joan, Ila and Miles. Thank you for all of the wonderful things you are doing for everyone.
Name: Darleen Riley
Organization:
Email: ndriley@intercom.net
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 12/28/98
Time: 10:56:56 PM
Remote Name: 204.183.213.48
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; Windows 95)
Beautiful Work!!!!!!
Name: Twanya Weber
Organization:
Email: twanya.weber@halliburton.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: Yes
Date: 12/28/98
Time: 3:50:20 PM
Remote Name: 32.97.35.105
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; Windows 95)
This is the best thing going. The information is invaluable and the people are wonderful
Name: Kim Davis
Organization:
Email: lonman@hyperaction.net
Home_Page: http://
How did you find us?: Search Engine
Link_Followed: http://
Should we contact you?: Yes
Date: 12/27/98
Time: 11:21:33 PM
Remote Name: 208.149.168.143
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; Windows 98)
Thanks for the info.
Name: Ken & Paulette Keeney
Organization:
Email: knkeeney@aol.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 12/27/98
Time: 6:09:06 PM
Remote Name: 205.188.199.24
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; AOL 4.0; Windows 95)
Name: Mark E. Affleck
Organization: Personal
Email: maffleck@avocado.org
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: No
Date: 12/21/98
Time: 10:00:53 PM
Remote Name: 207.71.116.229
HTTP User Agent: Mozilla/4.04 [en] (Win95; I)
My brother Miles Affleck directed me to the site. I was very impressed. I have downloaded everything and will look it over. Keep up the good work. God Bless. Mark Affleck
Name: Michael W. Davis
Organization: Neurological Case Management Assoc.
Email: mdavis@brainman.com
Home_Page: http://brainman.com
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: No
Date: 12/21/98
Time: 9:34:43 PM
Remote Name: 208.162.196.38
HTTP User Agent: Mozilla/2.0 (compatible; MSIE 3.02; Windows 95)
Please feel free to view my website at the above address. I have a son Todd, who is 19 years post. He was severely injured at age 8 and is now 27 and requires one on one care 24 hours a day. Please feel free to call.
Name: Hamp Wilson
Organization: Hamp Wilson-Consulting
Email: NASA VET@aol.com
Home_Page: http://
How did you find us?: Followed a Link
Link_Followed: http://
Should we contact you?: No
Date: 12/19/98
Time: 8:44:43 AM
Remote Name: 152.163.201.71
HTTP User Agent: Mozilla/2.0 (compatible; MSIE 3.02; AOL 4.0; Windows 95)
Excellent presentation. Gives the information needed by viewers. I like the art work too.
Name: Jeff and Pam Anderson
Organization:
Email: jwa4pmr@aol.com
Home_Page: http://
How did you find us?: Word of Mouth
Link_Followed: http://
Should we contact you?: Yes
Date: 12/18/98
Time: 10:33:54 PM
Remote Name: 152.163.207.186
HTTP User Agent: Mozilla/4.0 (compatible; MSIE 4.01; AOL 4.0; Windows 95)
Well done. Pam and I wish you much success with RAF. We will be sure to share this as a great resource for our patients. Thanks
Name: John Lyon
Email: jlyon@tbinet.org
City: Woodhaven, Mi
Homepage: http://tbinet.org
Found us by: Other means
Comment: Nice beginnings Joan, Ila and Miles! Congrats!
Signed on: Fri Dec 11 19:49:02 1998
Name: Carolyn Hanzlik
E-mail: cwhanzlik@aol.com
City: McLean, VA
No homepage given.
Found us by: Word of mouth
Didn't leave a comment.
Signed on: Fri Dec 11 21:04:18 1998
Name: Alf Lucas
E-mail: alfer@sunshine.net
City: Sechelt British Columbia
Homepage: tbi.org/caregivers
Found us by: Following this link: tbi.org/raf/
Comment: At long last
Signed on: Sat Dec 12 01:45:46 1998
Name: WAYNE BOSEMAN
E-mail: DADWEY @ AOL . COM
City: TARBORO , NOTH CAROLINA
No homepage given.
Found us by: Other means
Comment: FATHER AND CAREGIVER OF SON WITH ANOXIC BRAIN DAMAGE ,VEGETATIVE STATE
SINCE 10/10/95 , GOD BLESS YOU ALL
Signed on: Sat Dec 12 11:10:26 1998
Name: Amber Williams
E-mail: Abwms22@aol.com
City: Dayton Ohio
No homepage given.
Found us by: Following this link: The link was not given
Didn't leave a comment.
Signed on: Sun Dec 13 12:27:20 1998
Name: Dave Smith
No e-mail address given.
City: Canton, Ohio
No homepage given.
Found us by: Word of mouth
Comment: Looks very good!
Signed on: Sun Dec 13 17:47:41 1998
Name: Cathy Childs
E-mail: cchilds1@mmm.com
City: St. Paul, Minnesota
No homepage given.
Found us by: Word of mouth
Comment: Wonderful effort from you three. Thank you a million times over!!!
Signed on: Mon Dec 14 12:57:35 1998
Name: Karen James
E-mail: jamesusa@bright.net
City: Archbold,OH
No homepage given.
Found us by: Following this link: The link was not given
Didn't leave a comment.
Signed on: Mon Dec 14 21:08:31 1998
Name: Jeff Garrett
No e-mail address given.
City: Cornelius, N. C.
No homepage given.
Found us by: Following this link: The link was not given
Didn't leave a comment.
Signed on: Tue Dec 15 09:52:16 1998
Name: Judy Nigro caregiver of Gabriela Torres
E-mail: Judy_Nigro@Suth.Com
City: East Rochester, NY
No homepage given.
Found us by: Other means
Comment: What a wonderful program. I'm glad to see this started. Thank you for recognizing
a need and giving you knowledge, support and assistance to those of us who feel alone
in our quest to provide the best care for our loved ones.
Signed on: Tue Dec 15 10:05:28 1998
Name: Phillip & Marlena
E-mail: campc@radix.net
City: Waldorf, Maryland
Homepage: http://www.campc.com
Found us by: Following this link: http://www.tbichat.org
Comment: Best of luck with your endeavors!!! If I can provide any assitance at all
please don't hesitate to contact me!
Signed on: Wed Dec 16 14:17:29 1998
