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Resources Index

Please send any suggestions, links or updates to:
webmaster@tbinet.org
Revised: November 29, 2002 12:43 PM

TBI Support Groups / Mailing Lists TBI Specific Organizations TBI Related Organizations Medical/Drug References
Epilepsy/Seizure
Info
TBI Professionals Home Pages General Information
Articles
Medical Case Management
Survivors WWW Pages Education and
I.E.P.
TBI Update Quarterly News Letter Technical/Professional Articles
Alternative Therapy Reference/Informational Announcements Commercial
Newspaper Articles Legal Statistical TBI On-Line Chat
  Unsorted Links Software  

 

Fall from horse ends career
Years after trauma, the tragedy multiplies
A disability of capricious symptoms and effects
Help available Via Phone & Web

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Neigborhood Legal Services - Protection and Advocacy.
InjuryLawyerShop.Com  - InjuryLawyerShop is an online resource that allows you to find information from lawyers in your area that practice Personal Injury Law including Wrongful Death.
The Special Ed Advocate - Special Education Law
Health Care Law
Webster & Associates- British Columbia
Sheri R, Abrams P.C. - Social Security Disability Law
The NeuroTrauma Law Nexus ..Great resource for TBI and the Law. Also have great info on TBI, fact and statistics.
David Ferleger Disability Law, Civil Rights & Judaism
Brain Injury Law Group
Traumatic Brain Injury: Proving a Lifetime Disability
The Consumer Law Page
Law -- Traumatic Brain Injury -- Search our Personal Injury Resources
Traumatic Brain Injury: Evaluation and Litigation
The Traumatically Brain Injured and the Law
Law Offices of Herbert Monheit Covering Brain Injury and many other types of litigation.
Shigley Law Firm, L.L.C.   Focuses on representing individuals, families and small businesses in cases of catastrophic injury and wrongful death. Atlanta, Ga.
Legal Rights Infocenter - legal rights information and access to attorneys who specialize in legal rights litigation.
Attorneys Lee, Eadon, Isgett and Popwell, P.A. - is a plaintiff/claimant-oriented trial practice firm that focuses on representing people who have suffered personal injuries or wrongful death.

DISABILITY LEGISLATION AND RELATED LAW

Many of the following links point to information concerning the Americans With Disabilities Act (ADA). Other sites point to information that may be helpful to those dealing with disability-related issues.

Disability Rights Organization.
Americans with Disabilities Act Document Center
Americans with Disabilities Act Accessibility Guidelines
Overview of the Americans with Disabilities Act of 1990
Technology-Related Assistance to Individuals with Disabilities Act
Table of ADA Cases
The Legal Information Institute from Cornell Law School
U.S. Law: Primary Documents and Commentary from Cornell Law School
Rules of Professional Conduct Involving Lawyers Table of Rule from Cornell Law School
ADA Information Center On-Line from the Kansas Commission of Disability Concerns
The World Wide Web Virtual Library: Law from the Indiana University School of Law - Bloomington
Disability Legal Info
Disability Laws and Regulations

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Dr. Appel Ph.D. Neuropsychologist, great page and info.
Dr. Diane's Health-Helper
Dr. Sarah A. Raskin of Trinity College Home Page
Len Ochs Ph.D. Home Page. In association with Center for Neurofunctioning

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TBINET's  Epilepsy Page
This site is about Service Dogs which are trained to detect forthcoming seizures in their owners.
James Whitlock, M.D ..Epilepsy/Seizure Info & FAQ's

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Case Management Society of America
Neurological Case Management Associates
C.Q.I Health Care Management Services
Individual Case Management Association .. 1-800-664-2620
Rehabilitation Case Management Consultants .. 1-800-968-4087

They should be able to help you find a Certified Case Manager in your area.

 

You should also contact your Local or State Brain Injury Assn. for recommendations, they probably have a list of known reputable Case Managers in your area. If do not yet know how to contact your Local or State Brain Injury Assn. see the next section below. To learn more about Case Management click HERE.

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Alabama Head Injury Foundation
Alaska - Brain Injury Assn.
Colorado - Brain InjuryAssn.
Connecticut - Brain Injury Assn.
Delaware - Brain Injury Assn.
Florida - Brain Injury Assn
Georgia  - Brain Injury Assn.
Illinois - Brain Injury Assn.
Indiana - Brain Injury Assn.
Kansas - Brain Injury Assn.
Kentucky - Brain Injury Assn.
Maine - Brain Injury Assn.
Maryland - Brain Injury Assn.
Massachusetts - Brain Injury Assn.
Michigan - Brain Injury Assn.
Minnesota - Brain Injury Assn
Mississippi Brain Injury Assn.
Missouri - Head Injury Advisory Council
Nebraska - Brain Injury Assn.
North Carolina - Brain Injury Assn.
New Jersey - Brain Injury Assn.
New Hampshire - Brain Injury Assn.
Ohio - Brain Injury Assn.
Oklahoma - Brain Injury Assn., Inc
Oregon - Brain Injury Assn.
Pacific Head Injury Assn. .. Hawaii
Pennsylvania
Western Pennsylvania Brain Injury Assn.
Eastern Pennsylvania Brain Injury Assn.
Rhode Island - Brain Injury Assn.
Tennessee - Brain Injury Assn.
Texas - Brain Injury Assn
Utah - Brain Injury Assn.
Virginia - Brain Injury Assn.
Washington - Brain Injury Assn.
West Virginia - Brain Injury Assn.
Wisconsin - Brain Injury Assn.

International Brain Injury Associations

The International Brain Injury Association
Headway National - Head Injuries Association in U.K.
Vancouver Island Head Injury Society
Saskatchewan - Head Injury Assn.
Saskatchewan - Think First
Ontario - Brain Injury Association
Nipissing (Canada) Brain Injury Assn.
H2000TBI & BRAIN Italy
Headway Victoria - Australia
Brain Injury Association - NZ

Other U.S. & International TBI Specific Links

Recovery Awareness Foundation - The Recovery Awareness Foundation’s purpose is to assist the primary caregiver of people who have suffered a BRAIN INJURY. We want to be there for these people in their time of special and individual needs.

Although not an organization, "While you are waiting" is a web site devoted to those waiting while their loved one is in a coma. This is a great source of information and support.
National Resource Center for TBI
Coma Recovery Assn. -  is a not-for-profit organization for coma and brain injury survivors, family members, friends and professionals.
The Joseph Corpina Foundation - Dedicated to the enhancement of health and quality of life for children who have suffered traumatic brain injury.
Virtual Hospital: Iowa Healthbook: Brain Injury - Basic information about brain injury and its treatment.
Brain Injury Assn. Inc. is the new name for the National Head Injury Foundation.
Traumatic Brain Inury Survival Guide  - by Dr. Glen Johnson Clinical Neuropsychologist
TBI Model Systems Project Developing and demonstrating a model system of care for persons with TBI. Good links and Reference material.
The Ohio Head Injury Association gopher - Good articles and other resources.
Toll-Free Consultation for TBI 24 hours a day.
RehabNET Northeast U.S.
Think First Foundation .. Nation Brain and Spinal Cord Injury Prevention Program.
Head Injury Com -  head injury facts and info
Lance's Brain Injury resource web page -   People in the Victoria, B.C., Canada area will find these especially useful.

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Larry Courtney's Page
Nick Ide's PlaceThere's people in the guest book from around the world. My goal now is to educate the world... Thank You All.
Mrs. Hooks TBI Home - For TBI survivors and caregivers for info and fun things
Josh's Web Page
Bruce Robb Home Page
David R's Home Page
Linda Hunt's Home Page
Sharon Gorman's Brain Injury Pages.
Yaron Hillel Home Page
Frank Ford's Home Page
Georgia's TBI Page
K. Stoeffler (aka OregonRose) New Beginnings SOBI (Survivors Of Brain Injuries)
Judith Kuster's Home Page .. Deals mainly with Communications Disorders, speech/language, hearing and stuttering.
Michael Gagnon .. Home Page, New Brunswick Canada.
Chris & Debbie Wilson's .. Home Page
Karen Cuno-Stoeffler's New Beginnings Survivor of Brain Injuries
Steve Drake's  Home Page is not really about TBI, it's about Hydrocephalus (Water on the Brain). He has links to the Hydrocephalus Association also to the HYCEPH-L, a Hydrocephalus E-mail support mailing list.

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The Capper Foundation - The Capper Foundation's Mission is to enhance the independence of people with physical disabilities, primarily children.
Coma Recovery Assn.
Brain Surgery Information Center
T.H.E. BRAIN TRUST
National Academy of Neuropsychology's  page on "Mild" Brain Injury.
TBI Survival Guide  Good info.
The Cerebral Palsy Network
Med-Sell - Your Resource Guide for New & Previously Owned Medical Equipment, Assistive Devices & Services.
Disability Related Products & Service - Links Very Good!
Communication Aids - for disabled.
National Down Syndrome Society, NDSS
American Academy Of Neurology
Traumatic Brain Injury - The Washington Association of Optometric Physicians have provided information on how a TBI can affect vision, and what can be done to help correct the problems.
Traumatic Brain Injury - Information for Caregivers - Information for those caring for loved ones with TBI. Relaxation techniques, an adapted leisure catalog, and even some mindless games (when you need a break!)
The American Academy of Experts in Traumatic StressTM Look up TBI related Doctors.
INDIE ..The Integrated Network of Disability Information and Education. A comprehensive one-stop resources for products, services, and information for the world wide disability community.
Disability Rights Activist
Mad Nation - People working together for Social Justice and Human Rights in Mental Health.
Support Coalition International - Winning human rights in the “mental health system”
National Association of Protection and Advocacy Systems, Inc.
Mental Health Com This is a huge site which has lots of info on mental health and info related to brain injuries.
Browse NARIC Databases: Brain injuries.
Search NARIC Databases.
The Handle Institute's TBI Page.
The National Institute on Life Planning For Persons with Disabilities, Inc. is a non-profit with a site for general disability information that looks pretty good.
National Brain Aneurysm Foundation
Resources Guide Spinal Cord Injury, Stroke and Paralysis.
American Association of Neuroscience Nurses Home Page.
A page with many neuropsych links is at Neuropsychology Central.
Social Security Administration Home Page.
Department of Health and Human Services - Programs for Children and Families.
American Brain Tumor Association Homepage
NDLline - Nonverbal Learning Disorders
CNS - Centre for Neuro skills
Rest Ministries, Inc. -a service ministry for people who live with chronic illness or pain.

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Pediatric brain injury - resource of tip cards.
Books on Brain Injury at Amazon.com
Claudia L Osborn - Home page of Dr. Osborn who sustained a brain injury and is selling her book about her experience.
WebMD's   Find a doctor or Physician. Also doctor rating system.
Frequently Asked Questions About Head Injury - Introductory FAQ about Traumatic Brain Injury, Coma, Seizures, and what to expect from treatment
The Evaluation and Treatment of Mild Traumatic Brain Injury - by Nils R. Varney (Editor), Richard J. Roberts (Editor)
Dr. Diane Stoler's Book on Coping with Mild TBI
Barbara, Del Buono - Her book "Acknowledged a Man" is the story of their 20-year battle with a cynical, sometimes cruel medical establishment; with a convoluted, influence-driven criminal justice system; and with an irresponsible, self-indulgent national and local YMCA.
Pediatric Trauma and Head Injury
Epidemiology of Traumatic Brain Injury in the United States. From the Center for Disease Control.
Free Reading/Infomation from Kansas BIA
Tbilibrary.com - is a online bookstore, which carries only the leading material in the field of brain injury.
Virtual Hospital Lots of Information on brain injuries.
Anatomy of a Head Injury - Causes, symptoms and assessment of brain injuries.
Archives of TBI-SPRT Mailing List - Mailing list for non-professionals. Browse or search the archives for information on Brain Injuries, support, treatment, rehabilitation, education, tips, etc.
The Perspectives Network (TAN). Contains extensive lists of resources. Also check out the FAQ about TBI/ABI.
Untangling the Web - find Disability-Related Information Answering the Question, Where can I go to find Disability-Related Information?
Patient and Family Education Resources
PoinTIS - Point of Care, Team-based Information System provides comprehensive information on spinal cord injury rehabilitation and traumatic brain injury rehabilitation for health care providers, patients and patients families.
OEP - Optometric Extension Program: Acquired Brain Injury & Hidden Visual Problems - Often visual problems resulting from Acquired Brain Injury are overlooked during initial treatment of the injury.
The Whole Brain Atlas from Harvard Medical.
Mass General Hospital/Harvard Neurosurgery: Guide for Medical Students
The World-Wide Web Virtual Library: Biosciences - Medicine
Virtual Medical Center - Martindale's Health Science Guide
Americans with Disabilities Act Document Center
U.S. Social Security Disability - Home Page
University of Maryland Drug Information.
Injury Control Resource Information Network. General access to Injury Info of all types.
St. Johns University Gopher. Links to general information on rehab and disabilities. Lots of stuff related to rehab and technology, Electronic Access to Software and Information, etc. If a brain injury resulted in physical disabilities, this is a good place to look around.
disABILITY Resources on the Internet
Electronic Journals and Periodicals in Psychology and Related Fields

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N.I.N.D.S. - 1999 NINDS Press Releases
N.I.N.D.S. - 1998 NINDS Press Releases
TBI Act of 1996
ADA Documents
The Health Show Past Items: Brain Injury
What You Should Know About ECT Electroconvulsive Therapy (shock treatment) survivors page.
Brain Train Articles - Mostly from Family and Survivors.

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Volunteers needed: TBI survivors for a study of memory improvement skills at Trinity College
UT-Houston Receives $7.2 Million To Study Hypothermia Treatment for Severe Traumatic Brain Injury

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A Little About The IEP - Individualized Education Program
U.S. Dept. of Education I.D.E.A. Individuals with Disabilities Education Act Public Law 105-17
I.D.E.A. Bookmark this page for the latest information on IDEA** 
Search - U.S. Department of Education
Special Education, Learning Disabilities Resources, Services, Professionals
The Mining Co A links page to good info on Disability and Education.
CeDRR Home Page - Info on basic academic accommodations.
SSD Student Information Index
TBI Support Group at Trinity College
Neuroscience for Kids Worksheets - These pages contain worksheets and lessons that are ready for you to print out and work on off-line
Kim Komando Radio Show - Site for the blind.
Head Injuries Require Quick, Skilled Care by Dixie Farley
Brain Injury - A Guide for Families and Friends

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Hurting heads Graph from USA Today (October 10, 1995 05:53 PM)
TBI Stats
Epidemiology of Traumatic Brain Injury in the United States. From the Center for Disease Control.

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Hydrocephalus Fact Sheet from the Hydrocephalus Association
JHU Article: Brain Injury Provides Strong Evidence for Mind's Language Machinery

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The NeuroScience Center - Treatment, Referemce, Books and Software.
BIndependent  -  The only Internet store created by and for brain injury survivors and their caregivers.
The Children's Institute - Rehab facility for children.
Coastline Community College's ABI Program - provides cognitive retraining to adult survivors of acquired brain injury.
Coastline Community College's CRS Program - The CRS Program is designed to prepare its' students to teach survivors of acquired brain injuries the skills they need to identify their strengths and deficits and to acquire new thinking skills and compensation strategies.
Back in the Saddle - A long term residential facility for adults with "acquired brain damage" who are motivated to be as self-reliant and independent as possible. Life skill trainers live on site, and a Case Manager works with residents to help prioritize goals.
Center for Comprehensive Services - Traumatic\Acquired Brain and Spinal Cord Injury Rehabilitation. The first residential after hospital focusing on persons with Acquired Brain Injuries
East Texas Brain Injury Support and Education - We offer caregiver and survivor support groups, education activities and special events for East Texas communities.
NeuroAdvance, Inc. - Brain injury rehabilitation services and head injury rehabilitation services for clients in the New England and Mid-Adlantic area.
Gerald B. Brooks - Brain Injury Rehab Services
Cognitive Rehabilitation Inc. cost saving approach to cognitive rehabilitation.
Alicia - One hour movie on Brain Injury
NCIL is a small organization in New Hampshire that provides services to brain injured adults in a community setting.
Fulbright & Associates Private Neuropsychology and Neurocognitive Rehabilitation Clinic, based in Texas.
Behavioral Medicine Associates, Inc. Has some great info on many subjects related to TBI, one good page on MTBI is real good.
Cheshire Homes Society currently operates four residential programs providing a variety of support: transitional rehabilitation, long term specialized care and semi-independent living apartments and supported living.
Rehabilitation Living Centers Inc. Is located in New Orleans, They specialize in long term care for the brain injured.
Learning Services, Inc. Specialists in Neurorehabilitation.
Farm Hill Residential Care for the brain inured.
Peter's Place .. A TBI Rehab Center in Nova Scotia.
Journal of Cognitive Rehabilitation brain injury head injury stroke.
The Centre for Neuro Skills CNS is another for-profit organization that has a WWW page with some good information.
Mainstream Magazine On-Line .. A magazine billed as "for the abled disabled".
Home Page for EEG Spectrum, Inc. - Biofeedback - teaching an old brain new tricks.

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Dragon Dictate is a speech to text program
The NeuroScience Center - Treatment, Referemce, Books and Software.
Parrot Software Cognitive Software
Bungalow Software .. Software designed by Speech/Language Pathologist for Speech/Lang Pathologists.
Brain Train  Software.
Cool Spring Software - Commercial page related to neuropsych and neuroscience.
Gus Communications Inc. - Speech Disorders, Augmentative Communication - Software
Cognitive Rehabilitation Software for head injury, brain injury, stroke.
Neuro Page is a computer software reminder system for the brain injured.
RehabNET Articles & Software.
LAB Resources 1995 Catalog - Laureate Software

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Resources- not yet sorted

Parents of Children With Special Needs
Autism and family
SEC.1012. FUNDING FOR THE INDIVIDUALS WITH DISABILITIES EDUCATION ACT.
Family Voices
Attention-Deficit Hyperactivity Disorder
My Library of Special Ed. Links
NORD - Hirschsprung's Disease
The Pull-thru Network
Hirschsprung's Disease
United Ostomy Association, Inc
APHS APSNA ONLINE
The Digestive Diseases Dictionary
check
Bowel Management Medication
Guardian Society's Homepage
Gabbys Swim Diapers and Accessories for Infants
KALEIDOSCOPE Interactive: KTV Television Programming- a health and Ability channel,, check with your Cable Company,, you may have this on your TV
drkoop.com's Family Health Center
Special Needs Links links,, links
Autism through the Lifespan
What is Autism?
Autism Resources Links
Resources on issues related to Autism
UVa Web Resources on Autism
Autism Resources
Autism and Spectrum Links
The New Jersey Center for Outreach andServices for the Autism Community, Inc.CO
The Autism Depot
IRC Client
Articles/Topics On-Line
Snap:Education:Special Education:Autism
Nutrition and Disease - Renal (Kidney) Disease
Friends - FASandFAE mothers
Children and Adults with Attention Deficit/Hyperactivity Disorder
Welcome to the Association for Children with Down Syndrome, Inc.
Deaf World Web
ASL Menu
Helping Hand Cafe
Parents of Deaf Children
Internet Mental Health
Life - DEpressED
Online Psych Chat
Announcing...Mental Health Matters!Psychiatric Research, Alternative Treatment
Children & Death@Online Psych
US GOVERNMENT SITES
VACCINATIONS II
Center for Patient Advocacy - Insurance Problems?
The HMO Page
HMO: How to File a HMO Complaint
President's Message
Fight For Patient Protection Legislation
http://www.greatconnect.com/naturalsolutions/
UVa special education information for parents
Welcome To Wonderful Miracles™
Welcome to Wonderful Miracles™ by Mary
Hello and Welcome to Wonderful Miracles!
Organizations Online
The Special Ed Advocate - Special Education Law
Hemikids - Support for children with hemiplegia, hemiparesis, and cerebral palsy
United Federation of ChildSafe Web Sites Home Page
Teens

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For Site information, contact: webmaster@tbinet.org
Revised: November 29, 2002 12:43 PM